You'd be laughing at me Pat, I try to say hi to all new people and wouldn't
think a thing of it, as the above message states, I'll just blame it on a
lack of calories LOL :o)
Edie
11/15/07
lap rny
302/292/252/150's
hw/sw/cw/goal
Hi Jill,
I am lgad you joined this group also. Its not as busy as the big group but if
there is anyone that has gone through what you have they will get back with you.
Hugs
Marianne
Breast Cancer Patients Soul Mates for Life
http://www.geocities.com/chucky5741/breastcancerpatients.html
Check out my other ornaments at
www.geocities.com/chucky5741/bcornament.html
Lots of info and gifts at:
www.cancerclub.com
CinDWood Crafts
http://www.cindwoodcrafts.com
Thanks Pat. Not only do I look younger (you said it not me) but I
feel a lot younger.
I just went to singlesnet.com. It is a free singles website. You
can only respond to people who are paying members, but I noticed that
most women don't join, they just wait to hear from the guys and then
respond. As a non paying member, you can "wink" or check out a guy's
profile and he will get an email, and then can decide what to do. So
I started to put my old profile back in shape. Take out the fatgirl
pics and replace them with newer pics. Change some of my answers to
questions now that I am a non-smoker. When you are actively doing
something on the site, everyone else on the site can tell. Three
guys emailed me in a matter of 10 minutes. That was so weird. And
I'm no "little" woman either, still severely obese, but it feels
good. Almost as good as losing 5 lbs. Notice I did say "almost".
I responded to two of them, and they both wrote back again. I am
totally amazed. This could be more fun than I thought.
Next.....the help wanted ads.
Lizanne
1. Name: JENNIFER
2. City and State: AMSTERDAM, NY
3. E-mail Address: DAVEYSGIRL1207@...
4. Are you: Considering Surgery, Pre-Op or Post-Op: POST-OP
5. Date of WLS: 09/24/07
6. Surgeon's Name and Location: DR TERRENCE CLARK SCHENECTADY, NY
7. Type of Surgery: RNY
8. Highest Pre-Surgery Weight: 332.5
9. Insurance or Self-Pay: INSURANCE
10. What is the name of the insurance company that covered your WLS
(if
applicable): MVP
11. How did you hear about this group?: GOT E-MAIL SENT TO ME
12. Birthdate: 11/16/73
13. Occupation: CSR
14. Married or Single (if married what is your spouse's name?):
MARRIED TO DAVE-5 YRS
15. Do you have children? If so, what are their names? NO BIOLOGIAL
YET-3 STEP CHILDREN & A FOSTER DAUGHTER
16. Hobbies: MUSIC, FAMILY, SELF-EXPLORATION
17. Anything else you would like to share with other members: JUST
FOUND A BOOK BY SUSAN MARIA LEACH, FOUNDER OF BARIATRICEATING.COM. IT
IS HELPING TREMENDOUSLY W/POST SURGERY BUMPS IN THE ROAD. ANY ONE
CONSIDERING WLS, IS HAVING SURGERY OR IS POST-OP, IT IS A MUST READ!
BEFORE & AFTER IS THE NAME OF THE BOOK. AWESOME ADVISE AS WELL AS
RECIPES.
I'll bet that felt good. Enjoy
Edie
11/15/07
lap rny
302/292/252/150's
hw/sw/cw/goal
My nut has us taking 2 adult multivits a day. I was told not to take childrens
vits.
Debby
lizanneflowers <lizanneflowers@...
Okay, maybe I am confused....wouldn't be the first time. I have
noticed many people are taking a multi vit more than once a day. Are
you taking childrens vitamins, is that why you are taking two multis
a day? My NUT said I should take two, but that was when they were
suggesting I use chewable childen's vitamins, which were gross to me
at the time so I cut adult vits in half and took them. OR are you
taking 2 adult milti vits?
