Web Notes

I submitted a post as a new memeber several days ago. I see nothing
has been posted since Sept 15. Is there a problem? Susan

You are looking great Ally! What a beautiful bride you will be.
Pat
Allison <allisonmarie22@...
Actually, 2 new pictures.
~Ally~
Atlanta, GA
Lap RNY 7/12/07
251/237/174/130
HW/SW/CW/GW

Joanne,
You call leaving Arizona "escaping"??? I loved Arizona when I visited and
thought it would be a great place to live. What did I miss?
Sara
Lap DS
360/353/276/150
HW/SW/CW/GW

Hi, my name is Susan Holmberg, and I live in British Columbia,
Canada.
I was initially diagnosed with stage IIb lobular breast cancer, in
the
nodes, in September of 2000. At that time I had AC chemo, surgery
and
radiation.
In April 2005, after my local doc despaired of trying to figure out
where pain in my chest was originating from, he sent me back to my
breast surgeon, who ordered a bone scan and CA-15-3 blood marker
test.
The blood test came back at 233 (normal is about 28 or less) and
then
the bone scan revealed bone mets in my skull, left clavicle, left
scapula, left humerous, multiple ribs both sides, pelvic bone, pubic
bone, right hip annd right femur.
I was immediately put on Letrozole (Femara), an aromatose inhibitor,
and clodronate to build the bones. The Femara has worked well and my
most recent blood test last week showed a level of 28.
My main challenge at the moment is trying to resolve a lot of pain
in my ribs, and I will be discussing radiation with my oncologist
today.
Up till the time of stage IV diagnosis I was operating two
stationery
stores, one in my home town of Merritt, and the other an hour away.
I
have subsequently sold the out of town store, and my son is managing
the store here, and I am just doing the books now.
In June I bought myself a Roadtrek van and have spent several weeks
in
total travelling and enjoying beautiful Western Canada. I am now 60,
and I have four grown children, in Merritt, Vancouver, Oakville
Ontario, and Halifax, Nova Scotia. I am originally a Brit, and I
still
have a very dear sister in Durham, England, whom I visit quite
frequently.
I was an avid gardener, and I love antique china and glass, and do
have a little outlet attached to my stationery store. I may be
spotted
frequenting garage sales and auctions!
I look forward to getting to know the members of the group, though I
know every one of us would rather not be here!
Kind regards, Susan

I am guilty of only reading the top of posts and then deleting. I would never
get through the posts if I didn't!! I have probably missed some replies if
they were on the bottom!!

Hi Susan,

Hi Susan!

Oh San, I'm sorry sorry they turned down your application! That
stinks!!!
Will you keep looking for a better place?
Dawn in PA
Lap RNY 06/27/07
305/278/179/140
HW/SW/CW/GW

I keep thinking about Brookhaven's Tiffany. Does anyone have an update?
San, 34, Single
No Kids - Zion, IL
Far North 'burb of Chgo
Lap RNY 08.28.07
Highest Weight: 370
Surgery Weight: 370
Current Weight: 299
Goal Weight: 150

Dear Susan,
I have found that things are slow on the weekend.
Folks get busy. Sorry you didn't have an answer
sooner.
Hugs, Brenda

Brenda Young Olson
Ft. Lauderdale, FL
Bellydancing, it's the hip thing to do.

Dear Parvin, I am so glad that your tumors are going away. Good for
you and way to go.
Dear Beyza, I am so glad that your mom is doing so good after her
treatment and continues to. Take care, God Bless, Love, Sharon

Hello All,
You may remember me from this summer. I wrote a lot, since I was
taking care of my mother who was going through Taxotere chemotherapy
for Stage IV breast cancer with liver mets.
She is doing much better now. Most of the side effects of chemo are
gone. She is on Femara. She is following a very health diet and all
her doc's recommendations. She just looks so lively and energetic
which makes all of us forget what we have gone through this summer.
Whatever we had to deal with was much worth seeing her so happy right
now.
Anyways, just wanted to give you an update. I hope anyone who goes
through chemo has such good response post-chemo.
Also, I need help. I am taking Marketing Management program at Humber
College in Toronto. We have a course where we need to come up with an
innovative business idea and prepare a business plan. There is a 1000
$ prize at the end. The criteria is originality, and implementation
of a good plan.
So I need a good, original idea. I decided whatever service or
product I develop, it should be geared towards breast cancer (or
cancer in general) patients. I am not doing this to win the prize,
since this is a learning exercise for me, but if I do win the prize,
I will give all of it to Canadian Breast Cancer Foundation.
Here is what I need from you: Let me know, as a b.c. patient or a
caregiver to a b.c. patient, during the course of the treatment and
sickness and theraphy what did you need? Was there anything/any
service in particular that you did not have and wished someone would
come up with it?
I appreciate your help in advance.
Hugs and kisses to everyone.
Beyza

HI everyone! Just checking to see if anyone is the Marietta/ Atlanta area is
doing the 5k race on Saturday morning in Marietta at the Johnson Ferry Baptist
Church. It's the annual Polar Bear run. Let me know. I will be running and
trying to keep warm in the morning. Have a great day!
Theresa

Dear Susan,
Welcome to the group. Sorry for the reason you're
here. We are a caring group. I have bone mets too as
well as lung mets but am stable for almost a year now.
I have visited your beautiful country, or at least
the BC part on my way to Alaska.
My best, Brenda in Ft. Lauderdale, Florida

Brenda Young Olson
Ft. Lauderdale, FL
Bellydancing, it's the hip thing to do.

San, my daughter is getting a masters from Walden, much cheaper and it's
working out well for her. She is a full-time rn, with 2 little girls and a
husband. She pops on the computer after work or before work and posts.

Good for you, that's awesome...

Thanks Dawn, I will keep looking...i keep explaining my *situation* to these
places and they keep accepting my app fee but it seems all for naught! I am
trying to keep my head up though. I have to keep on truckin so that is what I'll
do!
Thanks again.
San, 34, Single
No Kids - Zion, IL
Far North 'burb of Chgo
Lap RNY 08.28.07
Highest Weight: 370
Surgery Weight: 370
Current Weight: 299
Goal Weight: 150

Beyza
So good to know that your mother is doing well. As a university professor, I
am interested in helping students whenever possible.
I have been through two rounds of chemo, had inravenous treatments weekly
for two years and now every other week. It is not the most wonderful way to
spend one's time. Also, as you look around, you are overwhelmed by the number
of
others fighting the same battle as you. It can be depressing. It would be
wonderul if we could have a manicure or pedicure while at the center. It would
get our minds off of the disease...and perk up our spirits. Every woman
feels better after she has her nails done...and the new "spa" pedicures--warm,
pulsating water against hot and tired feet--well, they are great. (as are
pretty toenails) Of course, all the products would need to be non-toxic--but
with the newer nail finishes, that should not be a problem.
These services could be offered at a "minimal" charge--with the bulk of the
costs "picked up" by corporate sponsors (excellent "goodwill" and advertising
for them). The manicurists/
pedicurists could be students at local schools of cosmetology--nearly every
town has some sort of program...Or, they could be "professional" manicurists
who volunteer their time.
Another "service"--and this would be wonderful for the younger cancer
patients--would be to establish and supervise "child care centers' right in (or
at)
the cancer centers. Children should not be with the actual patients
receiving treatments--kids have too many germs, and patients have no immune
system...But for the young mother, already stressed by having the disease,
finding a
place for her children while she has a five/six hour drip adds more stress.
How wonderful for her to know her children are safe and being cared for in the
same facility
(or a space nearby).
Also, having these children together could give them the opportunity to
discuss their feelings--frustrations and fears--as they watch "mommy" not
feeling
well. Breast cancer survivors could volunteer time to come in and talk with
the children--and show them that, yes...your mommy can survive this. Again,
the expenses for such a center could be picked up by local businesses--much
like how a local store "backs" a little league team. The space would,
hopefully,
be made available by the cancer center itself. Supervisors could be
pre-school education interns--or education interns for the older children and
volunteers--a perfect junior league placement!! Activities would be planned--it
would not just be "random" play. Start one such program and then "franchise"
the idea to other cancer care facilities. Most likely, it would be a
not-for-profit-business; but there could be a minimal fee charged to the
mothers who
could afford such a fee--and paid by "cancer services" for those mothers who
could not. It might be that certain insurance plans would pick up the costs.
With more time, I could up with other ideas...hope these help.
Marian

