ROLL CALL/CALENDAR UPDATES

2007-06-30 23:26:42

Sharon,
I did my first consult with my surgeon when I was 10 months out and at that
time, he told me I should be at a stable weight for 3 to 6 months before I
even contemplated surgery. He had a vision of doing a lower body lift on me
from the very beginning. I never felt like it was a $ thing, but more that he
looked at my body and envisioned what he could do to make it look better. I
almost didn't care about my butt since I can't see back there, but in reality
he did an awesome job and my butt does not look like a saggy 48 year old
butt any more.
You may not need to have as much done. I lost 185 lbs so I had and have a
lot of excess skin.
Good luck with your journey,
Sue
In a message dated 1/27/2008 4:42:57 P.M. Eastern Standard Time,
septsweety@... writes:
Thank you .. i read what you sent Lizanne. . it just hurts thinking about
it. . i am hoping that i wont need a full body as i was 232 going into surgery.
. I need to get back to the gym and see what i can do for myself before i
have to get plastics but i am only 6 months out and I have a lot of time to
save and think about it and work on it.
**************Start the year off right. Easy ways to stay in shape.
http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

Re: instant help please

2007-06-30 20:25:26

I am on steroids, inhalers for COPD, and have not had any decrease in
appetite. Still fat. Also, since I have been on them for two years
and have not been sick at all, they don't seem to have messed with my
immune system.

honeymoon phase LONG

2007-06-30 16:04:22

When snacking on nuts, it is ok to eat the flavored ones? I love chili lime
almonds!
Pat
Dawn <scottndawn@...
Hi Sharon!
I don't think you're stepping on any toes at all. My surgeon does
say 3 meals a day, with 3 protein supplements in between. He doesn't
want me to eat 6 meals a day. So, my meals are my meals, and my
protein supplements are "snacks" of protein... ie, cheese, peanut
butter, peanuts/almonds, or an actual protein shake (if one is
available).
But I absolutely agree - whatever works for each of us. Each person
is soooo different.
Dawn in PA
Lap RNY 06/27/07
305/278/179/140
HW/SW/CW/GW

Re: [WLS Friendship &amp; Support] Feeling Left Out

2007-06-30 04:43:33

Your doing just fine Lizanne :))
~*Sharon XOXO*~
"THIN feels better than FAT tastes!"
Lap RNY 7/30/07
HW242**SW232**CW172**GW125-130

Am I the last Lisa standing?

2007-06-30 04:14:09

If I am, then I will drop the 'A' at the end that made me different
than all the other Lisa's. :)
Lisa A

Share your survival story on MSN

2007-06-29 14:56:08

My name is Rebecca and I'm a producer for MSN Lifestyle
(http://lifestyle.msn.com) and I'm putting together a special
feature piece on breast cancer survivals for Breast Cancer Month.
I'm looking for women of any age who are breast cancer survivors or
are currently undergoing treatment for breast cancer and are willing
to share their story and photographs of themselves. What I really
want to emphasize in this story is how you survived breast cancer -
whether it was the support of your best friend or taking a jog
through the park every day. I want you to be a source of inspiration
and courage to our readers who may be going through breast cancer.
If you'd like to be included in this piece or have additional
questions, please e-mail me by September 21st at rebecca(dot)pattee
(at) microsoft.com. If you are willing to participate and share your
story, I ask that you submit at least four photos of yourself and
respond to a set series of questions.
Thank you,
Rebecca
MSN Lifestyle

Re: [Stage IV Breast Cancer] Tumour markers

2007-06-29 11:20:15

Thank you very much. This is most helpful. sue

honeymoon phase LONG

2007-06-29 04:33:23

Yes. . just watch for sugars.. but that will be a few weeks out from your
surgery . .nuts, even chewed to a pulp can still scratch the inside linning of
that new pouch that is healing..
~*Sharon XOXO*~
"THIN feels better than FAT tastes!"
Lap RNY 7/30/07
HW242**SW232**CW169**GW125-130

Re: [WLS Friendship &amp; Support] As others see us

2007-06-29 00:03:02

Lizanne, just the facts... no flattery. It's very hard to see ourselves
objectively, and I think it's human nature to judge ourselves harshly.

No one asked about my hair... they didn't even ask about the five stitches in my
face!!! I guess because they were so tiny it just looked like the mole was
still there. LOL

Pat
--- On Wed, 7/2/08, lizanneflowers <lizanneflowers@...
From: lizanneflowers <lizanneflowers@...
Subject: [WLS Friendship & Support] As others see us

Thank you instant helpers

2007-06-28 18:38:44

Hi Folks
I went to my family docs tonight ~ absolutely no help at all. A new doc, not
my own one.
Told her I had lost 6 lbs last week. Was there a blood test that might find
out why? ~ No
Wouldn't do any tests to see if there was anything going on, said it was up to
the cancer centre to pursue this. (passing the buck me thinks!!!)
I asked could I have my thyroid tested ~ No
Said I had thought about having some antidepressants as they increase appetite
and weight. Had taken a list of drugs I thought OK some from those who had
posted back, but some of those not here in UK. Could I have a short course ~ No
I told her I was on chemo now did she want to put it on my repeat script for
information only (as they did when I was on Zometa) ~ No
Door was held open for me so my cue to go
I wanted to ask if she knew any words other than 'NO' but I refrained.
Absolutely appalling!!!
Many thanks to all those who wrote in. Anyone offering a fat transfer?
LOL Velvet X (UK)

The End of A Friendship

2007-06-28 12:11:49

I feel completely torn apart. I had a wonderful friend who was such
a bright spot in this battle. A month ago we had an argument. 2 days
later he changed his phone number and banned me from Instant
Messaging him. He also cancelled his trip to meet me in Las Vegas
for a fun weekend.
He had always said he understood the moods, the anger and lashing
out, the saddnss and neediness i was showing. I guess I pushed too
far. I had been an emotional wreck until just prior to meeting him.
Our friendship started out great. We would talk and laugh about all
sorts of things. I thought I was through with cancer. When the
cancer came back I was devestated. I was harsh and contolling and
awful to be around. In July I was rushed to hospital for liver re-
section. I had been vomitting blood for days prior.
When I was released from hosp. my friend told me some friends of his
did not believe that I would be released within a week and therfor
they thought I was making up a story about having cancer. He said he
didn't but that but deep down I wonder.
I won't deny I've been a walking psycho the last 7 months.
Demanding, controling, resentful, angry, The moods and anger come so
fast I have no time to censor my speach.
Now I am in the active process of dying. Cancer doesn't kill you
it's the organ failure. This past month (and I know this heartbreak
over my friend has contibuted) every test comes back with more bad
news. Yesterday I was told I have "6, 8, 10 (max) weeks until my
liver fails.
My greatest hurt and regret is that I am going to die without my
friend who means so much to me. I have called and left voicemails at
his studio phone, emailed everyday sometime multiple times, I've
done everything but fly there and stalk him lol. To beg him to
forgive me and be my friend and help me through the last months.
I don't want to die without having spoken to him. There are things I
want to tell him. How much he meant to my life.
His best friend has blocked me as well so I can't ask him for
assistance.
My heart is broken and it's killing me faster than cancer.
I sent him a coupl of pictures so he could see I'm not well and am
in the last stage. Still he hasn't answered.
I don't know what to do? Does anyone have any advice?

Re: Great Group

2007-06-28 06:15:21

Cindy,
The dicision to have this surgery turned out to be a Godsend to you
for more than one reason. Who knows when they would have found your
cancer if you hadn't been contemplating this surgery. I am glad they
got rid of it all in one proceedure. The pap is a pain, but at least
you are living.
I am glad you like this "support" group. We really try to be
supportive. I want all for us to succeed. I am looking forward to
giving you the support you will probably need after your surgery and
hope you will pay it forward.
Thanks for joining and keep us posted about your date. I bet you
don't have a surgery angel yet. We will all volunteer when your date
is set. We are glad to have you ae a member.
Lizanne

Welcome new member RaCina!!

