Web Notes

I believe some ladies do and some don't. Personally for me with over 100 emails
a day just in the bc group plus a few other groups I own, I have all to do to
keep up. Its much faster just to answer than to trim. Thats just me.
Hugs
Marianne
Breast Cancer Patients Soul Mates for Life
http://www.geocities.com/chucky5741/breastcancerpatients.html
Anxiety Depression and Breast Cancer

Good morning everyone,
Just wanted to share that I have my surgery date for my tummy tuck. It will
happen on April 1....April fools day. I am so excited and nervous about this!
It will be done as an out-patient and then I will go home to my parents house to
recover. I had several appointments with different doctors and was very
impressed with the 1st doctor that I went to see. I was with him and his nurse
for 2 hours. Going over different procedures, cost, what he would recommend,
answered all my questions. Made me feel very welcome. So, just wanted to
update everyone on what is going on with me. Have a great day everyone!
Theresa Rodriguez

Jeri,
How in the world did you find out the cancer was in your bones and skin?? Are
you in pain daily??? I just can't imagine what each step might be not knowing
what to expect. As of right now, I know I'm doing what the dr. has said not to
do, I'm avoiding!! I have had pain in my left shoulder (mastectomy side) and in
my upper left thigh... the pain is unbearable and I have a very high tolerance
for pain. My docs belief is any ache, pain, etc. that last for 3 days and
doesn't go away with advil, call.. I don't know if I'm avoiding because I'm
afraid its cancer and don't want to find out, or if I believe its muscle issues
and will just go away.. all I know is advil, aleve, tylenol, nothing works..
thats what makes me wonder.. I'm sure I won't let it go much longer.. just
curiuos as to how Stage IV feel, if any differently from Stage 3, 2, 1 etc.
Peace and Prayers,
Michele
jeri90505 <jeridecker@...
Since cancer was already through my bones and skin when recurrence was
diagnosed, Arimidex was given not as a preventative, but to cut off the
hormonally fed cancer. It is blocking 98 percent of the estrogen in my
body, and so slowing the growth of the cancer. Started taking it in
September, 2004, so almost three years. My cancer did become active
again this past winter and I did radiation on my hip.

Darlene,
I think your expectations are a little high for this surgery. You
have lost a large amount of weight in just a little over 2 months.
That's almost 20 lbs per month. Actually, we all lose at different
rates. I lost a huge amount of weight my forst 19 days and then I
didn't lose for another 3 weeks. You will keep losing as long as you
follow those rules....drink 64 oz of fluids, eat at least 65 gr of
protein, take your vitamins and minerals, and exercise at least 3
times a week for 30 minutes. And that's just the minimum. Your NUT
may have given you stricter goals than that.
Being sick is always unpleasant. I think it's Sharon who says that
chamomille (sp?) tea and chicken soup calms her pouch after it's been
irritated. You seen to be doing great for only 2 months after major
surgery.
Keep up the good work.
Lizanne

Hi Kelli
me too, high as a kite on steroids, then when finished drop to rock bottom but
only with tablet form. I have had steroids injected into my spinal junctions and
hip joint and no effect whatesoever~ odd!
LOL Velvet x (UK)
lilpointyhat <pnkrbbnsucks@...
Hi Lesley,
Steroids make me nuts, too! I have had such a bad reaction to them
(hyperactivity, anxiety, rapid heartbeat) that from now on whenever I
am asked of any allergies, i say "Steroids!"
Kelli

Jess,
When you have your check up on Thurs tell your doctor how you are
feeling and the situation with your seperation. You may be getting
some depression caused both by the surgery and your situation. Plus,
those hormones being released that have been stored in your fat. The
doctor may prescibe an anti-depressant. There have been quite a few
people in this group that needed that medication. Not only will you
feel better, but it will be easier to make yourself take care of
yourself. You will be able to walk, and drink and eat and do the
things you should. Please talk to the doctor. I didn't and we all
know that I ended up paying for my mistakes through baldness and
protein deficiency. Take care of yourself.
Lizanne

Welcome Tracey,
One of our members also is having some sort of vertigo disorder,
Beth. She may be giving up on this surgery. Maybe you could give
her some ideas or pointers. Glad you joined.
What do you need to do to get approved? I think gastric bypass is
the best surgery, but I am prejudiced. Good luck in this journey.
Lizanne

Stage 4 means it has metastasized outside the breast
to either/or bones or other organs.

New Hope to Prevent Breast Cancer: What Every Woman Needs to Know
<http://www.clickaudit.com/goto/?40723
In March, 2005, a major nutritional breakthrough in the fight against
breast cancer was announced by U.S. scientists. This new information is
absolutely critical for every woman looking for a natural way to reduce
breast cancer risk.
Read More. <http://www.clickaudit.com/goto/?40723

The U.S. national guidelines for treating breast cancer
have been updated to reflect new technology.
To get the full story, click here:
http://www.informationonbreastcancer.info/breast-cancer.htm

I agree, Naomi. I have to admit, however, that I am extremely
concerned about the (apparently) increasing teenagers having this
surgery. I did nto see the Oprah show, but on others that I have
seen, when you listen to these kids talk, it sounds (to my ears,
anyway) like they have NOT put any serious effort into losing weight
(one 15 yr old kept talking about not being able to give up Cheetos
or some kind of fatty snack) and expect that the surgery IS going to
be an "easy fix". I find it interesting that mental health
professionals are WELL aware that adolescent brains are not fully
functional in that teenagers do not have the same ability that
adults do to predict the consequences of their actions, yet SOMEONE
is doing the psych consults on these teenagers and deciding that
somehow these particular teens DO know what they are getting
themselves into and understand the consequences of the decision for
WLS. I would never be able to give a green-light to a teen wanting
RNY or DS (lap band... maybe... but only after being damn sure that
the teen had really tried to lose weight unsuccessfully (no
cheating!) and really understood how even having the Lap Band was
going to change his/her daily life (and that losing weight will NOT
solve their problems, many fo which they may be attributing to
weight yet have nothign to do with weight).
I would not be at all surprised to see future lawsuits from people
who were granted WLS as teens and then as adults regret the decision
and then sue the surgeon and/or psychologist who decided (against
all developmental evidence) that the teen was capable of making an
informed decision.
{stepping down off my soapbox now...}
Lora

Hi all, just been reading the posts since I joined and have gotten a
lot of useful info. I saw my oncologist yesterday and he took me off a
monthly Faslodex injection and put me on Femara. After my metastasis to
the lung from breast after 8 yrs we have tried Arimidex which made me
almost totally non-functional, then the Faslodex which worked well with
mostly joint pain and sleepless nights as the side effect. The joint
pain has gotten progressively worse so he decided to try Femara.
Anybody with first hand info please. I've read all the written info I
can find. Thanks and keep up the great encouraging posts.
Sharon

Naomi, We'll share :)
Debby
Naomi <nsmoschgat@...
Please check in and tell us how you're doing? Any problems,
questions, complaints. We know it's tough the first few weeks, but
keep up the sipping, walking and resting. Sometimes the scale doesn't
reward you like you think it should the first few week. Also, I'm
tired of all you newbies hogging up the cutest cabana boys!! Naomi

Breast Cancer - Another Obesity Victim
<http://www.clickaudit.com/goto/?41050
Obesity raises the risk of various types of cancer. And only 3% people
know that obesity increases cancer risks. According to a recent research
based on one million Americans conducted by the American cancer society,
14% of cancer deaths in men and 20% of cancer deaths in women occur due
to Obesity.
Read More.. <http://www.clickaudit.com/goto/?41050

Hello all............Parvin...........I hope and pray that this new
medication works well for you.
Rosie................Have you gone to a chiropractor?
Doris..............Please write us soon...we all miss hearing from you.
Love & Healing Energies,
Kathy