In a message dated 9/19/2005 2:43:00 AM Central Daylight Time,

Dawn,
I just flipped between your first and your last pictures in your
album. What a difference. You have a great looking face in both
pictures. I think our bodies will level out when we are finished
losing our excess weight. Then the remaining fat, not obese fat but
normal people fat, will even out and our bodies will change again.
That's what I have noticed about others who have lost weight.
My body is beginning to change, not from reaching any goals but just
from a re-distribution of fat, I think. It's just that right now I
have this huge alien "hernia" that bulges out farther and farther
everyday. I's about kickball size and very high up. The people I
swim with have tried to be cool about it but their eyes bug out
everytime I walk from the pool. That's okay, I know it will
eventually go away. I kind of dread another surgery though. The
aftercare at Johns Hopkins just scares me. My mom is in Florida and
won't be home until the very end of April. She can take care of me
again, but I will have to wait until then as there is nobody around
me who doesn't work.
I think we will all have some issues with our image of ourselves when
we reach our goals. We have lived so long with this extra stuff and
a body that has not been attractive, that it will take some getting
used to before we see us as others do. I think not only will we have
that problem, but the people who are near and dear to us may have
that same problem. We will need to show them how much better we
look. By showing them, we may be able to see ourselves.
Dawn, you will do okay. You have a very loving and supportive
husband. You are one of the lucky ones.
Lizanne

I agree with Dawn.. disoving something in water is much different than disoving
something in our digestive track and as it disolves . . we absorb it .. I would
continue taking that medication Jill. .
~*Sharon XOXO*~
"THIN feels better than FAT tastes!"
Lap RNY 7/30/07
HW242**SW232**CW170**GW125-130

I got chicken and shrimp for the protein (I ate some of the shrimp
last night and saved the chicken for re-heating leftovers since
reheated shrimp often gets rubbery), and mixed it with water
chestnuts, a few snow peas, pineapple, onions, green peppers, and lots
of fresh garlic. Then added a mix of szechuan and kung pao sauce.
My area seems to be a bit saturated with counselors (unless you want
to do chemical dependency counseling, which I do NOT) at the moment.
Hopefully, it won't take me more than a few months to find another IT
job. The worst part is that for the past few years I have been
working a 4x10, M-R schedule and seeing clients on Tues and Wed nights
and during the day on Fridays, and I know that with a new job I will
have to go back to a regular work schedule and won't have Fridays open
for clients (and my own sessions -- usually 2x/month, more lately).
Lora

San,
I am so sorry to hear that you didn't get your new home. Maybe that
one wasn't right for you. Keep looking, a new opportunity may open
up. I will say a little prayer that you will find a new happier home.
Oh, and I did have a great day, thank you.
Lizanne

Jill, dissolving something in water can't compare to dissolving it in
hydrochloric acid, which is what is in our stomachs. Try dissolving it in coke
(which still isn't the same, but will give you a better idea).
Pat
Sharon Buffo <septsweety@...

Lora,
You are not having very much fun this year, are you? Well, now you
can put some of the extra "energy" into becoming the self employed
person you wanted to be. This is something you want, it just is upon
you faster than you thought. You know you can do it, it just takes
concentration, right?
I too am amazed sometimes when I look at my legs or arms close up.
But then when I look at the whole picture, all I see is a fat
person. My perception is a mess, but if we stay slimmer, we will get
used to it.
Post when you can. We have been very gabby lately. A lot of new
losers lately, and new members so there has been a lot of
acknowledgements happening. I am glad you are trying to move past
your accidental disclosure. I miss you sister.
Lizanne

Pat,
I have been doing nothing that is high impact. I was wondering
though, because I am still obese, if just walking might be considered
high impact. I plan to keep walking the treadmill, I will just limit
my time. I walk 1.5-1.8 miles in my 35-45 minutes. Maybe I won't
try pushing any harder until I am just obese, not severly obese.
Thanks for the thought though. I don't have a band, and if you don't
think I am hurting myself with just my limited treadmill walking, I
plan to stay like I am. We work on building muscles in our legs and
arms particularly in my water class. It is noticable for me. I have
been doing it almost 4 months.
Lizanne

That is great! Hope you guys had a good time...............Kathy
In a message dated 10/8/2005 2:26:13 AM Central Standard Time,

Ally,
Congratulations!!! Aren't you proud of your accomplishments? Yes,
it takes a lot out of us, but we are healthier and cuter. I don't
still feel severely obese, but I am. I should stop thinking about
labels and just be proud. Right, Ally?
Lizanne

You look AMAZING, Ally! I am so happy for you!
Amy
Proud Air Force Wife
no surgery date yet
CW 275

Ally,
OMG!! You are so pretty. Look at that face. You are just so
lovely. What a beautiful bride you will make. I see that look in
your eye and it says you feel sexy. Are you proud of yourself now?
Lizanne

Thanks for that, it's nice to know that I'm on track, I'm just a *bit *slower.
I know if I keep plugging along, I'll get there. Today when I weighed I hit
the 40!!! it's actually 50 I lost 10lbs 2 weeks prior to surgery on the
liquid protein pre op diet. So I'm a little happy camper today, I can't
believe in 2 lbs I'll be in the 240's, I haven't seen that number in over 15
years :o)
Again, thanks for the encouragement.
Edie
11/15/07
lap rny
302/292/252/150's
hw/sw/cw/goal

Sharon
I have a twelve year old who brings home every contagious disease going
around his school. His immune system is usually strong enough to fight it; but
in the past four years I have had strep throat five times; bronchitis three
times; some really yucky stomach viruses and "walking" pneumonia. I don't
think there is anything I can take to prevent my getting sick--except for a flu
shot. I didn't know there is a shot for pneumonia...I need to check into that.
Thanks.
Marian

Pat & Joanne-
Yes, he'll still have the risk of outbreaks, but since his diabetes is now
diagnosed and controlled his risk is much lower. Thank goodness for that. The
cellulitis is so icky and painful. I could count on one hand the times in my
life I'd seen my dad cry until he got cellulitis. Now I can't count the times
on all my fingers and toes. It was so horrible to watch him go through that.
~Ally~
Atlanta, GA
Lap RNY 7/12/07
251/237/174/130
HW/SW/CW/GW

I know what you mean, Pat. When Joanne first came here I deleted so many of her
posts thinking that there was nothing there. Then I realized she was posting on
the bottom! I felt like a real dum-dum.
~Ally~
Atlanta, GA
Lap RNY 7/12/07
251/237/174/130
HW/SW/CW/GW

I usually don't look at who the post is from at first... I just look at the top
message, see that I already read that one, and hit delete. Then I learned to
look for Joanne's, because she usually says stuff I don't want to miss.
Pat
Allison <allisonmarie22@...
I know what you mean, Pat. When Joanne first came here I deleted so
many of her posts thinking that there was nothing there. Then I realized she was
posting on the bottom! I felt like a real dum-dum.
~Ally~
Atlanta, GA
Lap RNY 7/12/07
251/237/174/130
HW/SW/CW/GW

Hi all.
I really don't want to dig it all up just as it's been resolved but did anyone
notice that the posts from Anne Kasper were in the main plagierised copies. I
found three that were reproduced from original articles, there were probably
more but could I be bothered to track them down??? NO!
I just wonder where the forum might stand on the copyright front and also the
fact that they could be out of context and giving the wrong messages?
Most of us who have been through the cancer journey know enough to understand
what it is or has happened, you can't help but just learn by experiencing so
much but newer members(new to cancer) who I see as more vulnerable could be led
to all sorts of conflicting areas making their own decisions so much more
difficult.
I would hate to see every post bibliographed but it might be a good idea if
members write' I have read' ' I understand' 'I saw' 'I have experienced' or if
they want give the website from where their info came but Anne Kasper came
across as if she was the authority on a great many subjects when infact all she
was doing was copying from others.
I just love the way everyone shares their wealth of experiences on this site.
This kind of info isn't in articles or on drug leaflets or on hospital posters,
what we have here is sound practical advice from people who have been there,
been down that route, experienced it and solved it (in the main) who can
empathise with the simple to the more complicated problems and make sound
suggestions without pretending or implying that we are anything other than who
we are. We are the ones on the shop floor, experiencing the physical, emotional,
financial and the practical (or impractical.) I just love the site and think it
offers so much valued information, there is simply no need for the likes of AK
and her aggression, we simply don't need it ~ Well done Marianne for tackling
the problem (and tackling so well.)
Take good care, Velvet (UK)