2007-06-28 02:56:16

1. Name: RaCina
2. City and State: East Syracuse NY
3. E-mail Address:racina@...
4. Are you: Considering Surgery, Pre-Op
5. Date of WLS: March 31
6. Surgeon's Name and Location: Dr Matthew Fitzer - Utica NY
7. Type of Surgery: Lap RNY
8. Highest Pre-Surgery Weight: 230
9. Insurance or Self-Pay: Insurance
10. What is the name of the insurance company that covered your WLS (if
applicable): MVP
11. How did you hear about this group?: Email
12. Birthdate: June 1, 1960
13. Occupation: Retired nurse at this time.
14. Married or Single (if married what is your spouse's name?): Rick
15. Do you have children? If so, what are their names? 2 adult children,
Greg and Autumn and 2 grandchildren Laquann and Alyssa, everyone lives with
me and hubby!!
16. Hobbies: beading, sewing for Barbie dolls, fishing, camping, these are
just some of my interests.
17. Anything else you would like to share with other members: Just ask I
would be happy to answer any questions

hi again,

2007-06-27 18:21:54

to anyone who has pain and inflammation of the joint due to arthritis.
i took dr. weils recomindation of ginger,tureric,rosemary,oregano,holy
basil,greentea,hu zhang,baikal skullcap, chinese goldthread and
barberry softgel capsules, at the health food store. the name is,
ZYFLAMEND. it has helped me get out of the wheel chair. it works on
the inflammation response,promotes healthy joint function and normal
cell growth. i felt the difference in two days. did ask my dr. first,
he said it can not hurt. and it does not that much :-)
pat, my prayers and thought go out to you.
god bless to all,
rosie s

Re: [Stage IV Breast Cancer] The End of A Friendship

2007-06-27 15:15:09

I am so sorry to hear you have been going through all of this. Why don't you
write him a letter (snail mail) telling him how you feel and see what happen. I
will keep you in my prayers.
Hugs
Marianne
Breast Cancer Patients Soul Mates for Life
http://www.geocities.com/chucky5741/breastcancerpatients.html
BreastCancerStories.com
http://www.breastcancerstories.com/content/view/433/161/
Angel Feather Loomer
www.angelfeatherloomer.blogspot.com
Check out my other ornaments at
www.geocities.com/chucky5741/bcornament.html
Lots of info and gifts at:
www.cancerclub.com

Oatmeal &amp; Jack in the Box

2007-06-27 05:55:23

It's been more than a decade since the FDA began officially backing
claims that oatmeal reduces cholesterol. Now new research shows that
oatmeal may do even more for us, like reduce blood pressure, weight
gain and the risk of type 2 diabetes. Go eat some! Mmmmmm!
***Jack in the Box has some new lighter menu options, the most
impressive being their GRILLED Chicken Strips! A four-strip serving
has only about 180 calories and 2g fat (POINTSŪ value 4*). But go easy
on the teriyaki sauce it's served with (that adds about 60 calories
per oz.). Also keep an eye out for the company's new "Smart Choice"
logo, which'll point you in the direction of their lighter options.

re: Cindy

2007-06-26 23:26:57

Hi Cindy.. so glad you came out of hiding. Being in the group talking is a
much better place :-)
Sorry to hear about the cancer but very happy they got all of it. Paps are
not as bad as mamograms so you will be in and out before you know it.. I
would rather be sure then not know.
Sounds like you are well on your way for the surgery. The date will be here
before you know it and you will join everyone in the losers lounge enjoying
the view of the cabana boys too.
--
Mary in FL
LAP RNY 1/26/2007
317/296/167/140
BS/ SW/CW/GW

Re: [Stage IV Breast Cancer] Thank you instant helpers

2007-06-26 18:26:21

Velvet I am sorry the dr acted this way. If it were me I would go to the
hospital that she is connected to or the clinic and ask to talk to the patient
advocate.
You can have all the fat you want from me!!
Hugs
Marianne
Breast Cancer Patients Soul Mates for Life
http://www.geocities.com/chucky5741/breastcancerpatients.html
Anxiety Depression and Breast Cancer

Re: UPDATE, Six Week Post Op

2007-06-26 17:53:08

Hi Monica!
That's fantastic! You are Chelsey are doing great!!! I'm proud of
you both!
Dawn in PA
Lap RNY 06/27/07
305/278/179/140
HW/SW/CW/GW

more about tumour markers from velvet

2007-06-26 04:17:59

hi.
tumour markers are proteins shed by the cancer though can be shed by non
cancerous problems hence you can get false positives, this is why the TMs are
never used as a stand-a lone test and are used in connection with other
diagnostic tools like CT, bone, x-ray MRI etc. plus history of symptoms from the
patient.
I never had them taken when I was pre stage IV. or if i did I wasn't told so,
you must ask if you are earlier than stage iv and see if they are of any value
but remember they are an indicator and not a definitive test.
Hope this helps,Velvet (UK)

Questionnaire Request

2007-06-26 00:22:45

Hello Everyone,
I hope this finds you well. This looks like a very supportive group
and it is a pleasure to be here.
I am in the process of completing a PhD on quality of life issues in
breast and prostate cancer. I am doing this due to my own personal
experience of having cancer in my family.
If anyone would be willing to spare some time to complete two
questionnaires for my studies, I would really appreciate it. The
questionnaires are completely anonymous and no names need to be provided.
If you are interested or have any questions, please contact me at:
nicnac234@...
Thank you in advance for your help.
Best Wishes,
Nicola

Re: hiya

2007-06-25 19:53:12

Welcome, Mike! Congratulations on your weight loss
(I just *love* your editorial comments on the 5-day pouch "test"! I
though maybe my doc and I (and was it Ally's doc, too?!?) were the
only ones who thought this was insane especially for people less than
a year out from surgery!)
Lora

Debb, Steph, Sha etc from Velvet

2007-06-25 15:12:26

Hi folks
Debb I hope you receive this before you go off for your op later today. Don't
ever think the word 'baby.' Doesn't apply to we BC girls. Every op I have had I
have done it alone. Years ago my sons were too young to fully understand and I
protected them by saying I don't need you there, it's only a little op then as
years progressed my sons weren't in the country and I did it alone, now they are
grown and capable I think if they were there I would just fold and be worse so
I've played the protection game again and insisted they not be with me but
secretly I wished they had, I am a fool really. It is a very lonely business
going down to theatre but today imagine all of the group in there with you
fighting for your hand, hugging you, keeping you safe, just picture it and our
spirits will be with you, over land, over seas and from over continents. You
will be just fine and I/we all wish you a speedy recovery (you can also imagine
us there upon waking)
Steph, I think it was you that has asked about promoting hairgrowth. Years ago
I trained as a trichologist and was told that it's not so much what you massage
into your scalp as the very massage itself which stimulates the hair follicles.
Try just sitting in the evening and gently massaging an area with the balls of
your fingertips (if you had a fingerprint the centre is the ball) (no your
fingers don't have balls!) Hope this helps
Sha (and Ruth I agree with your post) I read your posts about your mother,
surely the onc can do a blood test for tumour markers, liver function, + there
are ar range of bood tests that are not costly and then there is a CT scan, a
lot less cost than a PET scan, why is the onc being so obstructive? if it was
his mother......................... Firstly get your mum to agree if only to
satisfy your mind if not her own and then persist, is this doctor playing GOD?
hope this helps, LOL Velvet (UK)

Re: [WLS Friendship &amp; Support] Welcome new member RaCina!!

2007-06-25 04:10:31

Welcome to the group Racina!! Im a nurse as well. .
~*Sharon XOXO*~
"THIN feels better than FAT tastes!"
Lap RNY 7/30/07
HW242**SW232**CW169**GW125-130

Jessica

2007-06-25 01:46:10

Its 3:05pm here on Sunday and I did try and call Jessica again and got a
recording. . That girl moves around too much LOL any. . i am trying Jessica!!!
~*Sharon XOXO*~
"THIN feels better than FAT tastes!"
Lap RNY 7/30/07
HW242**SW232**CW170**GW125-130
--
I am using the free version of SPAMfighter for private users.
It has removed 3868 spam emails to date.
Paying users do not have this message in their emails.
Get the free SPAMfighter here: http://www.spamfighter.com/len

Re: [WLS Friendship &amp; Support] Welcome New Member Melanie!!

2007-06-24 22:53:48

Melanie,
Welcome to the group . .as i mentioned earlier. . im also a Nurse. . Im so sorry
to hear about the loss of your daughter. .
Your surgery is just next week!! Ask any questions you might have. . just a few
suggestions for the hosp ... take chapstick, brush, robe, slippers, good tasting
toothpaste and mouth wash (your really dry after surgery) a pillow for the trip
home in the car.... any chargers you might need for phone or MP3 player
etc...some take something to read, but for the most part . . never get to read
em LOL Good luck w/ your surgery!!
~*Sharon XOXO*~
"THIN feels better than FAT tastes!"
Lap RNY 7/30/07
HW242**SW232**CW169**GW125-130

Out of Town

2007-06-24 17:25:54

Hello Friends. I wanted to let all of you know that I will be out of town
beginning tomorrow and I won't be back until Wednesday night. I'm not taking my
computer with me, so I won't have access to my e-mail.
I will miss all of you while I'm gone, and I shudder to think how many e-mails I
will have to read when I return. ;)
Perhaps the hotel I'm staying at will have a business center I can use, but I'm
really going to try and focus my spare time on school work. I'm so far behind
from having to work so many hours.
Anyway....TTFN (that's "Ta Ta for Now" for you non-Tigger fans...lol)
Love you all.
~Ally~
Atlanta, GA
Lap RNY 7/12/07
251/237/174/130
HW/SW/CW/GW

lymphoedema ~ never had it from Velvet

2007-06-24 11:31:08

hi all
I have read a lot about Lymphodeoma in the last few days and thought i
would send you some words of encouragement.
I had 5 nodes removed in 1996, (all clear) had a quadrentectomy, had
mastectomies and implants in 99, (due to more lumps and radiotherapy burns down
to the sternum bone) have flown from Uk to Alberta Canada via Minneapolis, USA
Miami, USA to Orlando from UK to Portugal, Spain, Canary islands, Greece and
probably elsewhere that I can't remember right now and have to tell you I have
never had lymphodema. It wasn't untill 8 years after ops that I was told not to
use that arm for bloods, pressure, IVs or anything else and have never had any
trouble with it, not an ounce of trouble. I have had no massage, no treatmnet no
sleeves. This isn't to say that you won't this is to say that I haven't,
fortunately.
Just a view of the brighter side.
Velvet (UK)