Can anyone tell me is it usual for BC patients to be seen by a multi
disciplinary team (that includes radiotherapists, junior doctors, etc.?)
Wavt is your family doctor called please? GP general practicioner here in UK
Velvet

Parvin,
Prayers that your xray shows you lung mets are shrinking.
Hugs
Marianne
Breast Cancer Patients Soul Mates for Life
http://www.geocities.com/chucky5741/breastcancerpatients.html
Check out my breast cancer ornaments at:
http://www.geocities.com/chucky5741/bcornament.html
also check out my other ornaments and lots of nice gifts at:
http://www.cancerclub.com

The first experiment to show that low-fat diets could help
prevent a return of breast cancer reveals, after longer follow-up,
that the benefit was almost exclusively to women whose tumor
growth was not driven by hormones.
To get the full story, click here:
http://www.informationonbreastcancer.info/breast-cancer.htm

Lizanne,
I have not officially left yet and I still have something to say that I
will post later because I'm trying to leave my office right now. I will
make this quick. But as to your questions. I am a Camp Director at a
special needs camp. Most of my staff are from out of the country. In
the picture you are referring to, I was teasing Grant from England. And
every Summer we hold a Christmas in July Celebration. As for the little
girl, Ella, yes she is my daughter and the main reason for going thru
this. She is almost 2 and the light of my life.
Thank you for asking,
Terri

Edie,
Thank you so much for this wonderful wish. What more could I ask
for? How about a new refrigerator? Just kidding!!
Your weight loss is becoming fantastic. How do you feel?
Lizanne

In one of my other groups awhile ago it was asked what songs help us
through this, and I couldn't remeber the name of the song that runs
through my head when I feel worried. Well I finally looked it up
online, and it's "For Those Tears I Died" by Marsha Stevens. I also
like "El-Shaddai" by Amy Grant. What songs help you guys out?

That answer wouldn't satisfy me either, Jill. I would definitely get a second
opionion. I know they can do blood tests to measure the amount of medication in
your bloodstream, they did that with my asthma meds. It's important to know
what you are getting, or not getting, from medications!
Pat
Jill <jsplds@...
Thanks, Ally. I've wondered a lot about that very issue and haven't
dug up anything about it. The only thing my surgeon told me about it
was that the malabsorptiveness of our bodies compensates for the
amount of medication that would normally be reduced as our weight
goes down, therefore, I would most likely remain on the same dosage
that I'm currently on. That didn't do a whole lot to satisfy my
concerns about it.
Jill
lap RNY 12-03-07
- 20.4 lbs.

Velvet, you could go with GP or primary care physician. When I was diagnosed I
was seen by the family dr who diagnosed me with possible bc, then the surgeon,
then I went to the radiation center and met the radiologist and then after
surgery was seen by the onc.
Hugs
Marianne
Breast Cancer Patients Soul Mates for Life
http://www.geocities.com/chucky5741/breastcancerpatients.html
Anxiety Depression and Breast Cancer

Judy,
Those pics are amazing!! I had no idea that you can now have these
done commercially!! How FUN!!!!
Jill
lap RNY 12-03-07
- 22.5 lbs.

I just wanted to send my thanks to those who have replied to my
message. I am slowly but surely getting closer to the 200 mark.
Thank you everyone!
All the Best,
Nicola

I had several cysts on my face and head and went to the dermatology
dept. to have them removed. They biopsied one and found it
cancerous, breast cancer to be exact. They sent me to an oncologist,
who did bone scans.
I have no pain, never did. The doctor in radiology scared me by
telling me that I was in immediate danger of fractures because the
cancer was throughout my bones, which made the oncologist angry.
Three years later, no fractures.
They did radiation on my hip this past winter to back the cancer
off. The only other treatment has been the Arimidex, which took away
the other cysts. I do have a couple now and am going to a
dermatologist this week to see about having them removed.
I have COPD, which has caused more problems than the cancer. I
prefer to leave everything up to my doctor, ignoring the cancer as
much as possible.

Sharon
I have scans every three months and whenever there is a new "problem"
followed by a new treatment, my oncologist will have followup scans as early as
four weeks. He does this not so much to check the progress of the meds--i.e.
smaller and fewer tumors; but more to check if there is any increased activity
of the cancer.
So, unless you have had some serious problems with your doctor before, I
would trust him on this. Perhaps the problem is not his medical expertise, but
his inability or reluctance to communicate. When this all started, I was rather
"quiet" and just accepted my doctor's recommendations. But, after six
years, and lots of time researching stage iv breast cancer and the many
treatments--including info I have garnered from this group--I now question my
onc on
everything and he says he appreciates my involvement...claims that as a team,
we have a better chance of beating this. He respects educated, informed
patients. So, you may just need to be a little more "aggressive"--in a
playful,
not threatening, manner.
On the other hand, if your doctor doesn't address your questions, treats you
in a condescending manner and will not spend the time fully explaining the
medications/ treatments; do investigate other oncologists. This is our lives
that we are entrusting to our doctors--and we need to trust them.
Good luck. I do hope the navelbine will prove successful.
And Doris,
I am so, so sorry to hear of your condition. I know that I am only one of
many in this group who will be praying for you and Leo. There have been so many
advances in meds/ treatments--especially in pain management--I can only hope
there is something out there that can and will help you. And of course, all
of us know that at any time, we can be where you are...and so, I pray for
all of us.
Marian Millican

Hi
If you are triple negative can you tell me what drug treatment you have had
please. Are there any drugs similar to those for er + or do you just do chemo?
Patient Power Series is almost complete, need this for the last entry
Thanks folks Velvet x

Hi Velvet,
My mother is triple negative and was put on Avastin (IV) and Xeloda
(oral) for a few months, but that combo didn't work for her. The Avastin is
used to stop the blood flow and angiogenesis to the cancer, and research shows
that it works best in breast cancer metasasis involving a cluster or tumor of
cells. Now she is on Vineralabine and her latest CTscan shows no new spread in
2.5 months, which is the first time a scan showed no spread. Of all of my
research, it could never hurt you to question your doc about doing herceptin
anyway. There is so much success with that drug. With the triple neg cancers,
they usually treat with single agent chemos and then combine as needed. Another
drug/chemo is Taxotere in combo with the Avastin. I wish you luck and continue
to pray. Feel well today,
Tracey
velvet girling <osteonecrosisjaw@...
Hi
If you are triple negative can you tell me what drug treatment you have had
please. Are there any drugs similar to those for er + or do you just do chemo?
Patient Power Series is almost complete, need this for the last entry
Thanks folks Velvet x

I was wondering if anyone could tell me who the moderator or owner of
this group is?
Thanks,
Terri

A Tool for Early Breast Cancer Screening
<http://www.clickaudit.com/goto/?41417
Who isn't familiar with the expression, "early detection is the
best prevention?" We hear this term throughout the year and most
everyone is familiar with this "catch phrase" as it relates to
breast cancer. Obviously, a woman's chance for survival improves
when a cancer is found early.
Read More <http://www.clickaudit.com/goto/?41417

The boys and leaders are in my prayers.
Hugs
Marianne
Breast Cancer Patients Soul Mates for Life
http://www.geocities.com/chucky5741/breastcancerpatients.html
Check out my breast cancer ornaments at:
http://www.geocities.com/chucky5741/bcornament.html
also check out my other ornaments and lots of nice gifts at:
http://www.cancerclub.com

Theresa,
Please tell me which area exactly is covered in a TT. Does it include
only the area above your belly button, or is some of the lower abdomen
included? Thanks for the info. Good luck with the precedure and keep
us posted about the procedure and your outcome.
Lizanne

shes due april 15 not 14, her birthday is the 14th!
Judy
Myspace: www.myspace.com/nynativecagirl
"Everything Is Easier With Friends"
Kaiser-Fremont, CA
262

Hope you find out something soon Lora :((
Im glad your not in pain anymore tho .. thats a good thing..
~*Sharon XOXO*~
"THIN feels better than FAT tastes!"
Lap RNY 7/30/07
HW242**SW232**CW170**GW125-130

I just saw Michaels Moore's new movie SICKO today.................the
answer is universal healthcare! I remember when Clinton was running the first
time and there was great support from the nursing professions (I'm an RN) about
universal healthcare but Hillary got shot down by the right wingers
instilling fear in the American public about what it would be
like.................GO
SEE THIS MOVIE!!!
If we could take all the trillion of dollars we are sending to Iraq and
focus on taking care of OUR people we could educate our young better and have
great healthcare here too.
Sorry I'm on my soapbox a bit...................but I encourage everyone to
see the movie........and make up your own mind!
Love & Healing Energies,
Kathy
************************************** See what's free at http://www.aol.com.