That is fantastic news, Penny - I'm so proud of you! You really are
doing great. Yeah!!!
Dawn in PA
Lap RNY 06/27/07
305/278/179/140
HW/SW/CW/GW

Hi - Faslodex didn't work for me either. So now I have been on 5
rounds of Xeloda with Taxotere for hot spots in my bones and a small
1cm hot spot in my liver. I have 1 infusion of Taxotere and take
Xeloda pills for 2 weeks. I get the third week off of everything.
After the third week I get Taxotere again with the Xeloda pills for 2
weeks. After two rounds of this treatment my pet scan showed "marked
improvement" in my bones. My tumor markers have now dropped from 69
to 29 and I am scheduled for another pet scan shortly - to see if I
am in remission. If so I get to stop chemo for a while. Side effects
have been minimal. The first month or so I felt kind of strange -food
tasted a bit odd - etc -but I got used to it and started to feel more
or less normal. My onc says "It's amazing what our bodies can get
used to!" Now my fingers are dry and sensitive - so I use handcream
now and then. My hair has thinned a bit - but its still here! I'd
say go for the Xeloda - what do you have to lose? I think studies
show that Xeloda with Taxotere works better - but maybe they are
saving the Taxotere for later use if you need it. You might ask your
oncologist about that.
Home this is helpful
Pam M.

I need a new computer it seem's, so this is it for awhile. Doing
good despite pain. Making a bunch of plains for living, as I do not
believe cancer will be the end of me. Out visiting my mom for
Thanksgiving. My mom is going through some seriouse health problems
herself. My son is doing will and my duaghter, I'm very proud of
her progress. Gotta go, medicine has me so so lupy right now. Hope
eveyone is doing better then average!
Love, Audrey

Audrey,
Sorry to hear about the computer. Your Mom is in my prayers as well as you.
Hugs
Marianne
Breast Cancer Patients Soul Mates for Life
http://www.geocities.com/chucky5741/breastcancerpatients.html
BreastCancerStories.com
http://www.breastcancerstories.com/content/view/433/161/
Angel Feather Loomer
www.angelfeatherloomer.blogspot.com
Check out my other ornaments at
www.geocities.com/chucky5741/bcornament.html
Lots of info and gifts at:
www.cancerclub.com

Contrary to some earlier research, a large U.S. study
finds no evidence that a high-fat diet raises women's risk
of breast cancer.
To get the full story, click here:
http://www.informationonbreastcancer.info/breast-cancer.htm

Lora-
I'm so sorry to hear of the pain you've been experiencing. I truly hope that
they find some answers and get you some relief very soon. Until then you will
be in my thoughts.
~Ally~
Atlanta, GA
Lap RNY 7/12/07
251/237/174/130
HW/SW/CW/GW

Breast Cancer 101 <http://www.clickaudit.com/goto/?39097
The cancer is a term for diseases in which abnormal cells divide
uncontrollably invading near by tissue and spreading to other parts of
the body via blood stream or lymphatic system. Similarly, in breast
cancer, a single cell begins to divide and grow abnormally.
Read More.. <http://www.clickaudit.com/goto/?39097

Janet,
Officially, I don't know. I figure that I have to wait for it to exit
my pouch and make it past the small intestine. I guess and assume
that that's about 3 hours. That's how I measure it because I have to
think about calcium in the same way. There is a limit on the amount
of calcium a body can absorb at one time also. Since I eat an oz and
a half of cheese and I eat 6 oz of yogurt and I want to fit in 2
calcium pills, I have to spread them out. That means I have to allow
9 hours after my first bit of calcium to get all 4 servings in.
I will research that for you (and myself)
Lizanne

Many thanks to Lisa L. for putting together the wonderful collage for our main
group page. Also, thanks to all of those who volunteered to be in the collage.
The pictures top to bottom, left to right are as follows:
Ally, Jennifer, Judy, San
Lisa M, Lizanne, Me, Sharon, Dawn
Sara, Lora, Sheggy, Susan
Enjoy!
~Ally~
Atlanta, GA
Lap RNY 7/12/07
251/237/174/130
HW/SW/CW/GW

Lots of posts about bras etc, thought you might like to know about 'Nicola Jane'
here in UK who ship to USA and have quite a good range, actually have some
feminine lacy items and provided very good service when I bought from them last.
(before my recon) If any of you are handy with a needle and thread make a bag
for the prosthesis and safety pin the bag once filled to the inside of your bra.
One lady spoke about adjusting a 'mobile' prosthesis when it moved to the
centre (which they invariably do), how about my most embarrassing experience,
bending over trying on shoes one busy Saturday morning, the shop was packed, and
out it popped on to the floor and infront of a male assistant who looked about 8
years old (but was obviously older) I picked it up held it in my hand and asked
have you any red shoe polish, then bought a jar even though I didn't own any red
shoes.
The other thing I tried rather than a prosthesis was.... think back to the
days of 'Dallas' the TV programme and recall the shoulder pads?They are very
good as soft padding especially if you are only partly uneven, pin in or even
stitch one in.
I have to say I have been lace deprived for just too long but mastectomy bras
generally resemble post war garments. Yes, I definitely agree with the lady who
said the 1950's, something granny wore, (or was it great granny?) I have
recently bought underwired bras because often they are a whole lot more feminine
but I nicked the inside and took out the wire and they fit just as nicely. You
can get the look without the pinching, the squashing or the bruising.
I have been shopping today and seen all the swimwear on sale and its bitterly
cold here today in England (it's mid winter) but those tankini tops look very
supporting and reasonably priced too.
Just some ideas, LOL Velvet (UK)

The group has been so quiet these days.
I don't really have any major news. I'll be getting an ultrasound
of my head next Monday and finally talking about further treatment
strategies with my new oncologist on Wednesday next week. It took
way too long for my first hospital to send the cell samples from my
Nov. 2004 surgery to the National Cancer Center where my new team
could re-dye and re-check them. I feel that my head is probably
fine and the mets. are only in my lungs, but that it's good to get a
baseline image.
I had been scheduled for the strategy talk last week, but I had a
feeling that they wouldn't have all the data yet and I was suddenly
busy with my husband in the hospital for a few days (for tests, he's
OK) and didn't think I could manage to get to the appointment so I
called to check about the status of the data and, sure enough, it
wasn't ready. It was lucky I called so I didn't feel bad about
postoning just because I was busy. I will be very relieved to get
the ball rolling again though.
I was impressed that the receptionist put me through directly to my
onco and not to some staff member who might or might not be able to
help me. My new onco promised to light a fire under the butts of
the old hospital to get the cell work moving and be ready for the
next appointment. Nice guy.
I expect he'll talk about herceptin alone or herceptin and more
chemo, possibly Navelbine, so I guess I'd better get my list of
questions ready. I'd love to hear what other people think I should
be asking, just in case I'm completely missing something... :-)
Well wishes to all,
Kathy in Tokyo

Oh, and "me" in the second row is Lisa L. I forgot to update that. hehe!
~Ally~
Atlanta, GA
Lap RNY 7/12/07
251/237/174/130
HW/SW/CW/GW

Hi Kathy,
Yes it has been very quiet in here. Sorry to hear about your husband but glad he
is ok. You will both be in my prayers.
Hugs
Marianne
Breast Cancer Patients Soul Mates for Life
http://www.geocities.com/chucky5741/breastcancerpatients.html
BreastCancerStories.com
http://www.breastcancerstories.com/content/view/433/161/
Angel Feather Loomer
www.angelfeatherloomer.blogspot.com
Check out my other ornaments at
www.geocities.com/chucky5741/bcornament.html
Lots of info and gifts at:
www.cancerclub.com

Hi Pat, Sharon, Ally, and Lora,
I hope I haven't missed anybody who was trying to help me figure out my
medication issue a few days ago. If you offered advice and aren't in
the list above, please consider yourself included in this. I want to
report to you gals that I took my med in half pill form yesterday and
today, and have had no problems. I used V-8 juice to add a little extra
acid to my pouch to help that pill break down a little better as was
suggested. It didn't get stuck, I didn't get nauseated, and I didn't
feel ill at all. YAY!! Now I can get it built back up in my system and
maybe get these fever blisters to leave me alone for a bit!!
Thank you all so much for encouraging me to give it another try!!!
Jill
lap RNY 12-03-07
- 22.5 lbs.