Re: [WLS Friendship &amp; Support] Go see him again

2007-06-24 04:49:21

LOL, I am not going back. I was not interested and I am sure that when I left
he thought I was married. Anyway, I am certainly not interested in dating. It
was just the shock that someone was that forward with me and he wasn't pushing
ice cream bars! I will tell you though that he was amazed at the difference
between me now and my old license. He brought both pictures up side by side to
check them out. Funny.
Lisa A
lizanneflowers <lizanneflowers@...
OR you have lost so much weight that you don't look like your picture
anymore....OR you lost your license, and you were wondering if you
left it there. Make sure you smile.
Lizanne

Re: [WLS Friendship &amp; Support] Out of Town

2007-06-23 17:56:25

Have a safe trip Ally...check in when you can :))
~*Sharon XOXO*~
"THIN feels better than FAT tastes!"
Lap RNY 7/30/07
HW242**SW232**CW169**GW125-130

Re: Thank you instant helpers

2007-06-23 13:38:08

Velvet, it is my understanding that when you have cancer and are
undergoing any kind of treatment, other doctors let your oncologist
treat everything. My oncologist referred me to the pulmonary
specialist and the dermotologist and then he is sent all pertinent
information from them.
That is as it should be. I have psoriasis and the dermotologist says
that most of the treatments for it mess with the immune system and
that he will not give them to a cancer patient. Methotrexate will
clear psoriasis, is used only for severe cases and twice in my adult
life was given it by a dermotologist. When I told my oncologist, he
said there was no reason why I couldn't have methotrexate and that it
might even kill a few cancer cells. So he is contacting the
dermotologist to tell him that.
The dermotologist is erring on the side of caution because you can
only take so much methotrexate in a lifetime and he sure doesn't want
to be the one to give me a liver damaging dose.
I would sure rather have a cancer specialist/oncologist in charge of
my health care than an internist.

Another newbie :)

2007-06-23 07:17:55

1. Name: Jennifer
2. City and State: Fairfax, Vermont
3. E-mail Address: jennlpn@...
4. Are you: Considering Surgery, Pre-Op or Post-Op: Considering
5. Date of WLS: pending
6. Surgeon's Name and Location: Dr. Laurie Spaulding
7. Type of Surgery: unsure
8. Highest Pre-Surgery Weight: 425 lbs
9. Insurance or Self-Pay: Hoping Insurance
10. What is the name of the insurance company that covered your WLS (if
applicable):
11. How did you hear about this group?: Invitation from a moderator
12. Birthdate: 08/10/73
13. Occupation: Nurse
14. Married or Single (if married what is your spouse's name?): Single
15. Do you have children? If so, what are their names? My cat - Clover :)
16. Hobbies: Crafts, movies, reading, internet surfing/games
17. Anything else you would like to share with other members:
My interest in surgery was a do or die situation from my
Endocrinologist. Now I'm just waiting until my initial appt. with the surgeon
to see what options are and what everything entails. I've done lots of research
and certainly feel much better about having this type of surgery. I was really
against it - being a nurse I knew the complications and have actually seen worst
case scenarios. But I now understand that nothing I do is working and I need to
see the other options available to me.
I'm hoping to learn all I can before I go for my initial visit and I
hope I can help others in some way. Even if it's just to support on their
journey to a healthier self.
Thanks for inviting me to this group!!
Jenn in VT

Cancer and Skin Care

2007-06-23 05:32:20

Cancer and Skin Care <http://www.clickaudit.com/goto/?40173
As we recognize Breast Cancer Awareness Month, I could not help but
think of women whose skin changed during radiation and chemotherapy and
they are not sure what to dothe good news skin problems are usually
short term and easy to fix.
Read More.. <http://www.clickaudit.com/goto/?40173

Re: [WLS Friendship &amp; Support] oprah

2007-06-22 15:20:38

For folks on west coast Oprah is supposed to have show about 340 lb teenager
wanting gbs. Its at 4:00 pm pacific, probably already aired on east coast. I am
gonna watch see what they they say,
Judy
Friends Are Our Angels on Earth
(No. California)
262/246
HW/CW

Re: The End of A Friendship

2007-06-22 12:21:20

Was this a person you met online but never met in person? If that
is the case, it is likely that he was lying to you about who he was.
I hope you are able to find some kind of peace with this situation.
Kelli

Re: [WLS Friendship &amp; Support] Another newbie :)

2007-06-22 07:28:04

Welcome to the group Jennifer!! Boy its nice we are getting lots of nurses to
join. . Im also a nurse. . ask any questions you might have .. thats what we are
here for. .:))
~*Sharon XOXO*~
"THIN feels better than FAT tastes!"
Lap RNY 7/30/07
HW242**SW232**CW169**GW125-130

Smoking - Joanne

2007-06-22 01:19:14

Joanne-
I'm so happy to hear that you have been able to stay away from the cigarettes!
Kudos to you. I know it is so hard to quit.
~Ally~
Atlanta, GA
Lap RNY 7/12/07
251/237/174/130
HW/SW/CW/GW

Biopsy Marker May Predict Breast Cancer's Course

2007-06-21 18:40:35

A new tumor-cell biomarker may predict how well women
do after they're diagnosed with breast cancer, researchers report.
Click here to find out more:
http://www.informationonbreastcancer.info/breast-cancer.htm

Re: [WLS Friendship &amp; Support] Southern Heat/Rendered Fat - Seattle - rain

2007-06-21 14:15:02

Living in the desert, I don't miss the snow one bit... but I do miss rain. I
love it when it rains! Not sure how I would feel about it if it rained all the
time though... On the very few occasions we get rain, I love that it waters
everything so we don't have to get out and do it! It's actually raining here
right this minute... but it won't last long :/
Pat
joanne <joanne1049@...
people in Seattle don't tan, they rust!
Nope! I had never heard that before but have no fear, I will start
circulating that up here immeadiately!!! I wonder why no one ever told
me? Maybe they didn't want to burst my bubble of being in love with all
the geography & rain here. I just feel all those Christmas trees need a
ton of rain to stay beautiful so, it usually doesn't get to me unless
it is two weeks in a row, with no breaks. Then sometimes when it gets
dark at 4 in the afternoon I feel a little bummed but it all works out
by summer time. (which if it's 90 degrees I HATE!)
The big secret is we all say the weather is 'nasty' but I believe we
don't really mean that do we? And those that do mean it need to get out!
Joanne

Velvet's weight loss and Dr appointment.....

2007-06-21 12:07:09

Hello
I emailed my breast care nurse at my cancer hospital and gave her the run down
of what happened last night with my family doc. Email back says:
They will take up my complaint about this:
reference me/numbers
Dear Dr .....
When a patient visits a doctor for a health issue it is the responsibility of
that doctor to provide a duty of care ~ not to dismiss the patient or pass them
on unless making a formal referral and in this instance the patient should have
been fully assessed, examined and the appropriate investigations made.
Our patient came to you with a request for assistance with weight loss, we
feel it is not unreasonable for you as a practicioner to follow this up rather
than dismissing this patient.
We will be seeing her on......... for her current probems.
It's addresssed to the Practice Manager
I will be writing as well to say how this affected me and quoting what I have
always been told and that is....if you have any problems at all come and see us
I shall enjoy writing the letter.
I sat in the car and cried last night after seeing this doc, feeling a bit
sorry for myself, but today I am back to 'action' time. The problem has turned
into a challenge now.
And when I am back in action...... watch out!
Many thanks for your help and the offers of fat... if only.....
LOL Velvet x (UK)

So much love &#43;++ from Velvet

2007-06-20 21:00:30

Hello all.
I have had computer problems and have been off the Net for 8/9 days ( I was
mortified) and have been reading through 550 or so messages, (I belong to three

hair dye?

2007-06-20 19:09:27

Hello to everyone, and I hope you are all feeling well today. Just a
quick question. Does anyone have any reccommendations on hair dyes
that are allowed when a person is on Xeloda and Avastin or any chemo?
My mother's doctors told her that the scalp is very sensitive and
could be burned by most of the hair dyes out there. With all of her
treatments over the last 5 years, she has lost her hair. She is so
sweet and luckily with this round of treatment, she wont lose much
hair, so she wants it to good (without all the grey). I was thinking
maybe henna dyes, any suggestions? Thank you and I pray for all of
you.
Tracey

My fear tonight

2007-06-20 12:04:23

Hello all. I was diagnosed with breast cancer in October 2006.
Since then I've had surgery and have started treatments. It's been
the scariest thing I've ever had to deal with. The fear has been an
ongoing struggle for me. Before the surgery my Dr put me through
many tests and told me that I didn't have cancer anywhere else. And
at the time of the surgery the Dr said he was sure that he got all of
it. I had cancer in my left breast and in the first two lymph
nodes. He was confident about the surgery. I only have to have 6
treatments. I started in December and I'm half way through. I only
have 3 left. With the end of my treatments nearing I'm filled with
fear that the Dr's are wrong and the tests are wrong. I'm filled
with fear that maybe I have it somewhere else. I don't think that I
do because of the tests I've had and there's no logical reason to
believe that it's anywhere else. But the fear is almost overwhelming
to me. I thought if I wrote you all you might help me deal with it.
God has been so good to me. I am 45 years with two sons, a mother,
and a little dog (((smile))) who need me. I've done really well with
my treatments. I just need to be reminded that the fear isn't
logical and that I'll be ok. I visit this group every night and read
your stories. I appreciate you all so much. I would appreciate your
thoughts or comments. God bless all of you.....Donna

Re: [Stage IV Breast Cancer] Velvet's weight loss and Dr appointment.....