Lizanne
smoker again ...I promise that. . i loved how i felt not smoking and
not stinking ...LOL everyone at work is like awwww Sharon :((
Sharon, I just wanted to say this. I had quit smoking for a year and
9 months back about 2.5 years ago. Then last year came along and I
felt that I was slammed by one disrespectful client after another and
not VERBALLY dissed but I had clients that repeatedly did last-minute
B.S. cancellations with no regard to my business which meant a huge
blow to my income!
I finally decided I either had to regain control of my company OR
just sell out and be done with it because the stress was intense. I
started billing people who were repeat offenders. Not the full price
that I would have made but roughly 1/2. I had one guy go nuts on the
phone after receiving my bill, going on and on how I needed to take
him off my list and how I had no right to bill him since we had no
contract blah blah. Finally he said he would be calling the better
business bureau on me the next day then when it was all done, my
first thought and action was grab a cigarette into my shaking hands.
That "Bump" lasted 7 months! I went from thinking 'damn these things
don't even taste the way I remember' to being a total 1 pack a day
smoker like from 2 years before, with no thought of quitting in
sight.
I went from free breathing all night long (which I hadn't even
noticed) to coughing every night as soon as I lay down and little
bouts of coughing spells all through the night! I was exhausted! I
just couldn't breathe like before. But I also could not lay those
cigarettes down again either. If anything I seemed to value them even
more as each little customer problem came up. If it weren't for the
book that YOU GUYS all recommended to me, I don't know HOW I EVER
would have quit again! YOU GUYS SAVED MY LIFE by reminding me of that
Ashton Kutcher comment I had seen on Letterman.
So Now, I have to save YOUR life. PLEASE read your book. If your mind
starts to wander, stop and go back when you can focus on what you are
reading again. I know my mind kept slipping away and it took me about
an extra week to read the entire book than I had originally planned.
I doubt I could have done it in ONE WEEKEND so if you will at least
START the book, NOW while cigarettes are still kind of foreign to
your body, by a week or two, you can cerimoniously finish and be back
on THIS side of the fence where the grass IS TRULY GREENER AND THE
SKY IS REALLY MORE BLUE! I JUST TOOK A DEEP BREATH FOR YOU AND THERE
IS NO URGE IN MY LUNGS TO HACK UP ANYTHING THIS TIME! 3 WEEKS OUT!
YOU CAN BE HERE TOO AGAIN SHARON! IT"S NOT AS HARD AS YOU MIGHT
THINK, WE ARE ALL HERE TO SUPPORT YOU AND WE ALL KNOW THAT YOU KNOW
THAT THOSE CIGS ARE PRETTY NASTY BUT THAT THE DAMN NICOTINE IS
SCREWING WITH YOU. YOU GET PAST THAT BUMP AND YOU ARE HOME FREE!!!
Joanne
Seattle
So sorry to hear about your TM's increasing and the pleural fluid! That
stinks!
By the way..............I didn't know that Pat in Fl died.......the one with
all the animals??
I knew Doris personally, we got to meet in Des Moines and I roomed with her
and Joan, we had a blast, and Doris would want us to all trudge on in her
memory, fighting with everything we have!
We are al here for you, even if I don't write all that often anymore.
I pray for everyone...............
Love & Healing Energies,
Kathy
Hope you get started on a new, effective treatment soon. Sounds like its
time for a change. My thought and prayers are of you and everyone in this
group.
Love & Healing Energies,
Kathy
Lizanne, I was also told 2 children's chewable vitamins or 1 adult
chewable per day, plus the calcium. (Since they don't have me taking
any B12, and I don't need the iron, those are all I take.)
Interested to see what others say about this...
Lora
Dear Kathy,
Thanks for your good wishes. I am looking forward to this treatment and very
hopeful that it will work for me.
Hugs, Brenda
Brenda Young Olson
Ft. Lauderdale, FL
Bellydancing, it's the hip thing to do.
After school today I was standing in the hall talking to the teacher who has
the class next to mine. One of her students from last year came by and was
telling her about one of my former students who was in a bad fight today. I
listened to the story and then excused myself and started to walk back into
my classroom. As I walked away, I heard the boy ask "Is that a new 5th grade
teacher?" It appears that he didn't recognize me. He was not in my class,
but he did see me on a daily basis. When he was told who I was, he seemed
VERY surprised. (Maybe I do look a little bit different since I had surgery).