It has been very quiet in here, hopefully everyone is just busy getting
ready for the holidays. I have only posted my intro a few weeks back
and asked about Femara. Oncol changedme from the Faslodex last month to
the Femara since the Faslodex seemed to be causing a lot of side
effects. The first week of Femara wasn't so good but seems to be
getting better now and a lot of the hip pain is going away. Not sure if
it is beacause I am not on the Faslodex or if it is the new juice my
friend gave me to try. What ever it is I am thankful. I will go on the
8th for new scans and see doc on the following Monday. He keeps a
pretty close watch on me with different scans every 3 months. I am
thankful for such a great doc. So far the Femara seems to be better
than the Faslodex or Arimidex in the side effect dept. I take it at
night cause I seem to be a litle nauseated right after but the joint
pain seems to be easing up. Hope everyone else is doing good.
Sharon

Hi Molly!
It's so good to see you post. I've been wondering how you were doing! Your
weight loss is fantastic.
I'm glad you're still hanging around with us although you don't chat nearly
enough! ;)
~Ally~
Atlanta, GA
Lap RNY 7/12/07
251/237/174/130
HW/SW/CW/GW

Hi Sharon,
It has been quiet for a few months now. I don't understand it. Glad to hear you
are doing better. You are in my prayers.
Hugs
Marianne
Breast Cancer Patients Soul Mates for Life
http://www.geocities.com/chucky5741/breastcancerpatients.html
BreastCancerStories.com
http://www.breastcancerstories.com/content/view/433/161/
Angel Feather Loomer
www.angelfeatherloomer.blogspot.com
Check out my other ornaments at
www.geocities.com/chucky5741/bcornament.html
Lots of info and gifts at:
www.cancerclub.com

Yay Jill!!! I'm so happy to hear that it went down ok!
~Ally~
Atlanta, GA
Lap RNY 7/12/07
251/237/174/130
HW/SW/CW/GW

Hello,
Thank you for allowing me an opportunity to jump in and share myself.
Last week was my 2 year anniversary as a survivor of Stage III endometrium
cancer. Just before Christmas day last month, I was declared "ODF" --
Officially Disease Free.
I am a Legislative Ambassador to the American Cancer Society and the founder a
support group called HART Fresh Start. We are doing a documentary about the
"conversations people have about cancer and how certain conversations have a
major impact on all of us" -- People say the darnest things about your cancer
don't they?
I study discourse and the nature of conversations so this is a very special
project for me.
A big part of this documentary surrounds a Mock TV Show / Workshop being held in
Los Angeles where will be discussing the discourse around cancer as it pertains
to it be caused by -- negativity -- leaving the cancer survivor with the
impression that they have done some wrong or regrettable to cause their own
cancer.
Our audience will consist of cancer survivors and people who have been directly
impacted by cancer. Everyone will have opportunities to speak up and share
about their experience. The leader of this workshop will not be bringing
"answers" to the table, but will help facilitate a rich conversation.
Another big HUGE part of this documentary is a dance workshop in LA (see
attached flyer). If you are cancer survivor and would like to experience
something truly extraordinary -- I invite you to consider participating in this.
Another way you can be a part of this documentary is by going to myspace
http://www.myspace.com/hart_fresh_start
or go directly to the youtube http://www.youtube.com/watch?v=2PjOTKD0Hd0
FOR ALL YOU SURVIVORS -- I absolutely respect wherever you are on your journey
-- I embrace you and send you my love. A deep and humble bow. Thank you for
making a difference for other survivors.
I look forward to reading your postings.
Much Love,
Robin Carlson

Yes, it has been quiet lately.... as the saying goes, life is what
happens to you while you're making other plans. I am starting new
chemo, tablet form, in January. Has anyone else taken Xeloda? I
also had my first Falsodex injection today and I had wicked nausea
this evening but so far nothing else. I had been taking Femara for a
little over a year but it wasn't doing its job as well as it was
supposed to, and my bone mets have grown and are causing me a lot of
pain. I hate how I sound like an 80 year old complaining about
arthritis! I have also noticed both of my hands getting a little
puffy around the knuckles. I would say it's lymphedema but it's
happening on the side I didn't have nodes out as well, and all signs
point to just general peripheral neuropathy!! Fun wow!!
Hope everyone else is doing ok. I am actually in a pretty good mood
lately despite all this fun!
Kelli

Hi ladies. I am trying to get back the use of my right leg. I am
currently using a wheelchair and walker. My computer blew so this
won't get back to me. Could use prayer's to walk again! Thank's. I
hope everyone is doing well.
Audrey

Audrey you will be in my prayers.
Hugs
Marianne
Breast Cancer Patients Soul Mates for Life
http://www.geocities.com/chucky5741/breastcancerpatients.html
BreastCancerStories.com
http://www.breastcancerstories.com/content/view/433/161/
Angel Feather Loomer
www.angelfeatherloomer.blogspot.com
Check out my other ornaments at
www.geocities.com/chucky5741/bcornament.html
Lots of info and gifts at:
www.cancerclub.com

I'm so sorry to hear about Doris, I thought a great deal of her, and she was
always there for me. I feel like maybe I was about to see some of them after I
woke up. I had the most terrible nightmares while under. I have had to try and
piece to together three weeks of my life I lost and remember nothing about. I
have a hard time sorting between real and dreams, it is real scary. Added on to
everything else I have been through they find a mass on my right chest wall, I
have another scan next week and problem another deeper biopsy. they also find
cysts on my spine and a degenerating disk in my lower back. I feel like I'm 90
and just barely hanging on. talk to you later. Judy S

Judy,
I am so very sorry to hear all that you have been through. You remain in my
prayers.
We lost Doris C Aug 20, 2005 and also Sharon.
Hugs
Marianne
Breast Cancer Patients Soul Mates for Life
http://www.geocities.com/chucky5741/breastcancerpatients.html
BreastCancerStories.com
http://www.breastcancerstories.com/content/view/433/161/
Angel Feather Loomer
www.angelfeatherloomer.blogspot.com
Check out my other ornaments at
www.geocities.com/chucky5741/bcornament.html
Lots of info and gifts at:
www.cancerclub.com

I just got this email from Anne Kasper/bodybybliss. As you saw in my
original post I only said she was going to sue me which she did
threaten that. She is banned so I don't know how or who gave her the
post but this is her reply. She doesn't even have my name right!! She
is calling me Marilyn!! LOL
Hugs
Marianne

Driving Safety Tips
Have your key ready when you approach your vehicle and check to make
sure no
one is hiding inside
Drive on well traveled streets
Never pick up hitchhikers
Keep your car in gear while it is stopped at a traffic light or stop
sign
Keep all doors and windows locked
Park in well lighted designated parking areas
Keep valuables out of sight
Keep your cell phone charged for emergency calls
If you're forced to stop your vehicle, lock the doors, roll up the
windows
and sound the horn for help
If you're followed or harassed by someone in another vehicle, drive to
a
police station or fire station and seek help. Do not drive into your
driveway or park in a deserted area.
If you are followed as you turn into your driveway, stay in your car
with
the doors locked until you identify the occupants of the other car.
If
necessary sound your horn to get the attention of neighbors and
family
members.
If your car breaks down, raise the hood and then stay inside with the
doors
locked. If someone stops to help, do not open your window or door or
accept
a ride. Ask them to call for assistance.
If you see a car requiring assistance, do not stop. Instead call the
sheriff
or 911 and report the incident.
Keep a can of aerosol tire inflator in your car for emergencies. In
the
event of a flat tire, you can then drive to a safer area.
If you find yourself being followed by a stranger or aggressive
driver,
use
your cell phone, call 911 and advise the police of the situation and
ask to
meet an officer. Attempt to get the tag number of the vehicle. If
safe,
move
to another lane and allow the vehicle to pass. If the driver does not
pass,
stay on the line with police and continue to give an accurate driver
and
vehicle description. Do not pull over for the stranger!
If the car appears to be a unmarked police vehicle, but you're
unsure,
acknowledge the officer by a wave or turning the interior lights on
at
night. Then continue at a safe speed to a well lit populated area to
stop.
It's often that we hear or read about these alleged incidents. While
they
can and do occur, it is important to remember basic safety and be
aware
of
your surroundings. Do not hesitate to call if you believe you are in
need of
our services. Sheriff Hofmann added "We are here to help and my
deputies
will do everything possible to provide for your safety and well-being"