2007-06-20 05:32:39

Good for you Velvet! Neither you or anyone else should be treated like that. You
remain in my prayers.
Hugs
Marianne
Breast Cancer Patients Soul Mates for Life
http://www.geocities.com/chucky5741/breastcancerpatients.html
Anxiety Depression and Breast Cancer

Re: [WLS Friendship &amp; Support] Being new

2007-06-20 04:48:10

Thank you for that, Sara. I'm sure there are many shy people out there who need
advice and support. I don't consider myself to be at all shy, but coming into a
group of people who already know each other can be uncomfortable for anyone, at
first. For people who are shy about sharing personal things before they get to
know the others, they could join in by simply asking more questions... and then
acknowledging the responses to their questions. The thread will just take off
from there. You can have a "conversation" without revealing more than you are
comfortable with. And if someone asks you a question that you are not
comfortable answering, there is certainly nothing wrong with saying just that!
It doesn't take much at all to truly be a part of the group.
Pat
Sara Schmucker <sara42134@...
Pat,
You're exactly right. It is necessary for us new people to put ourselves out
there if we want to feel included. I know that because I've got a long history
of online chatting and know what it's like to break into a new group. I also
know how I feel when I'm in a group of strangers in real life. Those feelings of
insecurity are much easier to overcome in an online group than in reality, but
that doesn't make them any less real. Being shy by nature just makes it harder.
However, I intellectually know that about myself so I do take a realistic
viewpoint of it. I know that in time I become more at ease with revealing things
about myself.
I also appreciate all the helpful information I have already received from the
group, especially in regard to migraine medications.
Sara
Lap DS
360/353/267/160
HW/SW/CW/GW

Re: [WLS Friendship &amp; Support] I got a Dat

2007-06-19 15:09:33

Tresha,
Congrats on your date, it'll be here before you know it. Learn as much as
you can in the next 6 weeks.
Congrats,
Edie

Re: [Stage IV Breast Cancer] hair dye?

2007-06-19 13:00:50

Wow Tracey I would have no ideas. Have you asked a hairdresser?
Hugs
Marianne
Breast Cancer Patients Soul Mates for Life
http://www.geocities.com/chucky5741/breastcancerpatients.html
Anxiety Depression and Breast Cancer

[WLS Friendship &amp; Support] Another newbie :)

2007-06-19 06:28:19

Thanks for the welcome - don't worry I'll be asking lots once I see that surgeon
:)
Jenn in VT

weightloss ~ Velvet

2007-06-18 20:41:24

Hi folks.
Thanks to all who suggested various things for increasing weight.
I should have said I have a dairy intolerance, so can only have small amounts
to keep my tolerance threshold up or if I over do I am repeatedly sick for a
couple of days. I have tried the Ensure fruit and disgusting, the Ensure milky
one just came up.
Complan, I shall look up on the Net to see if it has dairy content and if so,
how much.
Thanks for all the offers of fat transfer.
A friend suggested a boxer's diet (not the dog, the people who box) the
emphasis is on protein so I will call the dietician and ask if it is worth a
try. I was weighed yesterday and now just on 96lbs so lost again in a few days
even though I am eating reasonably well.
I have got to the stage where I am really worried, if only I could maintain
the weight I am I could see a light at the end of the tunnel.
I am going to ask for some tests for diabetes insipidus, (diabetes mellitus
has been checked and all OK), have sent an emeil to my onc to get the team
thinking before I go up again on 20th. I can't believe it is the chemo I am on
as only on the second cycle and have been losing weight for a few months.
Any further ideas that doesn't involve dairy products please post.
LOL Velvet (UK)

Recipe Buffalo Chicken Dip Great for Super Bowl

2007-06-18 20:31:14

Hi Guys
Wanted to pass on a recipe that I really like. I have changed it some
to make it low fat. So may feel it has to much fat if you do than
don't make it! I like really spicy foods so this seems to give me
some protein and goes down easy.
2 large cans of chunked chicken breast chopped
2 8oz low fat cream cheese bars
3/4 cup franks red hot sauce
8 oz low fat ranch dressing
2 cups low fat shredded cheddar cheese
1 tsp garlic powder
I added about a half bunch or green onions cause I thought it would be
good and I needed to use them up. You just throw all this in a crock
pot and let it heat up and melt. you can use celery to dip out or
baked tortilla chips. I just get a cup and eat it. I went to a site
and calculated what a serving has approximately and it has about 16
grams of protein for 4 ounces. That is a rough estimate.
TTYL
Rebekah

I have a short story to share

2007-06-18 15:15:22

My ex-husband called me and asked if me and the kids would go to dinner
with him. For you who do not know, he cheated on me and refused to
take me anywhere or have his friends to our house because I was too
much of an embarrassment when I was heavy. He has not seen me since
last Oct. So we met at the stupid KFC (of course he picks a place
where I would have a difficult time finding food to eat) and for the
first time in his life he had nothing ugly to say to me. Of course, he
did not compliment me either except to say that he thought that I might
be thinner than him now (DUH!) I have to tell you that I looked GOOD
too. I had on designer jeans and a really sharp shirt, jewelry, nice
nails, and adorable boots. When we were in line, people were turning
arounf asking me where I get my nails done, and where I found my
necklace.....he was just standing there. IT WAS GREAT! I feel like I
finally got my revenge. Now he can go home to the tramp he was playing
with while we were married and think about me. :) Ladies and
gentlemen, it may be time for me to start to date.
Lisa A

Magnesium and Calcium Citrate - was: Fluid Intake

2007-06-18 07:08:02

It depends. Most days I take 3, spaced throughout the day. If I feel
like I could use a boost, I take 4 one day, then revert back to 3. If
you take too many, you will be very busy! ~lol~
Here's a link to see what I use:
http://www.naturemade.com/ProductDatabase/prd_prod.asp?
tab=Products&section=2&productid=56
You can print out a coupon to use, also! The coupon link is right
there for you!
I see on their website that they have just added calcium citrate to
their product list. I'll have to look for it the next time I'm at the
store. I hope it's a 500 mg. dose instead of a 400 mg. dose like
Citricals are. That way I can take one less dose per day! Woohoo! I'm
having a hard time juggling 5 doses of Citrical and keeping 4 hrs.
between a dose of that and my thyroid med. Having one less CC pill to
take would make it so much easier for me. I'm thinking I might have
to go back to UpCal D just so I have only 4 doses instead of 5.
Jill
lap RNY 12-03-07
- 22.5 lbs.

Re: Welcome new member RaCina!!

2007-06-17 23:52:15

Hello RaCina! Welcome!
Jill
lap RNY 12-03-07
- 22.5 lbs.

Re: Welcome New Member Melanie!!

2007-06-17 14:40:20

Hi Melanie! I'm glad you're here!
Jill
lap RNY 12-03-07
- 22.5 lbs.

Who is from Bedford UK?

2007-06-17 12:25:49

Hello
I understand we have a member from Bedford UK, well I am two miles out of
Bedford and somehow I have missed your posts but have been extremely busy just
recently and haven't had time to read all the messages.
Please post so I know who you are and maybe we can meet up?
Velvet (UK)

Re: [WLS Friendship &amp; Support] I have a short story to share

2007-06-17 06:42:42

Lisa, i know the feeling. YOU GO GIRL! jerk!
you deserve better, go out and get it!
Judy - my grandson is almost here - countdown to April 15!
Myspace: www.myspace.com/nynativecagirl
"Everything Is Easier With Friends"
Kaiser-Fremont, CA
262/249
Begin/Current

Re: Another newbie :)

2007-06-17 05:59:16

Hi Jennifer, welcome! Ask all the questions you want. This group loves
to share personal experience with one and all!
Jill
lap RNY 1-03-07
- 22.5 lbs.