Joan
**************Biggest Grammy Award surprises of all time on AOL Music.
(http://music.aol.com/grammys/pictures/never-won-a-grammy?NCID=aolcmp00300000002\
5
48)
Lora,
I never considered it before. The people who have known me all along I do not
have an issue with. However, I NEVER tell anyone new about it. I suppose if I
ever got into a relationship again or made a new best friend it would eventually
come up, but I see no reason to put myself out there like that. Is that shame
or is it me being a private person?
Lisa A
Lora <cicerogirl@...
Long story short... very few mental heath counselors seem to have any
clue at all about the special psychological issues of WLS patients so
I have been doing some research (VERY little written on it) and I am
working on a proposal for a paper at our state counselor's conference
later in the year.
One of the issues that has been mentioned other places is having to
deal with the shame of obesity even when you are no longer obese. I
know that I experienced a certain amount of shame initially at having
to admit to people that I had to resort to surgery in order to lose
the weight, but I don't personally feel much shame about having been
(and still being, for now) obese in the first place. Not sure why,
other than that I am a pretty open person and have never viewed my
weight as something that defines me... just a very unwanted physical
attribute.
So I'm wondering if others have expereinced shame... especially those
who are at (or almost at) their goal weight. Do you find that you are
ashamed to let people know that you used to be very heavy and had WLS,
or are you pretty open about it? Are there otehr wasy that people who
are post-op are experiencing shame?
Lora
Lisa
284/271/187/135
Yeah for me!!!! Let's hope I can keep that up :o)
Hello, my name is Debbie, I am a new member.
I was discovered by breast cancer in November 2003, had surgery in March 2004.
I am now cancer free. e-mail me any time.
Hi Dari:I had chemo back in Oct, I can't find my folder with the names of
the two drugs I had then, I only have four more radiation treatments
left.(Horray) I went 6 and a half weeks, everyday Mon thru Fri...Which could
end up
being a pain in the Ass. I only started the Taxol and Herceptin yesterday, so
far I feel no different, I hope it stays that way. I didn't have no side
effects on the other two drugs, besides loosing all my long brunette hair. Take
Care,Gail
Hi Jennifer! Welcome to the group! I see you had the surgery 4
months ago. How are you feeling now? How are you doing?
Dawn in PA
Lap RNY 06/27/07
305/278/179/140
HW/SW/CW/GW
Hi Gail,
I don't want to tell you just yet what side-effects I'm having just to see if
you get the same ones.
I'm just starting taxol and will get my second (of 4) infusion 3/7/06.
I am on dose-dense/every 2 wks.
If you find something comes up with the taxol please do let me know. In a
few weeks I'll tell you what I experienced.
Thanks a bunch!
Dari
fastest2@...
I must be the exception; but I love Christmas shopping. I buy little things
throughout the year--things that I know the person would really like (for
instance, a football signed by Troy Aikman for my son--who turns thirteen
today!!!; a hand knitted sweater--for half price--that is exactly the color
combination my sister loves; etc. But, I still look forward to being at the
mall or
especially the outdoor "neighborhood" shopping "villages" (as the new,
uptown strip centers are call. I love the holiday music, the crowds, the
excitement--it makes me feel alive as I "breathe in" the holiday spirit. I try
not to
leave any serious shopping to the last minute
(I do not enjoy shopping under pressure); but I always go out on the 24th.
There is such energy in the air on Christmas Eve day; followed by the
stillness of a candlelight service that night...a perfect balance that sets the
stage
for Christmas Day. I just love it.
As we approach Thanksgiving (and perhaps I speak for many of us); there are
few words that can express the fullness in my heart to have another year with
my friends and family. When I was first diagnosed; the question was "why
me?"--why am I the one to have cancer. Then, when the cancer came back, "why
me?"--why am I the one am whose cancer has spread throughout the bones and onto
the liver. And four years later; the question is still, "why me?" But it is
framed a bit differently--why am I the one who is still alive??? Why am I
the one to have medications and treatment the "manage" my cancer? Why am I the
one, given extra years to be on this earth?