Good Luck Jessica, Can't wait to hear everything went well.
Debby

Hi folks,
just thought I would update you on how I am after palliative XRT.
I had XRT to the sacral spine and pelvis and all of the C spine.
Without doubt the XRT clipped my parotid gland and I have had a very dry mouth
and awful metallic taste which has meant that my food and drink tasted like
cardboard.
Just yesterday 2 weeks after the last of the five fractions my taste returned,
lunch time it was awful but by the evening meal it was back to normal.
The C spine XRT also inflamed a nerve leading to the shoulder and shoulder
blade and this is still afffected but now seems to be triggered by lifting the
shopping or a heavy kettle rather than giving me pain all the time. So whilst
it's not better there is some improvement, my onc said it could be six weeks
before it settles. The XRT cons said two weeks!
There was some reaction to bowel and bladder nerves too. For a few days I was
unable to get the message that I needed to 'go' and had just one bladder
accident, stood up and whoosh. But the bowel was the strangest feeling and
completely threw me mentally, I knew it was my 'time to go' I'm like clockwork
in that direction but couldn't switch the evacuation muscles on and on two
seperate days just sat there until it happened.
But my mood got very low at this point and I 'm sure it was because I was so
worried about the change in nerve control and the thought of having an accident
when out somewhere. As soon as I began to function normally my mood lifted.
There I was before the XRT worrying that it would upset my diverticulitis, my
biggest concern as a diverticulitis flare is most unpleasant, normally lasting
about 7- 10 weeks and I've not had a peep out of it ~ thank goodness.
Now to my bisphosphonate induced osteonecrosis of the jawbone. I have a chunk
of dying jawbone extruding through my gum the length of three back teeth and
slightly more than half a tooth high. The teeth there had gone years before. It
had holes in it either end and a tunnel underneath which has meant food debris
has collected beneath and I have been unable to clean it, even if I poked with a
tooth pick and gently removed the debris, there has always been the chance of
microscopic particles left inside. I have rinsed with Corsodyl and hot salty
water and last thing at night oral strength hydrogen peroxide but it is almost
permanently infected and the pain from it is from temple, over one side of my
face, ear, down my neck and into my salt cellars ( Salt cellars, that dip where
the collar bone comes accross ~ my onc had never heard the term before ~ has
anyone else ~ I grew up calling them that) And a tongue and glands so swollen
that for 4 days each time couldn't eat or
swallow only soup through a straw or water. (no wonder I have lost over a stone
in 15 months)
Anyhow I saw a new Oral Max Fax surgeon this week and he cut off all the dead
bone, something I have been asking about for months to prevent infection, keep
it cleaner and have less irritation on my tongue. All the literature at present
says not to have surgery, opening the gum could lead to failure to heal and
cutting of the jaw bone beneath the surface likewise, some people have had to
have the dead jawbone removed and a titanium one replaced but huge surgery and
continued problems. No one really knows the answer other than to leave well
alone, monitor, treat infections, have no tooth/teeth extractions, have dental
check ups and any procedures before beginning these drugs, watch for gangrene,
stop bisphosphonates (I had IV Pamidronate firstly then Zometa but this
condition can occur with oral biphosphonates taken for osteoprosis, e.g.
Fosamax). There are something like 10,000 cases reported at the moment but I
believe this is only the tip of the iceberg. Yes millions of
people have had the drugs so it is a rare complication but what good is that
information if you have the condition?
Anyhow the result is that I have the old surface bone removed (and some was
quite rubbery where repeated infections have broken it down) and what a
difference it has made already. My mouth is cleaner, fresher, the fur coat on my
tongue I normally have each morning has almost disappeared, my tongue is no
longer sore.
I am hoping to set up an Osteonecrosis of the jawbone UK website in the new
year ( and hoping my new Oral max fax is going to assist or one of his reg's who
is writing a paper on the condition.) In the mean time if you want any non too
technical info I wrote an article for 'Cancerlynx' which describes how my
condition started and progressed and all the care info I could glean from
various sources. If you want more technical info look up 'osteonecrosis jawbone
Ruggiero, Marks et al' who were the first to see the condition back in 2000 and
about the drug companies failed response until 2004 when they added a warning to
the drug info leaflet My gripe at the moment is how many patients ever see the
drug info leaflet when they go to get their IV bisphosphoante?. Also look up
'Fosamax osteonecrosis jawbone' you will get several thousand sites mostly from
lawyers wanting to act on your behalf but some info about the condition too. I
will post when the website is set up.
If you think you have the condition please reply, I can probably give you more
info than most doctors as my GP had never heard of it, neither my dentist, the
NHS only alerted dentists last year.
LOL Velvet x (UK)

-Wow, marianne! waht a load of crap!! does she not undersatnd
our "NO SOLICITING" guideline? She repeatedly stated how her
business was growing and growing due to women given her THEIR money.
She is the one being disrespecful, right from the start, because we
say no soliciting. Period. I can't wait to see what other crap she
pulls. Thank you again Marianne for all you do and I appreciate your
blocking her ADVERTISING from this list!
Kelli

Velvet,
You have been through so much. Stay strong. You are in my prayers.
Hugs
Marianne
Breast Cancer Patients Soul Mates for Life
http://www.geocities.com/chucky5741/breastcancerpatients.html
BreastCancerStories.com
http://www.breastcancerstories.com/content/view/433/161/
Angel Feather Loomer
www.angelfeatherloomer.blogspot.com
Check out my other ornaments at
www.geocities.com/chucky5741/bcornament.html
Lots of info and gifts at:
www.cancerclub.com

Good to hear, Jill! Glad we were all able to pitch in and help!
Lora

Velvet:
Thank you for sharing the information about your jawbone problem. I
have been on bisphosphonate IV's for almost 3 years. In September,
I had heard about the risk and asked my dentist to check. He did
some research and then did a panagram XRAY to check my jawbone
density to be sure it was still okay - and it was - but I plan to
continue to have it checked every year or so. At this point, my
oncologist told me that my risk of having cancer return to my bone
was greater than my risk of the jaw problem so we are continuing the
monthly IV.
Did you stop the IV?
Beverly

Jill,
I had to change the subject because I noticed your weight loss. Way
to go Girl!! Glad to see the scale in moving in the right direction
for you. And to see that it seems to be steady, if not huge.
Lizanne

Marianne, I'm so sorry you're having to deal with this ... uh, lady??? I'm
sending a big hug from Minnesota and a heartfelt thanks too for all you do to
spread warmth and cheer and hope among all of us.
Love,
SharonK
p.s. I've omitted Ms. Anne's post in my reply because I didn't want to give her
verbose rhetoric any more play. I added her to my block this send list on this
computer quite a while ago. Ick!

Thank you, Lizanne. I'm thrilled!
Jill
lap RNY 12-03-07
- 22.5 lbs.