Re: [Stage IV Breast Cancer] weightloss ~ Velvet

2007-06-16 15:14:49

Velvet I wish I had some other suggestions but at the moment I don't. However
you remain in my prayers.
Hugs
Marianne
Breast Cancer Patients Soul Mates for Life
http://www.geocities.com/chucky5741/breastcancerpatients.html
Anxiety Depression and Breast Cancer

Catching up.......again, lol

2007-06-16 10:19:49

Dear Folks:
Well, I've been off line again for over two weeks I think, so I'm way out of
touch, lol. I've just been sewing & napping, lol.
Friday I got a call from my doctor's nurse who told me my CA27-29 has once
again skyrocketed.......sigh. I'm going back in on Monday for a re-test but I
have a feeling it's a true reading. The chemo I'm currently on has worked
the longest so far of all the chemos I've been on, so I guess it's time it
stopped working, lol.
The following Tuesday (July 5th) I have a doc appt and we'll discuss the new
test and probably decide to change chemos. I've been very tolerant of the
current selection (Taxotere) so I hope the next one is just as "nice." My
head hair is thinning as well as the rest of my body hair, but you can't tell
just by looking at me. :-) I can tell because it's me, lol. I told my (bald)
hubby that maybe this next chemo will make us twins, HAHA! If it does I
think I'll get a wig. I'm still deciding if I want a short hair or a long hair
one, hehe. I haven't cut my hair in the three years I've had cancer, but my
hair still isn't all that long as it grows slowly, but it's long enough to
cut off for Locks of Love. I have always planned on doing that if the next
chemo promotes baldness, and do it BEFORE I really start to have it falling
out.
Might as well make good use of the hair!
Well, hello to all and I look forward to hearing from you.
Pat B

Re: Is this loving and supportive?

2007-06-16 09:30:51

I had already replied privately to both Terri and Ally and Lizanne
after Terri's original post and before this one. Now I feel like I
should share my thoughts more publicly.
I *know* that no one here would do anything to intentionally hurt
anyone else. I also know from experience, though, that when you
have posted something that is difficult or emotional and then that
post gets "hijacked", as they say, and then most of the replies are
to other people or on a completely unrelated project, it can make
the original poster feel as if his/her original post (and the
feelings contained therein) was unimportant... and, perhaps, that
the poster herself/himself is unimportant. When you're already
struggling, this can be very hurtful.
Perhaps if we could all just be a little more cognizant of starting
a new topic entirely, or at least changing the title of the post, it
would avoid anyone feeling discounted.
Lora

How it goes

2007-06-15 21:07:00

Hello, ladies. As you can see, I've not been writing very often. Typing on my
computer is practically impossible for me, and I rely on Leo to do all my typing
for me.
Parisan has asked for even one line about how I'm doing. Basically, I struggle.
I have pain that we're working on to control, have periods of going in and out
of reality, though that's been a little better lately since we adjusted meds,
and I struggle facing the ultimate truth. I'll make this brief.
Sending all my love,
Doris

honeymoon phase LONG

2007-06-15 21:06:54

Hi Pat!
I don't go for the flavored ones because of the salt content. They
actually burn my lips! Also, just a reminder to wait a few months
before trying nuts after your surgery. It took me almost 5 months
before I could eat them without feeling discomfort while digesting
them.
Dawn in PA
Lap RNY 06/27/07
305/278/179/140
HW/SW/CW/GW

Re: [Stage IV Breast Cancer] How it goes

2007-06-15 15:48:01

Doris,
You have been on our minds and I am glad you posted. I am so sorry to hear you
are in so much pain. I will continue to keep you and Leo in my prayers.
Hugs
Marianne
Breast Cancer Patients Soul Mates for Life
http://www.geocities.com/chucky5741/breastcancerpatients.html
Check out my breast cancer ornaments at:
http://www.geocities.com/chucky5741/bcornament.html
also check out my other ornaments and lots of nice gifts at:
http://www.cancerclub.com

Re: Out of Town

2007-06-15 02:38:22

Bye Ally! Have a safe trip and we'll see you on Wednesday!
Dawn in PA
Lap RNY 06/27/07
305/278/179/140
HW/SW/CW/GW

Re: Dovey's Surgery Day, 2/4/2008, 12:00 am

2007-06-14 20:35:12

Good luck today, Dovey! I hope you have a surgery angel to let us
know how you're doing! If not, please be sure to check in as soon as
you get home - and then go rest! *L* Meanwhile, make sure you get up
and walk as soon as you can, and sip your fluids. Take care!!
Dawn in PA
Lap RNY 06/27/07
305/278/179/140
HW/SW/CW/GW

Re: [WLS Friendship &amp; Support] Scale Issues - Lizanne, losing SLOWLY

2007-06-14 16:07:21

Lizanne, I'm sorry you're so frustrated right now. I just wanted to
let you know that, although I have not gained any weight (and I
don't believe for one minute that you have gained any actual FAT,
either, BTW -- my guess is that it's a combination of stool and
fluid retention!), I had my surgery 10 days after you did, and I
have only been losing about 1.5 to 2 pounds per week for the last 2
months. Granted, some weeks I lost NOTHING and some weeks I drop
2.5, but still. Yes, it's very frustrating, but PLEASE do not think
for EVEN ONE MINUTE that you have lost all the weight you are going
to lose or that you are going to FAIL. You WILL lose more weight.
Maybe this is just me, and feel free to ignore this if it does
not "fit" for you, but because I had to have open surgery -- and
because the physical healing was SO difficult the first 3 months
(for me, it was the infection, the pain, and the incision oozing
LONG after the infection was gone... for you it was other difficult
issues) -- I feel like, in some ways, I have even more emotionally
invested in making this work than people who had lap procedures and
very few healing issues. (That is NOT to take away from the
seriousness of this surgery for all of us... it's just that what
Lizanne and I endured the first few months was horrible.) I just
hit the -100 pounds mark this weekeend, but I have been a slow
loser, too, especially if you look at what many people who started
out at the higher weights have lost in the same amount of time. I
have stopped looking at other people's signatures because right now
it is hard for me to be constantly reminded of people who lost much
more quickly than I have (especially if they started out at a lower
weight to begin with).
Please do not get discouraged, though! I DARE you to try to find
someone who had RNY, followed the rules, and stopped losing weight
after only 6 months. I'm confident that you won't able to find
anyone. I know we're both struggling with getting in the fluids,
and I know that being sufficiently hydrated DOES affect the weight
loss, so I'll try to increase my sipping if you will...
If you ever want to talk or vent, I'm here.
LOra

Intrathecal chemo

2007-06-14 10:11:24

Hi folks
Has anyone had intrathecal chemotherapy and if so how did you get on?
Velvet (UK)

Joined the Century CLub (yay!) but not feeling/doing well

2007-06-14 08:49:52

My body finally gave up those last 2 pounds, and as of yesterday, I
joined the Century Club. ONE HUNDRED POUNDS gone (FOREVER) from my
highest weight. I thought I would be jumpoing up and down when that
ahppened. Yes, I was happy, but there are just too many other
things going on right now, I guess to lift my mood very much.
For some reason, the fact that I an just now (5.5 months out) down
to a weight that's close to what many of you had as your highest
weight... well, I guess the reality of where I started -- of how
HUGE I left myself get (trauma or no trauma) -- is weighing on me.
I'm trying to let it go, because I recognize that such self-reproach
is not useful or healthy, but it's hard. Knowing that the "big"
losses of the first 2 or 3 months are behind me, and that I am
likely facing having to lose the other 90 pounds 1.5 to 2 pounds per
week is... well... depressing as hell.
I had a kidney ultrasound on Friday morning, and am waiting to hear
on that. No hard evidence of any kidney stones, but I continue to be
in pain off and on. No one seems to know what the problem is, and
my PCP does not want to give me anything for pain until we know
what's going on. Let me just say for the record that Tylenol
SUCKS! I have never had any kind of pain it was useful for (so
NEVER used it in the post, but now have no choice), and this is no
exception. I'm starting to fear that my doctor is going to think
I'm making this pain up.
Add that to the job uncertainty, and the fact that I see absolutely
no way (with having to find another IT job, where I will lose the
4x10 schedule I have had fro several years... and therefore will
lose my one day to see counseling clients during the day) to switch
to counseling full-time (I cannot afford to work for a community
mental health agency... I could barely pay my mortgage, let alone my
student loans... and I cannot afford to quit a full-time job (and
part-time IT jobs in the area I am in are almost unheard of) when I
do not have at least half of a full client load). So unless I can
magically find the energy to work all day at an IT job and almost
every evening and Saturday seeing clients, or can find someone here
about to retire who wants someone to take over their practice of
self-pay clients, I think I wasted $25K on a graduate degree (my
second one, no less) that I am never going to be able to use to
support myself.
Ok, end of whine. I have purposely stayed away from the board for a
few days because I am feeling so down.
The one positive thing I can say is that I found what looks like a
great deal on a recumbent bike on Amazon, and spent part of my tax
refund money on it. (I hope it's as easy to assemble as they claim,
since I will have to do it myself.)
Lora

Bis induced ONJ

2007-06-13 21:50:19

Anyone wishing to read a good easy-read article about ONJ try this:-
http://www.breastcancerupdate.com/bcu2007/2/marx.asp
Velvet (UK)