Velvet, I am a triple neg. I started with a bad onc after I was
diagnosed and started with adriamyicin, which was just wrong! Anyway,
to make a long story short I have mets in my lungs and brain but I'm
about down to no tumors. I could tell you what chemos I've been on
(alot) but if you don't have mets in your lungs or brain I think the
info would just be more information than you need BUT if you do have
mets to those areas I would be very happy to share the chemo info.
Also, I started with breast cancer.
Take Care,
Jamie

OMG!!! Mary ... LOOK AT YOU !!!! You are stunning.. .I had no idea you had
lost so much .. WOW what a wonderful difference!!!!
~*Sharon XOXO*~
"THIN feels better than FAT tastes!"
Lap RNY 7/30/07
HW242**SW232**CW170**GW125-130

Hi Ellen
Was it Betty Shannon who left the group a couple of weeks ago only I thought I
saw a post from this lady? I can't find it now as I emptied the trash box.
I am sorry I haven't been posting to you re your problems, I know a lot of
kind souls have done though.
I have been rather wrapped up in my own pain flare just recently from the
palliative XRT but any how you keep well and take care, hope things are going
well for you, Velvet (UK)

Notch inhibitors, which block a protein that helps
breast-cancer cells grow, may be used to prevent
and treat breast cancer, say U.S. researchers.
Click here to find out more:
http://www.informationonbreastcancer.info/breast-cancer.htm

"When I was first diagnosed with the primary bc, the
women who came to our support group who were dealing
with reoccurrance were actually discouraged from
staying in that group and definately muzzled when it
came to speaking out about issues of treatment."
Mirza...................I suggest you go to or join an online group thru the
WELLNESS COMMUNITY...........I have enclosed the website..............hope
it makes it thru the post.
Kathy
_The Wellness Community_ (http://thewellnesscommunity.org/)
************************************** See what's free at http://www.aol.com.

"I don't know if I'm avoiding because I'm afraid its cancer and don't want
to find out, "
Michele...................You need to go and find out. The sooner the
better. We are with you. We all know that feeling of total
fear..........but..........shake it off and GO TO THE DR!!!
Kathy
************************************** See what's free at http://www.aol.com.

The News You Don't Want To Hear: You've Got Breast Cancer
<http://www.clickaudit.com/goto/?41487
For many people being told that they have cancer is one of the most
stressful times in their lives. Just as we think we have everything
under control, something comes along that can shatter even the strongest
of wills.
Read More <http://www.clickaudit.com/goto/?41487

Thanks, Kathy! I will look forward to reading you.

I'm glad you're back Sharon. How are the storms up your way ?
Debby
Sharon Buffo <septsweety@...
My computer is up and running and Im back. When i was able to get
online again i had over 400emails To all the new members WELCOME!!!! To those
that have had their surgeries while i was away...CONGRATS AND WELCOME TO THE
LOSER'S LOUNGE!!...I miss all you guys but i couldnt get to every single
email... sorry..
Jess. . i will call you tonight after i get home from work. . Your gonna be
fine. . Looking forward to talking to you too!!
Now i have to get a shower and head back down to work .. Im the only bread
winner right now .. so. . gotta do what i gotta do ....;-/
~*Sharon XOXO*~
"THIN feels better than FAT tastes!"
Lap RNY 7/30/07
HW242**SW232**CW172**GW125-130
--
I am using the free version of SPAMfighter for private users.
It has removed 3864 spam emails to date.
Paying users do not have this message in their emails.
Get the free SPAMfighter here: http://www.spamfighter.com/len

Feel free to use any from my album. I like the one with me and my
daughter together in my too big pants, but use whatever you want.
I'd stay away from the "before" pictures, they look so alien to me
now.
thanks for doing this.
sheggy/shannon

I was whining about only losing 2 pounds for the whole month of June. I have
now lost a pound a day in July WOOOOOOHOOOOOOO. 3 pounds down in only 3 days, I
am so happy right now. That gives me 64 pounds since surgery and 91 pounds
total. I'm hoping to hit the century mark this summer.
Debby

Does anybody know how social security disability works when you're a stage 4
breast cancer patient? A person from another board I was reading said her
doctor suggested she apply for it because she was now stage 4. No one has
ever suggested that to me? I guess it must be because it is considered a
terminal illness with no cure available (at least for now).
Any thoughts or experiences with this?
-- Melissa
************************************** Get a sneak peek of the all-new AOL at
http://discover.aol.com/memed/aolcom30tour

Wow I didn't realize it either Mike that it was you from the other group. Glad
you found us. I enjoyed reading your website and if you make it to San Diego
again you will have a place to stay. You look great and are doing marvelously. I
love all the exercise you are into now. I am sending you some warm San Diego
sunshine...lol..hope it warms your heart.
Penny in San Diego

Mary,
I think you will need to delete the two from 2008 and resend them.
That will put them in the right order. The most recent on top.
Then I would like you to pat yourself on the back. You look so
good. Really really good. What an accomplishment to have had such
turmoil in your life, yet you still managed to take care of yourself,
most of the time.
You do the same thing as Sharon, get your picture taken without a
smile. You look good, put that smile on your face and show the world.
Lizanne

Congratulations Theresa. Keep us posted with all the info you learn as there are
those of us who want to go the same route. I would just settle for a facelift at
this point..lol..Best wishes..
Penny in San Diego