Hi Beverly.
What I noticed each time I had the Zometa was after about 10-12 days I got a
growth spurt from the bone extruding in to my gum. I knew this, well, I could
see it and feel it, at first there was half a hole, then a bigger hole then a
very big hole and then a piece of bone behind the hole plus pain, inflamed gum,
well more inflamed than usual and I decided to stop it after seeing an
Australian site/forum where someone had stopped Zometa for 4 months and had seen
some improvement. I emailed my onc the day before I was due to have it because I
didn't want the drug prepared for me then go to waste ~ it is incredibly
expensive and when I went down to the unit to get my port flushed one of the
doctors challenged me over my decision. In the end I said I am refusing to have
Zometa and I have the condition not you. It's me up all night with the pain and
the tears. The doctor (not my usual one ) was rather put out about me making a
decision to stop the drug (was she put out
because I made the decision or was she put out because I was stopping the
drug???)until I started quoting Ruggiero and Marks (at Long Island Jewish
Medical centre and Miami (forgotten the centre name this very moment) and the
other names I quoted in last email about ONJ) and she suddenly realised I knew
more about the condition and it's progress and treatment than she did) and said
OK don't have it this month and then would I speak to Steve (my Onc) the
following week? In the meantime the Multi Disciplinary team had had a meeting
and decided on a management protocol of stopping Zometa for all those who are
affected (11 attending for bisphosphonates) and to review again after 6 months,
to give clindamycin as the antibiotic of choice rather than metronidazole,
except the clindamycin stripped my bowel raw until I bled and I was rough for
over 7 weeks, (If it's not broken don't fix it) (that's my policy) Metronidazole
had worked perfectly well for the previous 15 months so I
was really angry as I had to stop the Clin and then with griping pain and
cramps, D and V, dash, and I mean dash to my family doctor and get Metro. I told
him my 'policy' he laughed but absolutely agreed.
Just for your further information if you have bone scans the ONJ shows as a
hot spot and CT or MRI are the scan of choice as until there is a certain amount
of destruction in the jawbone an ortho pantogram doesn't show the condition, so
if you have regular chest, abdo and pelvis scans ask if you can add the mandible
and maxilla to the scanning process ~ whilst you are there etc. it's not a lot
extra.
Some reports (not evidenced) are now saying only to have IV bisphosphonates 4
times a year but not a lot of research yet as obviously the more ofetn the drug
is used the more profits for the drug companies and I can understand the return
on a drug funds their R and Dev but in the meantime patients with this ONJ are
suffereing and I mean suffering. I am incredibly angry about the condition,
stage IV cancer is one thing but this is just salt in the wound, I emailed one
of the drug companies to notify them about the problem, ask if they would like
details of the way it progressed ( I keep notes whenever I go to the doctors,
what I went for, what I asked, what I was told, what I was given etc.) and with
such a poor response from the drug company, 'We can not advise you or enter into
any dialogue with you, this is a matter for your prescribing doctor.' I felt
totally dismissed and unsupported and that rubbed a bit more salt in the wound.
Ok Beverly, you only asked one question, sorry I went into overdrive there but
it's no trouble for me to expand on the subject so you are fully informed.
Take good care, Velvet (UK)
Beverly <bphills@...
Velvet:
Thank you for sharing the information about your jawbone problem. I
have been on bisphosphonate IV's for almost 3 years. In September,
I had heard about the risk and asked my dentist to check. He did
some research and then did a panagram XRAY to check my jawbone
density to be sure it was still okay - and it was - but I plan to
continue to have it checked every year or so. At this point, my
oncologist told me that my risk of having cancer return to my bone
was greater than my risk of the jaw problem so we are continuing the
monthly IV.
Did you stop the IV?
Beverly

It is wonderful when the scale moves in the right direction. Is there anything
to prevent those stones? I have gout and it forms uric acid crystals. I take
allopurinol to keep my uric acid levels low. Is there any relationship?
Naomi

I love the 3 R's!
Jill
lap RNY 12-03-07
- 22.5 lbs.

A
new approach to treating breast cancer gives patients
an alternative
that cuts radiation treatments down from
six weeks to five days.
Click here to find out more:
http://www.informationonbreastcancer.info/breast-cancer.htm

I need group input again, and I know that if the answer is out there,
ya'll are the ones with the knowledge!
I've not seen this particular topic addressed in any of the groups
that I participate in, but I can't believe that I would be the *only*
one who has ever experienced a problem with post-op body odor. I have
been going NUTS to try to find a way to conquer this, and haven't had
much success.
For some reason, my armpit odor has gotten really bad since my
surgery. I don't have a problem stopping the perspiration, I've got
that under good control and can use a variety of products that are
effective in that respect. It's the odor that just will not go away
for more than a few hours.
As soon as I'm out of the shower, I make sure I dry under my arms
really thoroughly, then I *immediately* apply a super-generous amount
of solid antiperspirant, making sure I go far past the area that
actually needs to be protected. Still, within just a few hours, the
stink is back. Lots of days, I take 2 showers, and sometimes even 3,
because the smell is that bad.
I've changed my antiperspirant twice so far. With one product, things
were worse, with the other product, it's about the same. With the
most recent product, I'm getting some kind of blister thing
developing in one of my armpits, so it's got to go, because
apparently I've got some kind of sensitivity to something in it.
I'm starting to get hyper about this because my hubby, who usually
can't smell much of anything at all, can smell my stinky armpits if
he's within a foot of me. I know that my own sense of smell has
become heightened ever since surgery, and I drive myself crazy
because of it. Knowing that someone else can smell this is making me
bonkers!!
I thought that underarm odor was caused by bacteria that flourishes
when we perspire. If I've got the wetness factor under really good
control, what is causing the stink???? I'm not certain, but it's
almost like the stink is still happening underneath my antiperspirant
and seeping out through it. No matter how it happens, I need to find
a way to get this under control!! Summer is coming!!!!
So far, I have not tried the clinical strength products, and am
wondering if they are worth the expense for much less product. If
they work for me, I think they would be well worth the cost. If you
can share any personal experience with these products, I'd appreciate
anything you can tell me.
Jill
lap RNY 12-03-07
- 22.5 lbs.

Good Afternoon All,
Let's see where to start..... I've been so busy going back to work,
I mostly lurk, read messages and go on....
I had my six week post op appointment last week, 01/23/2008, I was
down 42.5 pounds and I've lost another 5 pounds since then..... I
still have head hunger at times, but deal with that.... I am
particularly sensitive to smells..... I believe a lot of that is
because I am now smoke free for over four months, have my sense of
smell and taste back.... I make sure I take two multivitamins a day;
Actigall 400mg 2x a day; Pepcid 40mg 2x a day; Calcium Soft Chews
Viactiv 4x a day; Biotin 1500 mg a day; B complex 15 ml once a day.
I can come off the Actigall and Pepcid after my six month appointment
in June. I eat about 300-500 calories a day, can't stomach anything
else. My diet consists of protein shake in the morning, following by
2 ounces of yogurt; the other 2 ounces of yogurt at Lunch and protein
shake; dinner consists of whatever I force myself to eat.
Chelsey and I have gone to dinner a few times, we order a child's
portion, split it, and still come home with left overs....... I am
now 42 pounds away from my goal weight, and by the way, I hit the
ONEDERLAND about two weeks ago..... I'm fluctuating between 182-185.
My goal is about 3 pounds a week. I work out in the morning and at
night after work. I walk a 3.5 mph mile each morning and evening. I
try to get in 10-14 miles a week. NO SAGGING SKIN....... I cook
each day and send the food to the neighbors so it won't go to waste...
Chelsey had her six week appointment yesterday, she was down 38
pounds and hit ONEDERLAND last week. She is headed to gym right now
as I type. She has enrolled in a kickboxing class and I'm looking to
take a yoga class. We both hope to be at our goal weight by June....
More to follow later
Monica
-47.5 lbs
Lap RNY 12/12/2007

Hello, we are in the process of building the first ever breast cancer
memorial truck. It is a 1949 Chevy truck. I am redoing this truck in
honor of my wife and all other women out there who have or had this
cancer. My wife was only 41 yrs old when she came down with this, and
is still fighting it now for two years. So both of us wanted to do
something to help other women and their families, to show them there
is hope and people out there who care. I passed this idea with the
cancer society and centers and everyone is excited. On the back of
the truck it is going to say Dedicated to the Memory of all Breast
Cancer Patients. And the truck is going to be painted pearl pink.
With the breast cancer ribbons flowing down the sides. Please if you
would like to donate to this project, please e-mail me
at :Icepri7228@... Everyone who donates will receive a breast
cancer key chain and their name on a plaque in front of the truck at
all functions. Please help this worthy cause. Thank you very much.
Mike Snyder.If you have any questions or concerns feel free to
contact me. Phone #706-244-4928Mike or Tracy #706-244-0843. Thanks.
Let's work together to help find a cure. Donations can be made
through:PayPal e-mail me for address. Or by mail to: Mike Snyder 4239
Damascus Road.Toccoa,Georgia 30577 Web site is :
www.breastcancertruck.com Thank you Special thanks to our newest
donors PPG paints & Southern Auto Color.