(Velvet) Osteonecrosis of the Jaw - Bis induced to Hana

2007-06-13 19:16:24

Hi Hana
I could hardly wait to get on the site and tell you my very good news.
My family doctor had written to the Oral max fax after seeing me about the
pain I am in and asked if I was a suitable candidate for neurectomy.
During the week the OMF had discussed my case with a neuro surgeon and between
them came up with two plans for me to consider. (In the meantime I am booked in
for neuro surgery the first week in June)
Plan one is to cut the nerve at the very back edge of where a wisdom tooth
would be if I had one. The result will be that I get all of the lower half jaw
permanently numbed but there is a slight question mark on the ability of my gum
healing as it would need to be cut from the inside and soft tissue have healing
problems tissues too with BIONJ (BIS induced Osteonecrosis of the Jaw)
And plan two, to cut higher up but from the outside and I will permanently
have the lower and upper half jaw numbed and am more assured about the healing
of the tissues ~ should be normal healing.
But....... will have a tiny scar, about half an inch or very slightly more, on
my face near to my ear. I am going back on 23rd to get a local anaesthetic
injection into the higher nerve point to see how I feel about the numbness and
if this covers the area of pain, because whilst we all have a set pattern of
nerves that supply the face and jaws there are individual idiosynchrasies to
take into account.
In either case I still retain motor function, so my lips, tongue and jaws can
still be used at will.
I have already made up my mind that the higher point is the one for me, small
scar versus constant pain, an excellent trade off.
My mood has lifted already. It means I can see an end to the pain that is
blighting my life, it means I don't have to decide between pain and be wide
awake or less pain and be a zombie.
I did the quickest shopping ever today, must be a record, because I was
itching to get home, on to the computer and tell you my good news. I was told,
by the way, that Botox would not be suitable for this.
It is pouring with rain here, absolutely torrents but I think it's a lovely
day today!!!
LOL Velvet (UK)
Loen210@... wrote:
Velvet,
You're so sweet, and great memory! Yes, my tooth removal was helck. Eeek. I
was so unhappy with the process, as I had cut through strings to get a highly
recommended surgeon. But she was so snobby, and never told me, but she
planned on just standing in the background while her resident performed it. It
was
hurting so badly for days. She was forced to help out with the removal
finally (thank goodness though), as the resident couldn't get out my bottom two
teeth, as they had the extra roots. But glad it's over. And I still feel a bit
naked in my mouth without 4 big teeth that were there to chew! :o)
Again, you have such a great name, I love it! Velvet. Anyway, my thoughts
are with you to help with the pain and find help. I was telling my father about
it and your case of INJ. He reaches out too.
Warmly,
Hana in Boston
==================
_Re: Osteonecrosis of the Jaw - Bisphosphonate Induced _

Re: 3 meals a day

2007-06-13 14:52:08

Do you always have 1000 calories a day? I know I NEVER have that many.
I feel better when I don't eat. When I eat, I just feel sick and then
wish I had not ate what I did. I usually have cottage cheese and pears
in the late morning and then I will have cheese and wheat thins later
on in the day and when I make dinner, I will have a few bites of that.
Anyone else feel or do this? I am thinking of going back to the
Isopure protein powder shakes. Any other ideas? Thanks
Hugs,
~Tracy
298/132/150

honeymoon phase LONG

2007-06-13 12:24:53

Lizanne,
Do you eat and drink at the same time? I do because I feel like I am
going to choke if I don't. I asked my surgeon and he said it was fine.
I have been doing it for over 2 years so I guess it must be ok. It may
be due to the meds I am on too. I think the side effects are dry mouth
on some. Anyone else eat and drink at the same time? I could never NOT
do it. It was horrible sitting there watching the clock for when I
could take a drink. Anyone else feel like that?
Thanks,
~Tracy
298/132/150
-

Joan W

2007-06-13 03:46:34

I hope you are having a very Happy Birthday!
Hugs
Marianne

xeloda

2007-06-13 01:14:51

it is the second time that i am taking xeloda,four pills a day this time. from
the eleventh day of its taking i become weak and i feel lack of energy to work
one shift.i have ache in my forearm and a little chest pain.has anyone of
you this symptom?also a little agitation and depression.the first round it was
worse but it has not disappeared by reducing the pills. thank you for
replying. love parvin

Re: [WLS Friendship &amp; Support] FW: See SparkPeople member on Today Show, Mond

2007-06-12 15:31:59

What is sparkpeople???
Thanks,
~Tracy
298/132/150

alex don't be discouraged.

2007-06-12 06:01:42

Beth,
That has to be water wt since you were barely eating. . are you on any water
pills? Im so sorry to hear that your still dealing w/ that dang Vertigo .. Isnt
there a medicine you can take? Have they checked your inner ear? Sometimes
Inner Ear Infections go unnoticed and it can cause Vertigo. .
Are you able to drink Atkins Shakes? I hope you can loose the wt Kaiser
requires so you can be in our Loser's Lounge w/ all us LOSER'S!! Keep us
updated. . Hope you feel better soon Sis..
~*Sharon XOXO*~
"THIN feels better than FAT tastes!"
Lap RNY 7/30/07
HW242**SW232**CW169**GW125-130

Velvet

2007-06-12 01:26:53

Hi all
Just to let you know that I am off next Wednsday to have my final breast
adjustments done. This will be the 8th op of my breast reconstruction, 3 ops
simply weren't needed. One the surgeon put the wrong implants in, was I angry?
And twice a junior doctor filled the saline implants with the wrong needle,
damaging the ports which led to leaking and replacements.
My surgery to cut a nerve supplying my upper and lower jaw is delayed. My Oral
Max fax originally planned to do this next week but decided that a neuro surgeon
should do it and someone he knows with greater expertise too in case the nerve
was cut supplying the blink reflex to my eye. This neuro surgeon is away all of
June so I won't be seeing him now until beginning of July then will have to wait
for the surgery ~ quite how long I don't know at the moment.
The pins and needles in my legs is happening again despite the radiotherapy to
the lumbar area where cancer has metastasized to the spinal meninges. So it
looks like I will have to have spinal chemo quite soon. I was told I would be
going down this path if the pins and needles returned. I am sure this is going
to clash with the jaw neurectomy and never having had chemo before I find the
near future all very daunting.
11 years of cancer, dealing with secondaries and various treatments is such a
long time, yes, good in most ways but 11 years of expectation, worry, tests and
scans and waiting for results, all kinds of treatments, side effects, changes of
drugs and more side effects, the not knowing and then the knowing, the guessing,
the anticipation, the anxieties, telling the family, dealing with their
responses, their worries, the surgeries, then more surgery, the hopes and the
hopes dashed, has finally got to me. I am depressed at the moment. I am sure it
will pass as I am usually so positive and am able to talk myself into a positive
frame of mind but I am so angry now, angrier about the cancer than I have ever
been,in fact you name something and I can be angry about it. If it wasn't
raining I would be outside taking it out on some poor tree. I think part of this
is just having spent a month in excruciating pain, and now the treatment, the
neurectomy, is further away than I thought
it would be, pain lowers the resolve.
Antideppresants are not for me however, I can't cope with more side effects,
that would just add to the problems.
I shall be off air for a week or so, in the meantime I hope everyone is well.
LOL Velvet (UK)

Nuts!!

2007-06-11 23:14:39

Pat,
I eat the flavored ones. You will learn to read labels though to
make sure there isn't too many carbs per serving. I have a high
tolerance for carbs. I set a limit for myself, then if a serving
contains more carbs than my limit, I either reduce the serving I
eat...or don't eat it at all. You have to have willpower, or just
set aside your portion size so you don't overindulge.
Lizanne

Re: [Stage IV Breast Cancer] Velvet

2007-06-11 14:14:53

Velvet thans for letting us know. You remain in my prayers.
Hugs
Marianne
Breast Cancer Patients Soul Mates for Life
http://www.geocities.com/chucky5741/breastcancerpatients.html
Anxiety Depression and Breast Cancer

Thyroid Discussion

2007-06-11 09:07:07

Thanks, Ally. I've wondered a lot about that very issue and haven't
dug up anything about it. The only thing my surgeon told me about it
was that the malabsorptiveness of our bodies compensates for the
amount of medication that would normally be reduced as our weight
goes down, therefore, I would most likely remain on the same dosage
that I'm currently on. That didn't do a whole lot to satisfy my
concerns about it.
Jill
lap RNY 12-03-07
- 20.4 lbs.

Advice on a doctors

2007-06-11 04:11:33

I am three years out from my gastric bypass. I am much in need of some surgery repairs due to prolapsed uterus,bladder etc.

My gyn. is going to do my hysterectomy but my other repairs are going to be done by Dr. Barksdale. I like him okay but due to some misinformation by his office staff and him, my body radar is starting to kick in and I am having second thoughts.

I am about to pay for some reviews but was wondering if anyone had used this physician with good results.

I am also going to see a Dr. Teague about a possible tummy tuck to be done at the same time. Has anyone ever used him and had pleasing results?

I would not do any surgery if I was not having problems physically. But I am afraid. I do not do well in surgeries and have had pulmonry edema and after my gastric bypass with Dr. H, I had to have 4 pints of blood.

Advice would be greatly appreciated.