If nothing else, this whole experience has given all of us, a greater
appreciation of life and of love. And, although there are days that I have
unbearable pain and others when I feel too exhausted to get out of bed--there
are
more days that I am "up and about"--and I try to make the most of those
days--for lunch with friends, movies with my son, "happy hour" with colleagues
at
work, and yes, even Christmas shopping!!!!
We have much to be thankful for--each of us has her own list. One blessing
we do share, is this special group of friends--all of whom really do understand
the battles--the ups and downs. We have all been on that roller coaster of
emotions--but what a blessing to be given a longer ride. This year, I
especially think of Doris and pray for her family. I only knew Doris through
this
group. But she was one of the early organizers who kept the group going. And
I thank her for that. Let's keep her legacy alive.
Wishing you all a very Happy Thanksgiving.
Marian Millican
This Sunday on "The Group Room" Cancer Talk Radio Show
Sunday, October 8, 2006
1-3pm PT. 4-6pm ET
A Quarter of Women with Breast Cancer not Discussing Newest Treatment
Options with Their Physician.
A new online survey* commissioned by Vital Options International
found that while nearly 85 percent of women with breast cancer
actively seek information about their disease at least once every six
months, many are still missing treatment improvements.
In support of National Breast Cancer Awareness Month, tune in for
this special broadcast of The Group Room, "Understanding Hormone
Therapy and Breast Cancer: The Role of Aromatase Inhibitors" and hear
the results of the recent national survey on treatment options.
Joining host Selma R. Schimmel, CEO & Founder of Vital Options
International, and Halina Irving, MS, MFT, The Group Room
psychotherapist, will be:
Dr. William Gradishar
Professor of Medicine & Director of Breast Oncology at Northwestern
University Feinberg School of Medicine, Chicago, IL
Call in and participate!
1-800-GRP-ROOM (1-800-477-7666) or e-mail us at info@...
For a listing of stations in your area or to listen to the live
Internet Simulcast, visit www.vitaloptions.org. "The Group Room" can
be heard live via XM Satellite Radio on TalkRadio Channel 165 and is
Podcast at iRadioNow.com.
"The Group Room" is produced by VITAL OPTIONS INTERNATIONAL, a non-
profit cancer communications, support and advocacy organization, in
association with Premiere Radio Networks.
*Funding for the survey was provided by Pfizer Oncology.
beth conner
assistant account executive| edelman | health
200 e. randolph drive, 63rd floor
chicago, il 60601
p | 312.240.2763
f | 312.240.0360
beth.conner@...
In a message dated 3/3/06 12:42:08 PM Eastern Standard Time,
fastest2@... writes:
Hi Gail,
I don't want to tell you just yet what side-effects I'm having just to see
if
you get the same ones.
I'm just starting taxol and will get my second (of 4) infusion 3/7/06.
I am on dose-dense/every 2 wks.
If you find something comes up with the taxol please do let me know. In a
few weeks I'll tell you what I experienced.
Thanks a bunch!
Dari
fastest2@...
Please tell your son Happy Birthday from me.
Hugs
Marianne
Breast Cancer Patients Soul Mates for Life
http://www.geocities.com/chucky5741/breastcancerpatients.html
Check out my breast cancer ornaments at:
http://www.geocities.com/chucky5741/bcornament.html
also check out my other ornaments and lots of nice gifts at:
http://www.cancerclub.com
I don't eat until at least an hour after my morning pills for that very
reason. Who's got room after that monster list?
Jill
lap RNY 12-03-07
- 20.9 lbs.
One of the ladies in the big group posted this.