A pill used to abort pregnancy could fight breast cancer, say scientists.
A chemical works by blocking the sex hormone progesterone,
which feeds the growth of breast cancer.
Click here to find out more:
http://www.informationonbreastcancer.info/breast-cancer.htm

Thanks, Naomi!
As far as preventing the kidney stones, first, they like to catch a
stone to test it to see what it's made of. Based on the results,
recommendations may be given.
When my daughter had some stones lithotripsied a few years ago, her
stones were tested, and hers were made of calcium. She was told to
scale back on her use of dairy products, and to not consume products
that were calcium fortified, because her body is producing more calcium
than needed.
My husband's most recent stone is the only one that's ever been caught
for testing. We'll find out at his next visit in a few months if he's
going to need to make any dietary changes.
Usually the recommendation for kidney stones is to drink, drink, drink.
Ken's urologist wants him to consume enough fluid every day to enable
him to urinate 2 liters of fluid every day. He says that is enough to
keep your kidneys healthy. Our PCP, on the other hand, says to consume
2 GALLONS of fluids daily to help prevent more stones. Our PCP is a
kidney stone sufferer himself.
Our PCP did give us an interesting bit of information. He said that
drinking tea is not a good idea if you have kidney stones. We don't
drink regular tea, but we do enjoy having herbal tea, so we
specifically asked if that would be okay to drink. He said that even
herbal tea is a problem for stone sufferers because it's not the
caffeine that's the problem, it's the oxylates in the tea that
contribute to stone formation. These oxylates are present in both
regular and herbal teas. He said that water is the very best thing to
drink, and that if you can drink distilled water, better yet.
We've also been told to stay far, far away from cola drinks and
carbonation in general, as these can also contribute to the formation
of stones.
Jill
lap RNY 12-03-07
- 22.5 lbs.

There it is again. I muttered to myself, frustrated as I washed my arm. Every
morning for five or six days in the fall of 2003, I noticed this rust-colored
sticky stuff that appeared in both drips and smears on my left forearm and
thigh. I had no idea where it could be coming from.
Finally, on Sunday morning I found the answer.
My eyes followed my hand as I wiped the steam from the bathroom mirror.
Looking past my fingertips, there it was. To my shock and horror, the
rust-colored sticky stuff easily dripped from my left nipple.
In disbelief, I collapsed into my bedroom chair, swirling with a mix of grief
and fear. I stared at the blank white wall, feeling vacant, distant,
disconnected from what I had just seen in the mirror. All I heard was that loud,
penetrating silence that surrounds and encompasses every thought and movement.
I called my doctor and was told that this was not an emergency room issue, but
did need immediate attention. It could be cancer or another of many health
challenges. Then, I began to wonder, what now? What is next?
After an exam, the breast cancer specialist made an appointment for that same
afternoon to have both a mammogram and an ultrasound. They took two sets of two
x rays on each breast and a third x ray of a specific area of my right breast. I
realized I could have two areas of concern, not just the one.
Next, was the ultrasound. I could see the area of my breast where they had
done the extra mammogram. There was a dark mass which had a very different
pattern than the rest of my breast. After the biopsy, I was diagnosed with
infiltrating ductile carcinoma, a rare, aggressive, deadly cancer that can
quickly metastasize to the bones and lungs. Next is death. I had symptoms of
both bone and lung cancer.
The ultrasound of my left breast showed a trail of little beads. Masses
unevenly lined up from my underarm to my nipple. This could not be good, I
thought. These masses were rubbing against several ducts, causing bleeding and
discharge. That was the rust-colored sticky stuff. My left breast was diagnosed
with a rare hyperplastic disease involving multiple ducts. My oncologist felt
that I also had cancer in this breast. She was deeply concerned, and wanted to
immediately remove the mass in my right breast and cut off 1/3 or more of my
left breast. From now on, on medical history forms, I would check the box for
cancer.
Even before these diagnoses, I had already decided that I did not want
surgery. In my heart, I really did not believe I would live through a surgery,
much less the chemotherapy or radiation. I preferred an alternative approach. I
did have my health insurance to pay for most medical expenses, but it did not
cover alternative therapies. Also, I had previous long term health challenges. I
wanted a fix, not just a partial solution. I chose Mye Cell treatments in Puerto
Vallarta, Mexico and worked with Dr. Melenie Dunn, NMD in Scottsdale, AZ. Her
number is 480.556.6700. I am now cancer-free.
I have the confirmed belief that each of lifes moments hold a purpose and a
gift. There are no accidents. Nothing is random. Lifes lessons come hand in hand
with their opportunities. I do not always remember to live by these beliefs, but
I do always come back to them. I knew that this particular lesson was about
trust. It was about my ability to trust. It was about my confidence in myself.
My confidence in God. The lesson was about realizing, knowing with every breath
and every beat of my heart, that I Am Blessed. We All Are.
Doreene Clement, a cancer victor and author of The 5 Year Journal, is
currently writing a new book, Blessed, about her life and her cancer experience.

I know this is off topic, but all I have been doing today is read,
while I should be working. Sorry, women under 40, you have plenty of
great attributes too. I was just feeling in the spotlight today and
wanted to remind myself that it's not all bad.
Besides, I have always liked the past line, I just don't believe it's
true.
As I grow in age, I value women over 40 most of all. Here are just a
few reasons why:
A woman over 40 will never wake you in the middle of the night and
ask, "What are you thinking?" She doesn't care what you think. If a
woman over 40 doesn't want to watch the game, she doesn't sit around
whining about it. She does something she wants to do, and it's
usually more interesting. Women over 40 are dignified. They seldom
have a screaming match with you at the opera or in the middle of an
expensive restaurant. Of course, if you d eserve it, they won't
hesitate to shoot you if they think they can get away with it. Older
women are generous with praise, often undeserved. They know what it's
like to be unappreciated. Women get psychic as they age. You never
have to confess your sins to a woman over 40. Once you get past a
wrinkle or two, a woman over 40 is far sexier than her younger
counterpart. Older women are forthright and honest. They'll tell you
right off that you are a jerk if you are acting like one. You don't
ever have to wonder where you stand with her. Yes, we praise women
over 40 for a multitude of reasons. Unfortunately, it's not
reciprocal. For every stunning, smart, well-coiffed, hot woman over
40, there is a bald, paunchy relic in yellow pants making a fool of
himself with some 22-year old waitress. Ladies, I apologize. For all
those men who say, "Why buy the cow when you can get the milk for
free?", here's an update for you. Nowadays 80% of women are against
marriage. Why? Because women realize it's not worth buying an entire
pig just to get a little sausage!

Hi Jill:
The only thing that I can think off is that you might not be drinking enough
water.Your body excretes toxins from your sweat glands and then bacteria
grows.....I suspect that your stronger odour is because your sweat is more
"concentrated".
Watch using too much antiperspirant.....it clogs your pores. (that's what
it's meant to do)
I always tried to stay away from manufactured antiperspirants because of the
aluminium content. Aluminium has been established as a neurotoxin.
http://en.wikipedia.org/wiki/Deodorant
Try ammonium alum if you can get it.....
AND ........ if you ever get to the point where you want your "bat wings"
removed.......you can also have your underarm sweat glands & hair follicles
removed.
OMG......IT'S WONDERFUL!!!!
I had my done in August.....haven't shaved or used "stink stop" since.
D
:-)

Personally unless a treatment is FDA approved I wouldn't touch it. I had 3
friends with a better outcome than I was supposed to have. They all decided to
try alternative treatments and all 3 died within a 6 mo period leaving 9
children behind.
Hhugs
Marianne
Breast Cancer Patients Soul Mates for Life
http://www.geocities.com/chucky5741/breastcancerpatients.html
BreastCancerStories.com
http://www.breastcancerstories.com/content/view/433/161/
Angel Feather Loomer
www.angelfeatherloomer.blogspot.com
Check out my other ornaments at
www.geocities.com/chucky5741/bcornament.html
Lots of info and gifts at:
www.cancerclub.com