In November 2003, the American Cancer Society stated that breast cancer is the
leading cause of death in women between the ages of 40 and 44. In the United
States, there are approximately 200,000 new cases of breast cancer and more than
40,000 deaths; making the U.S. one of the countries with the highest death rate
due to breast cancer. Perhaps the most alarming statistic is 1: 8 women will
eventually develop breast cancer over their lifetime.
One of the most powerful steps a woman can take to reduce her risk for
developing breast cancer is to educate herself about the petrochemicals, or
xenoestrogens that are in her environment and work to eliminate or reduce them.
Petrochemicals are hormone disruptors and it is through the unbalancing of
your hormone system that can lead to problems. These xenoestrogens are found in
cosmetics, lotions and fingernail polish and polish remover. They are obviously
found in pesticides and insecticides. What you may not be aware of is that
petrochemicals are found in plastics. If food is placed in a plastic container
and reheated in the microwave, the plastic melts into your food and you ingest
it. The harder the plastic, the more resistant it is to this process but the
potential for accidental xenoestrogen ingestion is still present. Simply put, do
not reheat food in plastic containers in the microwave.
Conventional screening methods all examine structure. For example, mammography
uses X-ray to examine breast tissue. Any structure that has grown large enough
to be seen by X-ray could be detected by mammography. However, mammography can
have a high false positive rate. In fact, only 1 in 6 biopsies are found to be
positive for cancer when found by mammography or clinical breast exam. This
leads to increased psychological stress, physical trauma and financial concerns.
Other risks of mammography include the radiation exposure, although this has
been debated by doctors for many years. Recently published in Radiation
Research, 2004 the author suggests that the risks associated with mammography
screening may be FIVE times higher than previously assumed and the risk-benefit
relationship of mammography needs to be re-examined.
There exists a technology that can detect a breast issue YEARS before a tumor
can be seen on X-ray or palpated during an exam. This technology has been
approved by the FDA as an adjunctive screening tool since 1982 and offers NO
RADIATION, NO COMPRESSION AND NO PAIN. For women who are refusing to have a
mammogram or those who want clinical correlation for an existing problem,
digital infrared thermal imaging may be of interest.
Thermal cameras detect heat emitted from the body and display it as a picture
on a computer monitor. These images are unique to the person and remain stable
over time. It is because of these characteristics that thermal imaging is a
valuable and effective screening tool.
Breast thermography has undergone extensive research since the 1950s. There
are over 800 peer-reviewed studies on breast thermography with more than 300,000
women included in large clinical trials. An abnormal thermogram is 10 times more
significant as a future risk indicator for breast cancer than a first order
family history of the disease. A persistently abnormal thermogram carries a
22-fold higher risk of future breast cancer.
Medical doctors who interpret the breast scans are board certified and endure
an additional two years of training to qualify as a thermologist. Thermography
is not limited by breast density and is ideal for women who have had cosmetic or
reconstructive surgery. It is recommended that since cancer typically has a 15
year life span from onset to death, that women begin thermographic screenings at
age 25.

Happy Belated Birthday Lizanne. Sorry I'm late but hope you had a great
birthday and have many more.
Susan G.
Vacaville, CA

When you have cancer without cure, you qualify for SS disability.
One of the the first things my oncologist told me when the cancer
recurred was to quit working.
My imagination took this to mean that I was going to get worse and be
unable to work. That was in 2004 and while I have slowed down
greatly, I can still do most things that I used to. I need a lot of
naps and do rest whenever tired which wouldn't be possible if I
worked, but is mainly caused by not sleeping well through the night.
You might want to talk to your doctor about this because he would
have to approve it. I first went on state disability for a year,
applied to SS in January and was approved in April to start after the
state ran out (1 year) in December. I was 60 years old.

Hi every one,
hi my name is anna i am new to this web site! but let me tell u a little bit
about my self i am a 36yr old female i am single with 3 kids and 2 grandson's i
love them very much!!
this is my 2nd time around with breast cancer! i lost my mother to cancer 5
yr ago! about 1 1/2 yrs after she passed i found out that i had breast cancer
that was realy hard for me and my kids but we made it through that!!!
but now i just found out about 5 weeks ago i have advanced recurrence breast
cancer agin!!
i got a port put in because my Dr. said that i am going to be on chemo for an
indefinite period of time!!! i really dont know what that means right now but i
am very scared!!!
and i try so hard not show how i really feel around my kids! i dont want them
to be scared!! so i try to be stong for them but it gets harder aad harder for
me !!! and i live in TX alone with my kids and all my family wants me to go back
home! i dont want to because i have all my Dr. here and they r very good Dr.i
trust them very much!
i have not had time to really soak all this up! i have not broke down and cry
about it! because every one keeps telling me i am strong! and i can do this!!
some times i dont know if i can!! any more i am trying to keep my self busy with
work i work 12 hr shifts and i work about 5 to 6 days a week some time because i
dont want to think about all this!!
i went to go see my family Dr. and he was mad at me because he said i dont
relize that i am sick!! i told him i know i am i just dont want to think about
it!
well i think i said way too much! i just want to say thank you for beeing
there and taking the time to read this e-mail
Happy Hoildays to every one

PARIS (AFP) - Lack of folate, also called vitamin B-9, may triple the
risk of developing dementia in old age, according to a study
published Tuesday.
Researchers in South Korea measured naturally occurring folate levels
in 518 elderly persons, none of whom showed any signs of dementia,
and then tracked their development over 2.4 years.
At the end of the period, 45 of the patients had developed dementia,
including 34 diagnosed with Alzheimer's disease, said the study,
published by the British Medical Association's Journal of Neurology,
Neurosurgery and Psychiatry.
When the researchers, led by Jin-Sang Yoon of Chonnam National
University in Kwangju, South Korea, remeasured folate levels, they
uncovered a strong link with the dementia.
Even after other factors were taken into account -- including age,
disability, alcohol consumption, weight change -- "the onset of
dementia was significantly associated with an exaggerated decline in
folate," the researchers concluded.
Folate and folic acid, another form of the compound, are essential
for the creation of new cells in the body.
The compound occurs naturally in leafy vegetables such as spinach,
turnip greens, lettuces, dried beans and peas and in certain fruits.
An study published last year in The Lancet showed an improvement in
short-term memory, mental agility and verbal fluency among persons
over 50 who took a daily dose of 800 micrograms (mcg) of folic acid.
The US recommended daily dose is 400 mcg.
Taking folic acid before conception and throughout the first
trimester helps a mother ensure that her child will not develop
certain brain and spinal cord defects, including spina bifida,
according to previous research.

How on earth do you plan to get 1000 calories in only 3 meals? Research has
proven that eating many smaller meals throughout the day instead of 3 larger
meals keeps your metabolism higher throughout the day. I don't plan to ever go
back to 3 meals a day.
~Ally~
Atlanta, GA
Lap RNY 7/12/07
251/237/174/130
HW/SW/CW/GW

Just call your local social security office and they will walk you thru it.
Your doctor or social worker at his office should have told you. SSD will
ask you all the pertinant questions.
Kathy
************************************** Get a sneak peek of the all-new AOL at
http://discover.aol.com/memed/aolcom30tour

Welcome Anna. You do need time to cry and share your feelings with some.
Otherwise it will get too overwhelming for you. Is there a friend you could talk
with or possibly a member from your church. Even your pastor or his wife?
You need to take care of YOU. It sounds to me like you are overdoing it with
work. I would definitely listen to my body. If you aren't up to doing 12 hrs
explain that to your boss. You don't want your immune system to get run down. I
will keep you and your children in my prayers.
Hugs
Marianne
Breast Cancer Patients Soul Mates for Life
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BreastCancerStories.com
http://www.breastcancerstories.com/content/view/433/161/
Angel Feather Loomer
www.angelfeatherloomer.blogspot.com
Check out my other ornaments at
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Lots of info and gifts at:
www.cancerclub.com