Hugs
Marianne
Experimental Drug Delays Breast Cancer By MARILYNN MARCHIONE
AP Medical Writer
ATLANTA (AP) -- A new experimental drug delayed the growth of
advanced breast cancer in women who had stopped responding to the
drug Herceptin and were out of treatment options, doctors reported
Saturday.The experimental drug, Tykerb, worked so well that an
international study of it was stopped early, in April, based on
results in 321 women.Those who received Tykerb plus the chemotherapy
drug Xeloda had no growth of their tumors for 8 1/2 months. That
compares to 4 1/2 months for those given only Xeloda, said Dr.
Charles Geyer Jr. of Allegheny General Hospital in Pittsburgh.
He led the study and reported results Saturday at a meeting in
Atlanta of the American Society of Clinical Oncology.
AP_Tacoda_AMS_DDC_addPair("SECTION", "HEALTH")AP_Tacoda_AMS_DDC
("http://te.ap.org/tte/blank.gif", "1.0")
Tykerb's manufacturer, British-based GlaxoSmithKline PLC, said it
would expand global access to the drug under compassionate use
provisions, and would seek approval to sell it in the United States
and elsewhere later this year."This is huge," said Dr. Roy Herbst, a
cancer specialist at the University of Texas' M.D. Anderson Cancer
Center in Houston, who had no role in the study but has consulted for
Glaxo in the past."The next step will be to use it in patients
instead of Herceptin up front," to see whether it is more effective,
he said.Herceptin and Tykerb are members of a new generation of
cancer medicines that more precisely target tumors without killing
lots of healthy cells. Herceptin has been an important option for
many women with advanced breast cancer, but eventually it stops
working and women succumb to the disease.
Tykerb works in a similar yet completely novel way. Like Herceptin,
it targets a protein called HER-2/neu, which is made in abnormally
large quantities in roughly one-fourth of all breast
cancers.Herceptin blocks the protein on the cell's surface; Tykerb
does it inside the cell, and blocks a second abnormal protein, too.In
the study, Tykerb also showed signs of being able to prevent cancer
from spreading to the brain. That happened to four of the 161 women
given Tykerb and Xeloda, compared to 16 of the 160 women given Xeloda
alone.About 14 percent of women on the Tykerb-Xeloda combination and
11 percent on Xeloda alone stopped treatment because of side effects.
Diarrhea and rash were more common in those who received Tykerb.No
patients developed heart failure, but four of the 161 on the drug
combination had a modest decrease in pumping power of the main
chamber of the heart - side effects that also have been seen with
Herceptin.Tykerb has one big advantage over Herceptin - it's a pill
instead of an intravenous drug, which should make it cheaper and
easier to use, doctors said.
Studies are in the works to test it in combination with Herceptin as
well as other breast cancer drugs.Breast cancer is the most common
major cancer in American women and the second leading cause of cancer
deaths in women. About 213,000 new cases are expected to occur in the
United States this year and more than 1 million worldwide.---On the
Net:American Society of Clinical Oncology: http://www.asco.org People
Living With Cancer: http://www.plwc.org American Cancer Society:
http://www.cancer.org National Cancer Institute:
http://www.cancer.gov
I prefer to wait until I hae some *after* pics to post. But I think that people
like Sheggy and Lisa W who have such dramatic before and after pics need to be
prodded to include their pics!!
Pat
Naomi Moschgat <nsmoschgat@...
Lisa, could I get a pic to you by Sat? If that's too late, I will just
catch the next time you change the pic.. No biggie!!! I think it is great that
you're taking the time. Naomi
Lisa Lockwood <lockwoodl@...
my deadline for photo submissions
for the homepage. (with the exception of a couple of you who have
emailed me for an extension) Please email me your photos to
lockwoodl@... if you have not already. Also, if you don't want
to email me put have one posted here already just let me know which one
to use and I can do that if it is easier. I will get started on it
today.
Thanks,
Lisa L.
Lap RNY 9/12/07
246/168/140
ok... I think I can respond to you without leaving any original post AND without
confusing anyone...
People who respond from the website don't have a choice about leaving any of
the original post so you know what the heck they are talking about... it
automatically deletes the original post.
I know exactly what you are talking about as far as feeling old... I took
typing classes in high school too. The first computer I used, in 1974, took up
an entire room and needed it's own airconditioner. To use the modem, I had to
actually put the handset for the phone into a cradle and dial the number.