Breast Cancer Treatments
http://breastcancer.infosolutionhub.com/breastcancer_treatment.html
<http://breastcancer.infosolutionhub.com/breastcancer_treatment.html
Related topics: Breast Cancer
*
An Overview Of Breast Cancer
<http://breastcancer.infosolutionhub.com/overview.html
*
Breast Cancer The Cure
<http://breastcancer.infosolutionhub.com/breastcancer_cure.html
*
Breast Cancer Awareness
<http://breastcancer.infosolutionhub.com/breastcancer_aware.html
*
Breast Cancer Prevention
<http://breastcancer.infosolutionhub.com/breastcancer_prev.html
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Breast Cancer Prevention Tips
<http://breastcancer.infosolutionhub.com/breastcancer_prev1.html
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Breast Cancer - Factors, Symptoms, Diagnosis and Treatment
<http://breastcancer.infosolutionhub.com/breastcancer_factors.html
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Breast Cancer Treatments
<http://breastcancer.infosolutionhub.com/breastcancer_treatment.html
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Breast Cancer- Top Ten Things Every Woman Should Know
<http://breastcancer.infosolutionhub.com/breastcancer_everywomen.html
*
Can you reduce your risk of Breast Cancer
<http://breastcancer.infosolutionhub.com/breastcancer_risk.html
*
Breast Cancer - What women should know
<http://breastcancer.infosolutionhub.com/breastcancer_women.html
*
Breast Cancer - Information is important
<http://breastcancer.infosolutionhub.com/breastcancer_important.html
*
What Every Women should know about Breast Cancer
<http://breastcancer.infosolutionhub.com/breastcancer_what.html
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The Truth about Breast Cancer
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Breast Cancer Symptoms - Do you have them?
<http://breastcancer.infosolutionhub.com/breastcancer_symptoms.html
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Breast Cancer - Hormonal Risk Factors?
<http://breastcancer.infosolutionhub.com/breastcancer_hormonal.html
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Determining Breast Cancer Risk Factors
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Breast Cancer: Know Your Risk Factors, the Signs and Symptoms and What
to Do About It
<http://breastcancer.infosolutionhub.com/breastcancer_sympt.html
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Five Easy Things You Can Do Now to Help Prevent Breast Cancer
<http://breastcancer.infosolutionhub.com/breastcancer_things.html

I just wanted to take the time to thank everyone for all the continued
support. This group has been so helpful and full of ALL KINDS of
DIFFERENT KNOWLEDGE. and boy do I mean different. I am packing
tonight and loading up my ipod...so if I didn't get on tonight I wanted
to let you know that I was grateful for the help support and kind words
over the last few months....Sharon thank you so much for being my angel
and making so many attempts to get in touch. I do hope that my busy
schedule will help me get back on my feet in no time. I will be
thinking of my spot in the lounge before and after. God bless and
again thank you tons!
Always,
Jessica

African-American women are more likely to suffer
worse outcomes of breast cancer than Hispanic and
Caucasian women, according to a study.
To get the full story, click here:
http://www.informationonbreastcancer.info/breast-cancer.htm

Good luck, Jess! We'll be thinking of you and anxiously waiting for
word from Sharon.
Lora

This is my third time with breast cancer (1995, 2004 and 2006). I
have lobular cancer in my neck and chest wall lymph nodes found in
September 2006 - no other tumor sites found at this time via scans.
Cancer is 98% ER positive and I have been on Femara for 3 weeks (no
side affects so far- hurray!).
In 2004, I had a recurrence metastasis (ductal - ER negative) in my
masectomy scar and leg, and had weekly Taxol and radiation to breast
and leg. This time (2006), my radiologist has recommended radiation
to my neck and chest wall, but my oncologist has recommended AGAINST
radiation since I have no pain or problems with that area. He wants
to see if the pills will work. If we get rid of the cancer with
radiation, he can't tell if the pills are working...and he thinks
cancer may be in other places but not big enough to show on scans.
HAS ANYONE ELSE HAD A SIMILAR SITUATION where the radiation was not
done because it was felt the pills might work? If so, did the pills
work to get rid of the cancer?
I would appreciate your advice.
Beverly

Hi Velvet,
Gary belongs to the big group and also Steven. Steven is no longer a member of
the group.
I wish I would have had a computer back in 1990 and could have found a group
when I was diagnosed.
Hugs
Marianne
Breast Cancer Patients Soul Mates for Life
http://www.geocities.com/chucky5741/breastcancerpatients.html
BreastCancerStories.com
http://www.breastcancerstories.com/content/view/433/161/
Angel Feather Loomer
www.angelfeatherloomer.blogspot.com
Check out my other ornaments at
www.geocities.com/chucky5741/bcornament.html
Lots of info and gifts at:
www.cancerclub.com

Beverly,
I have not had that problem but wanted you to know that you will be in my
prayers.
Hugs
Marianne
Breast Cancer Patients Soul Mates for Life
http://www.geocities.com/chucky5741/breastcancerpatients.html
BreastCancerStories.com
http://www.breastcancerstories.com/content/view/433/161/
Angel Feather Loomer
www.angelfeatherloomer.blogspot.com
Check out my other ornaments at
www.geocities.com/chucky5741/bcornament.html
Lots of info and gifts at:
www.cancerclub.com

JESS JESS good luck, I'll be praying for you to come out on the lounge without
zero problems. you take care of yourself.
Judy
Myspace: www.myspace.com/nynativecagirl
"Everything Is Easier With Friends"
Kaiser-Fremont, CA
262

Breast Cancer Detection Unit for the Home
<http://www.clickaudit.com/goto/?37322
Detecting Breast Cancer early is a key step in protecting yourself from
the dire consequences and risk of breast cancer. There is now some new
technology using Infrared to help you do self-examinations in the
privacy of your own home. Surprisingly these units are in expensive only
about $100.00; the device is called; "iFind"
Continue.. <http://www.clickaudit.com/goto/?37322

Let's Start Screening For Breast Health
<http://www.clickaudit.com/goto/?37687
In the United States, American women are told to begin annual
mammographic screening for breast cancer at the age of 40. Long before
we've reached this age, we are advised to perform a monthly breast
exam and see our doctors for a clinical breast exam (CBE) annually as
well. However, the detection rate of breast cancer for CBE is only 47%
when the tumors are less than 1 centimeter while mammography has given
us a 70% detection rate.
Continue.. <http://www.clickaudit.com/goto/?37687

Hi all,
read a lot about drains here, pain versus no pain. I will tell you what I
know.
When the drain is due to be removed the nurse SHOULD de-vac the bottle/s. This
is unscrewing the lid on the bottle to release the suction. (My daughter-in -law
is an onc nurse though not at the hospital where I get my treatment) then wait
about 30 minutes so all the tissue rests and the drain is free to be removed. A
competent nurse will hold the drain exit area and in one gentle but firm tug,
pull it out. If the de-vac isn't done there is still some force exerted by the
suction so when the drain comes out the tissue is still being sucked and that is
why it hurts. This isn't easy to explain, all I can say is ask the nurse to
de-vac it beforehand, you hear a slight fizz sound when the lid is twisted.
Reference aromasin, femara, arimidex and injections of faslodex, I have had
them all and they all caused stiffness and joint pain to some degree. With the
faslodex injections the same plus a sore rear end. Everyone reacts differently
to the drugs but I think most people would say they have some kind of joint
problem, it is a case of trying and see. Faslodex reduced my sleep hours, in
fact when I look back I think they all did to a degree. Aromasin undoubtedly
reduced my apetite, 19lbs lost in 11 months. My son calls me a slick chick. And
all my clothes fit nicely so I am not complaining. 5 foot 4 inches and 126lbs
I did a few things to get over the stiffness. I have a rowing machine but I
don't use it for aerobic exercise, I use it to keep my joints supple, keep
myself moving and most days do about 60 strokes. I make myself walk a certain
distance everyday, take halibut liver oil capsules but when I am at my most
stiffest I have to free it up or be worse the next day. I have secondaries in
the bone so I am limited to the kind of exercises I can do.
Someone taught me a visualisation technique. You imagine the pain as a brick
wall, you can choose your own colour or indeed change the structure to a log
fence or whatever but it needs to be something strong and powerful. My wall was
red brick and as you ease out the stiffness/pain you imagine the wall cracks,
breaks and falls down. You can have as many walls as you like. I find the first
stretch is the worst and I even imagine I hear the sound of tumbling bricks.
Alas it doesn't work for very severe pain but worth a try. (occasionally I even
try to imagine a dashing, handsome, gorgeous guy building the bricks up.)
I have been having some palliative radiotherapy, just 5 fractions and one more
day to do but have a tumour flare so the pain is pretty awful at the mo. Thank
goodness for morphine!!!
I had a bone scan on Friday to find out the extent of tumour burden ~ from
what I could see most of the spine is now affected by disease, most of my
pelvis, several ribs, both femurs and so I have progressed on aromasin which I
will do as I get resistant to the drug but my onc says to go back on Tamoxifen
as I responded well before. Then when the disease progresses it's chemo but
warned that chemo doesn't work as well for bony secondaries ~ can anyone tell me
differently???
It is now 3 15 am in Uk and what I love about this site is I wake up, feel
b***** awful and a bit tearful, a bit sorry for yourself and however good your
friends are you don't ring them at this hour, so I come here and vent off, reach
out, without disturbing a soul. Marianne, this site is just wonderful, I am free
to release my tension any time, thanks,
LOL Velvet x (UK)