LONDON - Preventing obesity and smoking can save lives, but it
doesn't save money, researchers reported Monday. It costs more to
care for healthy people who live years longer, according to a Dutch
study that counters the common perception that preventing obesity
would save governments millions of dollars.
"It was a small surprise," said Pieter van Baal, an economist at the
Netherlands' National Institute for Public Health and the
Environment, who led the study. "But it also makes sense. If you live
longer, then you cost the health system more."
In a paper published online Monday in the Public Library of Science
Medicine journal, Dutch researchers found that the health costs of
thin and healthy people in adulthood are more expensive than those of
either fat people or smokers.
Van Baal and colleagues created a model to simulate lifetime health
costs for three groups of 1,000 people: the "healthy-living" group
(thin and non-smoking), obese people, and smokers. The model relied
on "cost of illness" data and disease prevalence in the Netherlands
in 2003.
The researchers found that from age 20 to 56, obese people racked up
the most expensive health costs. But because both the smokers and the
obese people died sooner than the healthy group, it cost less to
treat them in the long run.
On average, healthy people lived 84 years. Smokers lived about 77
years, and obese people lived about 80 years. Smokers and obese
people tended to have more heart disease than the healthy people.
Cancer incidence, except for lung cancer, was the same in all three
groups. Obese people had the most diabetes, and healthy people had
the most strokes. Ultimately, the thin and healthy group cost the
most, about $417,000, from age 20 on.
The cost of care for obese people was $371,000, and for smokers,
about $326,000.
The results counter the common perception that preventing obesity
will save health systems worldwide millions of dollars.
"This throws a bucket of cold water onto the idea that obesity is
going to cost trillions of dollars," said Patrick Basham, a professor
of health politics at Johns Hopkins University who was unconnected to
the study. He said that government projections about obesity costs
are frequently based on guesswork, political agendas, and changing
science.
"If we're going to worry about the future of obesity, we should stop
worrying about its financial impact," he said.
Obesity experts said that fighting the epidemic is about more than
just saving money.
"The benefits of obesity prevention may not be seen immediately in
terms of cost savings in tomorrow's budget, but there are long-term
gains," said Neville Rigby, spokesman for the International
Association for the Study of Obesity. "These are often immeasurable
when it comes to people living longer and healthier lives."
Van Baal described the paper as "a book-keeping exercise," and said
that governments should recognize that successful smoking and obesity
prevention programs mean that people will have a higher chance of
dying of something more expensive later in life.
"Lung cancer is a cheap disease to treat because people don't survive
very long," van Baal said. "But if they are old enough to get
Alzheimer's one day, they may survive longer and cost more."
The study, paid for by the Dutch Ministry of Health, Welfare and
Sports, did not take into account other potential costs of obesity
and smoking, such as lost economic productivity or social costs.
"We are not recommending that governments stop trying to prevent
obesity," van Baal said. "But they should do it for the right
reasons."

We knew this already, but it is nice to know the message is getting
out loud and clear to the general public...
Here's a link to an important 3 part video series on the many hidden
dangers of MSG (mono sodium glutamate) which was aired on
the CBN 700 Club.
Each clip is about 5 minutes.
I am sharing it with ALL my family and friends.
http://articles.mercola.com/sites/articles/archive/2007/08/28/dangers-of-msg.asp\
\
x
Also, here's a link to an organization fighting to get honest labeling
on our foods.
http://www.truthinlabeling.org/
Our consumer dollars have a lot of power. I believe letters and calls
to manufacturer's 800 numbers have power as well.
Teresa M.

no i realy dont have any one to talk to all i hear is you can to it
your strong!!!! so it gives me no roon to talk about it and how i
feel! but yes i am scared!! i live here in TX alone with no family!
so i am to my self! i have friends at work but like i said all i hear
from them is you can do it your a strong person!! so i dont talk
about it i act like there is nothing wrong! and i go on!! but i do
need to realy cry about it because i stress my self out from time to
time! and for work my bosse understands what is going on i talk to
her about it and what is going on with my chemo! but yes your right
i am working alot!

It makes more sense to me to spread the food out throughout the day. That's
what I plan to do.... although my surgeon also says 3 meals a day. He said that
anything more than that is grazing... but if you don't exceed the number of
calories you should have, it shouldn't be a problem.
Pat
Allison <allisonmarie22@...
How on earth do you plan to get 1000 calories in only 3 meals? Research has
proven that eating many smaller meals throughout the day instead of 3 larger
meals keeps your metabolism higher throughout the day. I don't plan to ever go
back to 3 meals a day.
~Ally~
Atlanta, GA
Lap RNY 7/12/07
251/237/174/130
HW/SW/CW/GW

'Are you getting your B-12? i hear that helps w/ Neurological function. .
otherwise it could be from the anesthesia as well
~*Sharon XOXO*~
"THIN feels better than FAT tastes!"
Lap RNY 7/30/07
HW242**SW232**CW170**GW125-130

We are seeking patients and their caregivers to participate in
telephone interviews the week of 9/17. They can be scheduled Monday
through Friday that week. Specifically we are seeking those that have
been diagnosed with colo-rectal, breast & non small cell lung cancer,
treated currently or in the past 6 months with chemo. The patient and
their caregivers receive $175 each (check mailed) for their input
during a 45 minute telephone interview.
The purpose of this study is to determine the effectiveness of care
and the results to be used for research purposes only. All information
gained is completely confidential and reported anonymously.
Please contact me at either 510-922-9710 or 201-284-8201 or by return
email with your number and I will call you.
Kind Regards,
Jan Mallery-Groom RN
Senior Project Manager
Recruiting Resources LLC
201-284-8201
jmallery@...

THURSDAY, Jan. 31 (HealthDay News) -- Adults with epilepsy who have
failed other treatments may be able to dramatically reduce their
number of seizures by following a modified Atkins-like diet, Johns
Hopkins researchers report.
The high-protein, low-carbohydrate diet has already been shown to be
valuable in controlling seizures in children, and now results from a
small study suggest that the diet also works for adults.
"There are a lot of adults with very bad seizures. There are a lot of
adults who have failed medicines and are not candidates for other
treatments," said lead researcher Dr. Eric H. Kossoff, an assistant
professor of neurology and pediatrics at Johns Hopkins School of
Medicine.
For the study, Kossoff's team gave the diet to 30 adults who had
unsuccessfully tried at least two anti-convulsant drugs and had an
average of 10 seizures a week. The eating plan restricts patients to
15 grams of carbohydrates a day. Most of the calories come from fats
such as eggs, meats, oils and heavy cream. In addition, patients are
free to eat as much protein and no-carb drinks as they want.
"There was good news and bad news," Kossoff said. "The good news was
it worked. The bad news it was tough. About 30 percent of the
patients stopped the diet. This happened even in patients who had
good seizure control who thought the diet was still too tough to do."
After a month on the diet, half the patients reported suffering 50
percent fewer seizures. At three months, about one-third of the
patients cut the frequency of seizures by half.
However, by three months, one-third of the patients had dropped out
of the study because they found the diet too restrictive, Kossoff
said.
The diet's side effects, such as increases in cholesterol or
triglycerides, were mild, Kossoff noted.
After six months on the diet, 14 patients continued with it, even
though the study was over, he said.
The findings are published in the February issue of the journal
Epilepsia.
No one knows how the diet works to reduce seizures, Kossoff said.
And, most people find it too hard to follow, so it's probably not a
long-term solution for most people with epilepsy, he added.
He also noted that patients who go on the diet need to continue with
it, perhaps for years to keep seizures under control.
But Kossoff thinks the diet can be simplified to make it easier to
follow. "We are looking at less time in the clinic and fewer
restrictions and without a dietitian," he said.
Dr. Gholam Motamedi, director of the epilepsy service at Georgetown
University Hospital, thinks the diet can be useful for patients who
have no other options.
"The study is promising, especially given that patients with
refractory epilepsy in particular -- those who are not surgical
candidates -- are left with not much hope," he said.
Normally, the plan for these patients is to try a combination of
different drugs or to use vagus nerve stimulation, but none of these
options offers much hope of seizure control, Motamedi said.
"Therefore, having another modality available is always welcomed by
the neurologists," he said. "It also encourages basic research
looking for insight to the underlying reasons for epilepsy

An Army-led breast cancer vaccination study offers hope
to breast cancer survivors. Early study results suggest a
50 percent reduction in disease recurrence for vaccinated women.
To get the full story, click here:
http://www.informationonbreastcancer.info/breast-cancer.htm

Hi,
Has anyone else been diagnosed with liver mets? If so, I was just
curious as to what treatment you're on and how you're progressing.
I just started Xeloda on August 27th and so far seem to be tolerating
it well. My blood tests indicate that so far the liver is still
functioning well, but I got a copy of the PET/CT scan and it said there
were 14 spots! My onc said that about a third of the liver has cancer
and I'm really concerned about how long the liver will continue to
function properly.
Thanks,
Gina

Breast Cancer Detection Unit for the Home
<http://www.clickaudit.com/goto/?41597
Detecting Breast Cancer early is a key step in protecting yourself from
the dire consequences and risk of breast cancer. There is now some new
technology using Infrared to help you do self-examinations in the
privacy of your own home. Surprisingly these units are in expensive only
about $100.00; the device is called; "iFind"
Read More.. <http://www.clickaudit.com/goto/?41597

Michael Moore has a lot of courage, and with his
latest movie "Sicko" he is again right on target!
We hear story after story from those without medical
insurance. And now-a-days there is no secure medical
insurance since employers as well as health insurance
compainies are free to drop coverage not only for the
current employees but for the retirees as well.
We need universal coverage for all here in the USA.