Jeannine

Surgery...again NOT TO SCARE, BUT TO INFORM

2007-06-11 01:39:57

MY FRIENDS DAUGHTER IN LAW, 25 YEARS OLD, DIED FROM LIVER FAILURE. SHE HAD BY-PASS WHEN SHE WAS 17. MY FRIEND IS A NURSE, THEY ORDERED AN AUTOPSY. HER LIVER FAILED AND SHE DIED, CORONERS REPORT.....SAID LIVER WAS OVERLOADED AND FULL OF TYLENOL.

WANTED TO SHARE, EVERYONE MAY ALREADY KNOW THAT, BUT I WANTED TO TELL IT IN THIS VENUE. BESIDES EVERYTHING ELSE I HAVE HAD TO TAKE FOR MY OSTEO, THEY WERE GIVING ME TYENOL 4, MANY OF THEM , FOR BREAKTHROUGH PAIN.

BEST TO ALL OF YOU,

DIANE H

Surgery...again

2007-06-10 11:01:01

Hi Georgia & Sharon,

It's Debbie(old friend). Georgia I'm sincerely sorry that you are still having health problems. Anything I can do for you besides the obvious (pray for health)? I'm having health problems too. My chest keeps hurting sometimes after eating & sometimes it just wakes me up in my sleep. It's like pain that starts in my chest/stomach and the pain radiates into my arms and throat. I've been checked out by my GP, GI and Cardio. All tests come back within normal limits. Only thing that stands out is my liver. Because of the Gastric Bypass the GI doctor couldn't do an endo so I had to have a procedure where they stick a probe through the right rib, then liver to the bile ducts. They are all inflamed but the doctors say nothing to worry about. I'm on Nexium & Bentyl. I have a follow-up with my GI on Monday. He'll probably tell me that there is nothing more that he can do for me except continue to take the meds. I'm on so much medicine from my different doctors that I wish I
could start fresh and get off everything! I had a stomach surgery by Dr. Bellanger to remove a bowel obstruction in 05 and Dr. Hargroder in 06 for redundant colon where he removed some of my colon. They are very fine doctors and I would recommend them to anyone along with their staff.

My weight is anything but manageable right now. I bought some Atkins protein shakes and will try that instead of eating. Is that a bad idea? My baby boy 29 is getting married on July 19^th and I've been trying to lose some weight on top of everything else. What should I do? Start swimming at the YMCA and diet? I'm 5'1, 138 lbs. I'd like to be 128lbs. 5 yrs ago I was 237lbs

Take care my friends.

Debbie

Surgery...again

2007-06-10 09:54:20

Thanks.

Everyone have a good 4th :)

GA

Georgia Kiley DiBenedetto

Surgery...again

2007-06-10 01:54:57

Georgia,

I'm glad to hear that today is a better day. I too had some issues 2 months after my surgery. I had to have another surgery on my lung due to fluid. It has taken me at least 2 months to feel like I have more energy. I strongly recommend to eat or drink as much protein each day and rest, rest, rest! That is going to be the key to getting your strength back.

I will keep you in my prayers.

Diane Williams
--- On Thu, 7/3/08, Georgia <georgiad40@...

From: Georgia <georgiad40@...
Subject: Re: [Dr_Hargroder] Re: Surgery...again

Surgery...again

2007-06-09 17:59:48

Yea, I had a revision in March, he kind of gave my pouch and intestines a "face lift" LOL Cut out the part of the intestine that was scarred and re-attached everything. Now, I had the freaking hernia and my insides were all twisted up! I just picture him in there, struggling like he's unraveling a garden hose! LOL

I am feeling stronger today. Thank GOD. I am at work and will take it easy, probably work till noon. Then, I have the whole weekend to rest.

Talked to Holly yesterday and got some instructions that I didn't get before I left the hospital, sooooooooooo I should be recuperating nicely from here on out. It's just a pain in my ass to be cut open again. I HATE it.

He had to leave something "undone" too...a bend in the limb of intestine that attaches to my pouch, he couldn't get it straight. They say it may or may not cause a problem. Let's pray for NOT, ok?

Take care everyone, have a good 4th!

GA

Georgia Kiley DiBenedetto

Re: Surgery...again

2007-06-09 13:03:40

Hey Georgia, I did not know that you had a revision in March. I've
been basically AWOL from the group for the past year. What kind of
revision was it? I am so sorry that you had another surgery on top of
all that! Take care of yourself. It sure sounds like you went back to
work too soon. Can you take some time off?
Later,
Sharon

Re: [Dr_Hargroder] Surgery...again

2007-06-09 08:13:04

Well, here I go again. Woke up last Wed. with a bellyache...first one since my revision in March. Tried to blow it off, thought if I ate I'd feel better...NOT. I ate lunch and the pain was even worse. By 4pm I was in the ER whining for pain meds. After a long and exhausting night, Dr H came in around 9am and scheduled surgery for 1pm Thurs afternoon. He found an internal hernia and a twisted bowel. Took him 2 1/2 hours to get it all untwisted! I was home by Friday afternoon, back at work on Monday. That may have been a mistake. I only made it 2 1/2 hours on Monday, 4 hours yesterday, and I'm at my desk now. I have NO strength left at all. I guess maybe because the 2 surgeries were so close together? I don't know...but I am very weak. Brought some protein with me today, some grits, and a vitamin water...yum...NOT. I was able to get my multi vit and a b complex down last night, so hopefully, I'll get my strength back soon. I'm so damned tired.

GA

Georgia Kiley DiBenedetto

Re: [Dr_Hargroder] Plateau/When to have plastic surgery

2007-06-09 03:21:48

Thanks that is good to know...

08/05 260lbs then in 06/06 190 now today holding between 205 and 200

size 28 to 18.

I want to get to my 190 again and then to 150 to 140 then go for plastic surgery.

I am fixing to start the exercising again and the water water water.

Let me know what you decide and if you have the P/S does it work.

I may look into that also.

I have heard increasing exercise and water and protien will kick off the weight loss

again.

Keep us up on the info.

Thanks,

Ronda Gaudet-Sears
--- On Tue, 7/1/08, Jodie <jehebert354@...

From: Jodie <jehebert354@...
Subject: [Dr_Hargroder] Plateau/When to have plastic surgery

Plateau/When to have plastic surgery

2007-06-08 20:44:22

Maybe I'm crazy, but as I understand it from one surgeon (John Dean)
that even though I have not reached my "ideal" goal which is about
175#, I'm still a good candidate for plastic surgery. I am now
plateaued right at 215# (from 302 on surgery date 3/28/07). For the
record, I originally told Hargroder "I just want to be under 200" and
he stated that I was very realistic.
So, I consult with John Dean, plastic surgeon, who I explain the
above scenario and he tells me that in his experience with Bariatric
patients there is usually a point/plateau that is difficult for them
to get below. The reason being the excess fat cells (from childhood
in my case and from being morbidly obese) that constantly are wanting
to be refilled and working against the weight loss process. He told
me that removing some fat cells, especially in the abdomen will:
first, immediately drop me below 200 and then, secondary effect, help
me to lose a bit more by changing my metabolism... plus the stress of
surgery etc. is likely to cause more loss.
I am leaning toward this as my best solution although my family is
very skeptical and wants me to try, try to lose more weight. My
thing is I don't want to get into a yo-yo cycle again! I feel that
if I have plastics I want to do it where I can maintain my loss....I
have heard that weight gain after plastics is a big no-no where as
mild weight loss is no problem.
Am I crazy??
Any "experience, strength and hope" would help!
Jodie

Re: [Dr_Hargroder] The Big Day

2007-06-08 11:50:35

Good Luck on your surgery and Happy Days for the rest of your life after surgery.

Take care and let us know how you are doing.
Carolyn [INLINE]
--- On Mon, 6/30/08, lil_d_531 <schelia@...

From: lil_d_531 <schelia@...
Subject: [Dr_Hargroder] The Big Day

Re: [Dr_Hargroder] Denied

2007-06-08 08:56:26

I was also denied abdominoplasty with Dr. Clubb. Mitch said he was not surprised. However, he also said they were wrong for denying other procedure and he would appeal the denial of the breast reduction. I'm still waiting to hear about this.

The problem is, as I understand now, that it is "required" the insurance dictate the

tissue to be removed which is approx. 1.5 pounds from each side (3# total). I think that is too much.

Looks like I will have to pay cash for both. My parents have agreed to pay half, but I'm

sweating just to figure out how to come up with my half! :(

Jodie

--- On Sat, 6/28/08, Sharon <sxtaylo2@...

From: Sharon <sxtaylo2@...
Subject: [Dr_Hargroder] Denied

The Big Day

2007-06-07 23:39:11

Sorry everyone. I did not realize that it was a public calendar. I
was just playing around. The BIG DAY is the day of my Roux N Y surgery.
Sorry for any inconvenience.