Well one good thing has come from all this... Terri has encouraged us to be more
mindful of the subject line! See? We DO pay attention AND care!!
As for people feeling left out... There is no excuse for it. No one is EVER
discouraged from joining in. We can't drag people into conversations against
their will. All you have to do to be included is to post. The door is open to
newcomers and oldtimers alike... just jump in!
Pat
lizanneflowers <lizanneflowers@...
Ally,
I am outraged!!! Maybe you misunderstood is all I can say. I have
never felt that you are not doing a great job. We are all an
emotional bunch and my thought, and I hope I am right, is that one or
either of you that sent/read the message is emotional. That one took
what the other meant differently than intentioned. I do not believe
that you or the other person really meant you were the reason people
left.
We are all doing our best. Sometimes when we feel a certain way and
post, it may be taken wrong based on the reader's current emotional
status. I am so sorry that you feel like someone has blamed you for
a member leaving this group. We are all so friendly toward one
another that I can understand when someone feels left out. I wish I
knew a way to keep them with us as I truly love it when a new member
joins. I love answering their questions and giving encouragement.
Many times you have posted with encouragement and suggestions.
Ally, you are doing a great job. You are like the president of the
US, you really can't do anything on your own, you need us to support
any decisions you make. I support you 100% and will try to help new
comers feel welcome, oldtimers feel a need to stay, and I will try to
change my subject line everytime I post.
Lizanne
PS We need you to be a beautiful bride so we can all feel part of
your wedding. Stop stressing about this group and worry about the
important things.

I had been a bit nervous all day wondering what my thermogram procedure would
entail. Would I need to undress completely? Would I be given one of those paper
gowns that opens in the front and barely covers me? Would there be any heat
coming out of the camera?
I had been avoiding a mammogram after reading the latest information about the
risks associated with X-ray; knowing that I was potentially putting myself at
greater risk by not taking charge of my health. It was my massage therapist who
told me about thermography as an adjunctive tool for breast cancer screening and
now I find myself lost in my thoughts as I am driving to my thermographic
appointment.
As I entered the lobby, I noticed that the temperature was cool and
refreshing. The paintings on the wall were bright and cheerful with many colors
that caught my eye. I felt at ease right away.
I was quickly greeted by the thermographer. She guided me to her office and
there I felt all the tension melt away. She showed me around the office
explaining the need for a cool temperature and allowing me to browse her
collection of literature, leaflets, handouts and brochures. It smelled like my
grandmothers garden in the spring. Just a hint of orange blossom, honeysuckle,
green apple all mixed with a light touch of rain forest greeted my nose. The
plants were lush and healthy and soft music was playing in the background. The
lights were dim and I could almost imagine myself back in grandmas Arizona
room.
The thermographer asked if I had any questions and of course I said no, trying
to show her that I was calm, relaxed and not a bit nervous. She smiled knowingly
and asked me to please step behind the room divider and change into a robe she
set out for me. The robes were soft cotton and tied in the front. She then asked
that I fill out the paperwork. She explained that I would need to do my best to
keep my arms away from the side of my body so I could cool down and she could
get a more accurate image. She then read over my information and asked me
questions about my health in general and specifically breast health. All the
while, I was grateful for the full coverage of the cool, cotton robe and
remembered to keep my arms away from my body.
Next, I moved to the scanning area where I was shown the six different
positions required for the scan. She then asked me to sit on the stool and turn
my back to her. At this point, she asked me to drop my gown. I was told to keep
my hands on my waist while she took my thermal picture. I learned that it
usually takes 12-15 minutes for the temperature of my skin to come to
equilibrium with the temperature of the room. Once my temperature stabilized,
the scanning began. During the scan, she asked that I raise my hands above my
head and remain still; allowing me to rest my hands back on my waist between the
different poses. The camera did not emit any heat and never touched my body. The
total scan time was about 5 minutes.
Once we were done, I changed back into my clothes and thanked the technician
for a soothing and comforting experience. Before I left the office, I picked up
a few of the breast health brochures to share with my family, friends and
colleagues.
Thermographic screening is not covered by most insurance companies but is
surprisingly affordable for most people. For more information or to find a
certified clinic in your area, go to www.proactivehealthonline.com.

I feel that if I'm eating 6 times a day at scheduled times then that can't be
considered grazing. If I'm eating at non-scheduled times, whether it be 3 meals
or 6 meals a day, then that's grazing.
~Ally~
Atlanta, GA
Lap RNY 7/12/07
251/237/174/130
HW/SW/CW/GW

Lizanne,
"get a little sausage" I love it. LOL
Thanks for the laugh.
Edie

when ever i read your posts, my heart and prayers go out to you. i
have seen the pictures of your son and daughter. you are so young
to
have gone thru so much, and still have a great attitude. i am so
happy that you where able to see and be with her. i have two sons
but
they live in another state, one in l.a., and the older one in denver
c. i miss them terribly but we talk every few days.
i have had hot flashes every half hour, 24/7 for 6 yrs. since chemo
put me in menopose. i think the med's also helps them come more
often.
it use to bother me alot, but after so many years, it is part of my
life.
as fare as songs go, i feel good when i hear songs either from my
childhood and from the 60's -70's -80's even the 90's. no
particular
one.
you are in my prayers,as all of us here need them.
God bless,
rosie s

I went and saw my primary care. She switched me from Zoloft to
Cymbalta. Any other Cymbalta users here? Just wanted to know if it
works for anyone.
Yesterday my daughter (13 High functioning autistic/bipolar) attacked
me because I tried to brush her hair, and then I went to take her to
therapy (along with the little girl I watch and my other daughter)
and was pushed into the elevator wall because a mentally ill teenaged
boy slammed his father into the elevator, crashing through the almost
closed doors and thereby slamming me in to the wall of the elevator.
I am still freaked out by this, even though everything turned out ok,
but I was so scared that the kids were going to get hurt. I pushed
the father off of me and out of the elevator and quickly got the
elevator doors to close again, and made it safely to the next floor.
I know I should get over this, but it really shook me up. I just
keep thinking that the kid could've pulled out a knife or something
like that. I spoke with my daughter's therapist about it today to
see what happened to the boy. They did call the police and the boy
was detained, I just needed to know that they did do something.
ANYWAY--today I just want to sleep. That's how I've been lately, so
that's why my doctor switched me to cymbalta. Let's hope it works.
Lucy needs me not to sleep so much, so I can take her hyperspastic
self out for walks.
Sheggy/Shannon

O Sharon,
I know how you feel. My heart breaks everytime one of us has to deal with bad
news again, has to fight harder again, it does suck that we have to go through
so much. I must admit at times I get jealouse of the girls who have a couple of
radiation treatments or chemo treatment's or just had to have surgery and then
they're done. I get tired of this fight to. From one of the spots that the
cancer decided to pop back up in I have a pushed out bone that rubs on the
seatbelt when I drive and it can make it sore, and then when I feel that I start
to rub on it and think about things, and it make's me depressed. My back is
acting up today to, so that just throws some more depression in there. And I
don't have enough money to shop with to help me get over the depression right
now. I'm sorry you're feeling so miserable, I hope you find your strength and
peace soon.