Re: The Big Day

2007-06-07 22:40:40

CONGRATULATIONS!!!!!!!! At least you know we are paying attention!
Keep us posted on your progress.
Sharon

Re: Denied

2007-06-07 12:15:31

Sharon: Did you investigate the option of precerting the hernia
operation and then having the abdominoplasty done in connection with
that? Maybe Dr. Clubb mentioned that, I don't know. But I have a
friend who plans to do that. It will get her some insurance payment
for the hernia and they will do the tummy tuck while she is still
under. Also, there is CareCredit which Dr. Clubb uses. You can pay
off the surgical costs which are not covered by insurance within up to
18 months with no interest. She had a brochure in her office about
this last time I was there.
Hope you get some coverage. We who have paid out of pocket for wt
loss surgery are saving the insurance companies thousands of dollars
in our long term care. We have taken the brunt of the cost to get
healthy. They are going to benefit from our exepenses. Sure hope
they will pay you something on other things you need.
I really feel strongly about this.
Janet

Re: [Dr_Hargroder] THE Big Day, 7/1/2008, 9:00 am

2007-06-07 12:10:55

I haven't been on in a while, so what is "The Big Day"?

Diane

Denied

2007-06-07 03:32:15

Well, Aetna denied my abdominoplasty. I have not gotten the letter
yet but got a call. They said I could appeal so I'm waiting for the
letter to see what that involves. I'm disappointed because I thought
I had a pretty good chance due to the skin problems and the hernias.
I am still going to do it even if I have to pay out of pocket. If I
pay for it, I can do it soon. If I appeal, I have to continue to
wait. I know that Dr. Clubb asks for the money up front but I'm sure
they all do.
We'll see, I guess.
Sharon

velvet update

2007-06-06 22:52:12

Hi girls.
Thank you for all the good wishes last week, how very kind and thoughtful you
are. Jan and Michelle, you girls are especially lovely, such caring, thanks.
I have had my breast surgery. I had two procedures under sedation, very light
sedation too. I have to say it was not my best ever experience, I was quite
'with it' and could hear theatre staff talking, just as Paul my surgeon had
begun the air conditioning stopped and there were a few swear words. I felt some
pain several times and cried out then all went blank for a few moments but after
the op I was on the table completely awake someone putting dressings on and I
said have they fixed the bloody air con yet? ( repeating what I had heard) All
the theatre staff laughed and Paul came over to me and asked if I had heard him
swearing. I told him I had, then the anaesthetist asked me what else I had heard
and I was able to tell him, I think it was everything that was said. The
anaesthetist apologised profusely telling me he obviously hadn't sedated me
enough, then asked about feeling pain and I was able to tell him, I think I
called out 5 times but then all went blank, he said
you did call out five times. He was so, so sorry. I told him not to worry about
it as it was all over and I'm not in pain now. What else could I say?
I had the port to one of the breast implants removed as it had come away from
it's anchor point and had torn the muscle, flapped about, bruised the area
sometimes and was quite tender. The other port is OK. And I had some Bio Alcamid
silicone filler for the hole in my upper breast, where I had had a portacath
once and the tissue beneath and above it had been removed down to the muscle
covering the ribs. It looked like a navel. The surgeon who did that is no longer
at the hospital and I am not surprised as he wasn't all that good. The filler is
a permanet filler and it is injected into the muscle. Later when the local anaes
had worn off the pain was dreadful, burning and bright red all round the
dressings and spreading up my chest. The nursing staff called out the duty
surgeon to the ward at gone midnight because they thought I was having an
allergic reaction to the bioalcamid but he said it is always like this and could
be for the first week. It would have been good if I
had been told beforehand. Today it is much better and not red at all. Even
though there is a dressing across I can see and feel the hole is beautifully
filled though it does seem solid.
So on the mend except for quite severe pains across the waist and into my back
that have had me up the last couple of nights, throwing truck loads of morphine
down my throat. I have had a bit of a stitch in this place for a week or so but
now it's got quite a nasty pain and some vomitting too. I go up to see the onc
tomorrow. No sooner have I got two (smallish) problems over with than another
starts so I am feeling a bit low at the moment and my mind is wandering about
what could be causing this pain that gets so severe but mostly during the night
or when I lay down. I am already considering a problem with my liver and I know
I shouldn't self diagnose but it is difficult not to, sometimes the Net provides
a too easy access but I have made myself stop looking up anymore and will talk
to onc tomorrow, just about to write my list for the consultation and pack a bag
as I am sure I will be kept in.
In the meantime take good care, be well, be safe, be happy, Velvet (UK)

Re: [Stage IV Breast Cancer] velvet update

2007-06-06 15:49:59

Velvet,
That had to be scary not being fully sedated. I'm afraid if it had been me I
would have had words with the anethesiologist. Sorry about all the pain you are
in. You are in my prayers.
Hugs
Marianne
Breast Cancer Patients Soul Mates for Life
http://www.geocities.com/chucky5741/breastcancerpatients.html
Anxiety Depression and Breast Cancer

Re: [Dr_Hargroder] Massage

2007-06-06 10:07:25

Hi Cindy,
Humana does not pay for it, but I get a 30 min massage for $40 by a nice guy/licensed massage therapist named John Hollingshead. He does Deep tissue and uses hot rocks etc. He is located off of Government in the Circa 1857 shopping plaza.
Jodie
--- On Tue, 5/20/08, Cindy N. <jus4tday@...

From: Cindy N. <jus4tday@...
Subject: [Dr_Hargroder] Massage

Re: [Dr_Hargroder] DR. CLUBB

2007-06-06 00:34:33

MY INSURANCE DIDNT PAY FOR MY GASTRIC BYPASS, I HAD TO BORROW THE MONEY, BUT I WAS AT THE POINT, WEIGHING 363 AND GOING INTO CONGESTIVE HEART FAILURE PLUS A MULTITUDE OF OTHER AILMENTS, THAT IT WAS DO IT OR DIE.

I CONSULTED WITH DR. CLUBB FOR A BREAST REDUCTION, ACTUALLY A BREAST LIFT AND BLUE CROSS/BLUE SHIELD OF MS, APPROVED PAYING FOR IT, AFTER I HAVE 6 WEEKS OF PHYSICAL THERAPY AND TAKE CERTAIN MEDICINES FOR 6 WEEKS. THE PHYSICAL THERAPIST GOT A KICK OUT OF THEM ASKING ME TO TAKE THERAPY FOR A BREAST REDUCTION! I WAS HAPPILY SURPRISED THAT THEY APPROVED TO PAY FOR IT, BUT I NEED IT SOOOO BAD, IT WILL BE A GREAT RELIEF TO GET IT DONE. I REALLY NEED MY ARMS AND LEGS DONE, BUT AT 54 YEARS OLD, AM NOT GOING TO WORRY ABOUT IT. THE BREAST WORK WILL MAKE ME SO MUCH MORE COMFORTABLE. DRAGGING AROUND THESE BIG OLE DROOPY THINGS AND RASHES AND SUCH THAT GO ALONG WITH THEM.

THANKS ALL OF YOU FOR ALL THE GOOD INFORMATION AND ENCOURAGEMENT I GET ON THIS SITE!

GOOD DAY TO ALL OF YOU,

DIANE HALL

Massage

2007-06-05 22:27:03

Jodie, where do you go for massage for chronic back pain. I have the
same insurance and would love to get more information from you about
that. You can email me directly if you like at jus4tday@....
Thanks,
Cindy

6 Month check u

2007-06-05 09:18:30

Great job Penny,
You must be feeling great :o). I'm very happy for you!
Edie

Re: Need recommendations of local Plastic Surgeons

2007-06-05 09:08:48

Hi, Jodie:
I consulted with Dr. Clubb last week. Although I am still in my
"losing period" she told our support group that coming in 3 to 4
months after WLS is best so that documentation can be gathered for
anything which would be needed to hopefully get insurance coverage. I
liked her, but I am curious about other plastics in BR who do WLS
plastics.
Please post something about Dr. Dean, Dr. Williams and anyone else you
have seen.
Thanks,
Janet

Re: Muscle Milk Lite

2007-06-05 02:18:11

Thank you Donna....I went to that site, but they were backordered.
Apparently, it is very popular. It took me about an hour of searching
online before I found some at SuperTrition.com. I ordered the RTDs
but I may pick up some of the powder locally. They have it at Winn
Dixie.

Re: [Dr_Hargroder] Need recommendations of local Plastic Surgeons

2007-06-05 00:04:14

Jodie,

I went to Dr. Wade on Dijon Dr. for my tummy tuck, breast lift and thigh lift. I just loved the doc and his staff. They treated me like a queen, and my results were amazing to say the least (my bod looks as good as my 2 daughters'!!) I would recomend Dr. Wade to anyone - the man is an absolute artist! If you could see my before and afters, you would know what I mean! If you want me to go into more details about the surgeries, I can send you a direct email. Let me know.

Linda Brooks bayoupainter@...

Jodie <jehebert354@...

So far I have consulted with Elizabeth Clubb and John Williams who both
take Care Credit. I am scheduled to see John Dean on Thursday. This
is all for 'Post-Bariactric Reconstruction' as they call it (Tummy,
Breast Reduction, Arms and Legs). I need it all! Anyone have any
particular postive or negative experiences they would like to share?
Please let me know.
Jodie

Linda [INLINE]

Re: Surgery two days away

2007-06-04 11:39:45

Donna, Do you know if the Muscle Milk Lite powdered kind is as good
as the Ready to Drink cartons? I use the RTD cartons as a breakfast
drink every morning, but it is very hard to find. When I do find it,
I buy as much as I can.