I had good health insurance until 1986, then sometimes had it and
eventually didn't have any. After I made it to the five year mark
without recurrence of breast cancer in 1999, I had no insurance. I
did have a good job, with the exception of the health insurance, a
growing trend.
In 2004, I started experiencing shortness of breath, so bad that I
thought I would pass out at times. I was an apartment manager and
had to walk a lot on the job. I also had three cysts on my face and
head.
I was going to a free clinic, getting inhalers to help with the
breathing. Finally, I went to Harbor/UCLA the county hospital. I
was given a payment schedule based on my income, payments I could
afford. Eventually, the recurrence was diagnosed and my oncologist
suggested I quit working on the first visit.
I think it is so sad that Americans cannot afford decent medical
coverage. At my age, 62, we are just ahead of the largest generation
of people, the baby boomers. Since this aging group is going to hit
the system in a few years, politicians are now starting to talk about
health care in a most serious way.
I have medicare now, since I am on Social Security disability and I
thank God every day for it.

Women who are taking Prempro, a popular hormone
therapy for menopause, have much to think about.
Click here to find out more:
http://www.informationonbreastcancer.info/breast-cancer.htm

Terri, I also feel left out sometimes (and I've been here since group started)
when I post and no one answers me or I respond to someone and the recipient
acknowledges everyone but me. BUT I move on, I know that there are hundreds of

Hello there-
I wanted to share with all of you that I went for my 6 month check up last week.
The appointment was actually on Monday, but I've been in various stages of
denial since, so I haven't shared what I was told.
Obviously, you can tell by the topic of my post that my surgeon thinks I have a
stricture. For the past couple of months I've been vomiting very frequently
(2-3 times a week) and I've had terrible nausea and indigestion almsot daily,
even with the Prilosec. I have to go see the Gastro doctor on Feb. 14th (first
appt. available) and they'll start running tests.
I'm so bummed out about this, and very discouraged. I actually break out in a
cold sweat when I think of having an endoscopy. This was one side effect of the
surgery that I was aware of and prayed that I would not have to deal with.
Hopefully he is wrong and it is something else, but he says that he's 99% sure
based on the symptoms I'm describing.
Anyway, I know you guys will encourage me, so I thought I'd share. I'm just
tired of feeling sickish all the time. :(
~Ally~
Atlanta, GA
Lap RNY 7/12/07
251/237/174/130
HW/SW/CW/GW

Passive Smokers Can Get Breast Cancer! Learn How?
<http://www.clickaudit.com/goto/?41655
US scientists have claimed that secondhand smokers are at higher risk of
Breast Cancer. Earlier, their research also led to them to the
conclusion that young women smokers are more likely to get addicted to
smoking than young men.
Read More <http://www.clickaudit.com/goto/?41655

When I joined this group a few months ago, I thought I would find
other women who are going through the same things I am. I have found
that, but also find that I myself, while I would like to be more
active in this forum, sometimes lack energy to post on a regular
basis. So I don't wish to sound ungrateful, but does it seem that
almost everything that does get posted is some kind of ad? Does anyone
find these helpful? I'm wondering because most of them seem to be
about early breast cancer detection and prevention. Are any of them
about metastatic or advanced breast cancer? I'm beyond preventing a
recurrence--I've already had one--and it's too late for early detection.
Well, I seem to have found the energy to post a little rant, so now a
question. Is anyone on Aromasin? My doctor switched me from Arimidex
about a month ago, and now I have sore shoulders, ankles and knees.
I'm wondering if this might be from the meds.
I had a new CT scan that showed some small new spots on my liver and
maybe one or two on my lungs. I also had a bone scan that showed two
questionable spots, but they haven't progressed so may not even be
relevant. All things considered, the news has not been bad.
In October I had a pleurodesis, a surgical procedure to "glue" the
pleural lining together to prevent fluid from filling my chest up
again. I know some fluid has come back, but not nearly as bad as it
had been (Breathing was very difficult). Has anyone else had this
done, and if so how did it hold up as time went by? I'm very
encouraged so far.
Hope everyone is doing okay and having a Merry Christmas or Happy
Holiday of your choice. Here's to a hopeful and promising New Year for
all.

Hi Kimberly,

Ditto Mary. You look FANTABULOUS!!
Sharon Buffo <septsweety@...
You are stunning.. .I had no idea you had lost so much
San, 34, Single
No Kids - Zion, IL
Far North 'burb of Chgo
Lap RNY 08.28.07
Highest Weight: 370
Surgery Weight: 370
Current Weight: 299
Goal Weight: 150

A word of cautionary advice here, if I may . . . Keep this in your
trunk, and if you don't have a trunk due to having a hatchback type
of vehicle or a truck, keep it inside of a lidded container, maybe
even wrapped in a towel inside the container.
Several years ago, I had one of these explode inside of my hatchback
car in the heat of summer. Imagine my surprise when I came out to my
car on Sunday morning, all ready to go to church, and this stuff had
completely coated the insides of my windows and was all over the car
seats, steering wheel and roof liner. ICK!! I thought I'd *NEVER*
get that stuff scraped off the windows!!!!
Jill
lap RNY 12-03-07
- 22.5 lbs.

I have a "the more the merrier" attitude... I wouldn't mind sharing my birthday
at all. Actually, the older I get, the less important birthdays are. It's not
a big deal to me. Oh.. except for my next one... I am figuring by then (Sept
13) I will have lost enough weight to get the diamond anniversary ring I have
been wanting!
Pat
Allison <allisonmarie22@...
I don't blame her. I like my birthday being "my" day.
Just some encouragement for her though...I was born on my due date. ;)
~Ally~
Atlanta, GA
Lap RNY 7/12/07
251/237/174/130
HW/SW/CW/GW

I'm sorry that you feel as you do. Yes, the subject line does get
forgotten sometimes, Lord knows I am guilty of that myself, but no one
is EVER deliberately excluded here. If there is an "inner circle",
everyone who posts is a part of it... EVERYONE. I know there were some
posts that were direct responses to your post before the subject went
off on a tangent. I hope you saw them. I, for one, care about
everyone in this group, and I know the others feel that way too.
Pat

I agree that the group is not so active and hope that it is because
we are all too busy enjoying life. :-)
I tend to skip the messages about early breast cancer detection as
they don't apply to my situation. I have a freind in the
neighborhood who is always popping in with tidbits of breast cancer
prevention and detection tips that she reads in the British women's
magazines that she has sent all the way to Tokyo.
I know she is trying to deal with having a friend with stage IV
cancer be helpful but sometimes I want to shout "I'm past prevention
and am getting regular high tech tests to detect any further spread
of the cancer that I already have!" I don't though. I just decided
to let her continue the support as it makes her feel better and
also, if she keeps herself thus informed, it can only be to her
benefit. I can smile and comment on how important the information
is for all women.
I'm keeping an eye on a few spots in my lungs these days and hoping
the Zoladex and Tamoxifen do their stuff and keep everything under
control. The next CT scan is scheduled in February.
I'm pretty busy doing translation work at home these days so I won't
be posting much for a few weeks.
I hope that everyone is having a good holiday seaon and wish you all
the best for health and happiness in 2007.
Kathy Sugio
in Tokyo

Ally, if you need another endoscopy just tell them you want to be out for it.
My first one was no big deal, but after my nightmare second one, I will NEVER
let them near me with an endoscope again unless I am OUT!!! From what I hear,
opening an stricture isn't a huge deal... and it will beat the heck out of
frequent vomiting!! Then again.. maybe your dr is wrong and whatever your
problem is will clear up on it's own.
Pat
Allison <allisonmarie22@...
Hello there-
I wanted to share with all of you that I went for my 6 month check up last week.
The appointment was actually on Monday, but I've been in various stages of
denial since, so I haven't shared what I was told.
Obviously, you can tell by the topic of my post that my surgeon thinks I have a
stricture. For the past couple of months I've been vomiting very frequently (2-3
times a week) and I've had terrible nausea and indigestion almsot daily, even
with the Prilosec. I have to go see the Gastro doctor on Feb. 14th (first appt.
available) and they'll start running tests.
I'm so bummed out about this, and very discouraged. I actually break out in a
cold sweat when I think of having an endoscopy. This was one side effect of the
surgery that I was aware of and prayed that I would not have to deal with.
Hopefully he is wrong and it is something else, but he says that he's 99% sure
based on the symptoms I'm describing.
Anyway, I know you guys will encourage me, so I thought I'd share. I'm just
tired of feeling sickish all the time. :(
~Ally~
Atlanta, GA
Lap RNY 7/12/07
251/237/174/130
HW/SW/CW/GW

Sorry to hear the news, my prayers go out for you. You've been very fortunate
not to have lost your hair in three years. You should get more then one wig.
Places I frequently go to they know what's going on, and so I don't hide my
chemo head. The great thing is since they know allready I can wear a bevy of
wigs and can come in with a different look all the time. I have about 8 I think
and I've found another one I like. I'm fortunate to live by a beauty shop that
sales great wigs very cheap.
Thebzplace@... wrote:Dear Folks:
Well, I've been off line again for over two weeks I think, so I'm way out of
touch, lol. I've just been sewing & napping, lol.
Friday I got a call from my doctor's nurse who told me my CA27-29 has once
again skyrocketed.......sigh. I'm going back in on Monday for a re-test but I
have a feeling it's a true reading. The chemo I'm currently on has worked
the longest so far of all the chemos I've been on, so I guess it's time it
stopped working, lol.
The following Tuesday (July 5th) I have a doc appt and we'll discuss the new
test and probably decide to change chemos. I've been very tolerant of the
current selection (Taxotere) so I hope the next one is just as "nice." My
head hair is thinning as well as the rest of my body hair, but you can't tell
just by looking at me. :-) I can tell because it's me, lol. I told my (bald)
hubby that maybe this next chemo will make us twins, HAHA! If it does I
think I'll get a wig. I'm still deciding if I want a short hair or a long hair
one, hehe. I haven't cut my hair in the three years I've had cancer, but my
hair still isn't all that long as it grows slowly, but it's long enough to
cut off for Locks of Love. I have always planned on doing that if the next
chemo promotes baldness, and do it BEFORE I really start to have it falling
out.
Might as well make good use of the hair!
Well, hello to all and I look forward to hearing from you.
Pat B

Hello everyone
I just wonder if some of you have the same problem as I do when answering
posts, especially if there is a long thread? Does anyone get confused, as I do?
When there is no 'Dear name,' 'Hello name,' 'Hi name' to begin with and then
guessing sometimes exactly who is sending the post I have to confess I give up.
I get really very confused and sometimes I don't respond because I am at a
loss as to who exactly sent which.
Can I claim chemo brain even though I am only one day in? Or is there really a
bit of a problem here?
I know I shouldn't get muddled but I do ~ anyone else feel the same as I?
LOL Velvet (UK)

I'm having a PET/CT scan on Thursday to see if the Femara is working.
I've been on the pills for 2-1/2 months. I feel nervous because my
cancer does not show up well on scans - just shows up as enlarged (and
more numerous) lymph nodes in my upper chest and neck.
Is there anyone who is estrogen positive where the first pill tried
(such as Femara) did not work, but another pill did? I've read where
some have stopped working so they tried another so I wondered if anyone
had a case where the pills did not work at all.
My doctor has mentioned that he may try another drug if the Femara does
not work, but I still have radiation as a future option since this area
is above the breast area that was already radiated. He prefers to save
the radiation option but I don't want to waste alot of time if the
pills don't work the first time...so I would appreciate your comments.
Thanks,
Beverly

Hi Kimberly,
I feel exactly the same way. I have written directly (and politely at
first) to the people who send the same thing/message/ad every week, and
none of my emails have been answered.
My vote is to ban them from the list because it is getting a little
annoying reading the ads week after week, and when people respond to
them, they don't even answer our questions (onlist or off). The two
that have been most irritating is the nisha sharma and tribal tribal.
Same cancer hoaxes, fads, lots of exclamation points, designed to scare
us into buying something. That is not helpful to me and I vote that
thet should be banned so we can have a group for sharinmg info with
each other and not having impersonal ads.
Just my vote.
Kelli

Beverly I can't answer your question but will keep you in my prayers for
Thursday.
Hugs
Marianne
Breast Cancer Patients Soul Mates for Life
http://www.geocities.com/chucky5741/breastcancerpatients.html
BreastCancerStories.com
http://www.breastcancerstories.com/content/view/433/161/
Angel Feather Loomer
www.angelfeatherloomer.blogspot.com
Check out my other ornaments at
www.geocities.com/chucky5741/bcornament.html
Lots of info and gifts at:
www.cancerclub.com

I've been on Femara for almost 4 months and have had no joint pain or
any other side affects really. I do have sleeplessness but who is to
say it's the Femara with so much going on in my life. It could be
caused from anything. I have also been having headaches for 2 months
now but can't say for sure if it is caused by the Femara or something
else going on in my body. I had a TIA (mini-stroke) Monday evening so
I'm feeling pretty certain that the headaches are being caused by
something else...possibly my high triglyceride (sp?) problem that has
not been treated since March (due to the meds being bad for my already
compromised liver).
Femara has kept my counts up pretty good...bone cancer still stable
(will have another bone scan next month to check). My liver was the
last to come around but it looks like it might be trying to stabilize.
Terri

Hi Beverly,
I'm in a similar situation, waiting for MRI and CT scans in February
to see if the Zoladex Tamoxifen combo are working to keep the lung
mets at bay.
Cancer showed up as enlarged lymph nodes in my upper chest and neck
too although I had been on Tamoxifen so I immediately blasted with
30 days of rads and had 6 months of chemo. The lung mets showed up
in a mid-chemo CT-scan and I changed oncologists to see if there
might be some new suggestions.
My new onco suggested more hormonals (the same Tamoxifen that didn't
work before with newly prescribed Zoladex to throw me into
menopause). If the Tamoxifen doesn't seem to work this time either,
I'll have the aromatase inhibitor (Femara etc.) options that I
didn't have before when I was pre-menopausal (if I'm menopausal or
not, I've only had my first Zoladex injection a few weeks ago).
Hopefully your PET/CT scan will show lots of tiny details but no
progress in cancer growth.
Best wishes,
Kathy
in Tokyo
glad to have more options

Thanks so much for the news
Praying for her!
Kathy

ANN!!! (swinney family) She put in the new member questionnaire that she does
quilting... let's draft her!!!
Pat
lizanneflowers <lizanneflowers@...
Mary,
I was thinking about in case you decided you didn't want that job.
You could always take a culinary class to learn how to cook better
food for WLS people. Then you could set up your own website and
charge for menus and recipes. See, I'm always looking out for you,
just in case.
And learning...I think there is nothing as entertaining as learning
something new. Which brings me off topic a little. Some of us are
in another group. We were supposed to learn how to quilt from a
member who no longer really is involved here. I was wondering if any
of the newer people might be interested in continuing our education.
We have already had a fabric swap. We are trying to find an outlet
to direct our new addiction. Is there anyone who would like to teach
us to quilt? Thanks.
Lizanne

my doctor just dianosted me with the male form of breast cancer and i
saw nothing about it on the internet and washopping that i would get
some suport and info from the group here i have an ultra sound sceduled
on the 7th of febuary and we think we caught it early because the spot
is the size of a nickle at this point in time if any one has any info
for me it would help me fight and win this battle!!!!