Before I got my first computer, back in the early 80's, I told my husband "I
don't have any use for a computer, all I need for school (college) is a word
processor." LOL.. yes, back then you could buy a seperate word processor
without a computer. Thank God he convinced me to just go ahead and get the
computer... complete with a 12.2k dialup modem! I think the hard drive was
256MB... LOL
I totally disagree that there is no reason to be polite to people on the
internet who you will never meet!!!! They are still people, and they have
feelings!!!
I go back to my trash to pull out your emails because I realize that my
trigger finger deletes stuff from you because I don't see it at the very top of
the post and I CARE about what you have to say. I specifically pick through the
trash for posts from you to be sure I don't miss them.
Pat
That rocks!!!!! What a great moment!!
Bdrcolliez@... wrote: After school today I was standing in the hall
talking to the teacher who has
the class next to mine. One of her students from last year came by and was
telling her about one of my former students who was in a bad fight today. I
listened to the story and then excused myself and started to walk back into
my classroom. As I walked away, I heard the boy ask "Is that a new 5th grade
teacher?" It appears that he didn't recognize me. He was not in my class,
but he did see me on a daily basis. When he was told who I was, he seemed
VERY surprised. (Maybe I do look a little bit different since I had surgery).
Joan
**************Biggest Grammy Award surprises of all time on AOL Music.
(http://music.aol.com/grammys/pictures/never-won-a-grammy?NCID=aolcmp00300000002\
5
48)
You do look great!!!
Edie
11/15/07
lap rny
302/292/252/150's
hw/sw/cw/goal
Welcome Jannifer,
How are you doing?
Edie
Hi Jamie and welcome to the group. Are you Stage IV? If not we have a sister
group that I am cofounder of that has newly diagnosed patients as well as
survivors. If you would like to join us also please let me know.
Hugs
Marianne
Breast Cancer Patients Soul Mates for Life
http://www.geocities.com/chucky5741/breastcancerpatients.html
Check out my other ornaments at
www.geocities.com/chucky5741/bcornament.html
Lots of info and gifts at:
www.cancerclub.com
CinDWood Crafts
http://www.cindwoodcrafts.com
LMAO, Pat you are such a smart a**, now I feel like I belong, Pat made fun
of me!!!
But you know what I meant smarty pants, your just jealous because I asked
Jill to mosey (better!) with me :o)
Edie
have hit the correct weight.
Lizanne, I think about this alot myself and I thought about Debra
Messing, 'Grace' from "Will and Grace". During some of the shows she
appeared almost like a stick figure and when she wore anything
lowcut, you saw a mass of bones on her upper chest that would just
make me cringe!
Then there are other shows, especially the ones where she was trying
to cover up her pregnancy where she was totally filled out and her
little face even got chubby.
I think a nice weight is not neccesarily a "Number", but it is more
the "Look". I think everyone should ask themselves, which way do I
look my best? I think that 'look' is somewhere between a chest full
of bones and a chunky area, in other words where the entire body,
from head to toe, looks 'right' to YOU, within the chart that gives
weights from small, medium to large frame, if that makes sense.
If you feel as though you aren't sure how you look, I think you
should get the opinion of three close people who see you often.
Joanne
Seattle
I just joined Breast Cancer Stories.com and have my own page. Here is the link
if you would like to read my journey through breast cancer and also the letter
by Chuck. Feel free to sign the guestbook.
http://www.breastcancerstories.com/content/view/432/161/
Hugs
Marianne
Breast Cancer Patients Soul Mates for Life
http://www.geocities.com/chucky5741/breastcancerpatients.html
Check out my other ornaments at
www.geocities.com/chucky5741/bcornament.html
Lots of info and gifts at:
www.cancerclub.com
CinDWood Crafts
http://www.cindwoodcrafts.com
Yep, Michigan. On my way to work this morning it was 7, the wind chill was
-12, It's these day's I miss Az. But as someone mentioned in a thread a
few down, I was there on the 122 day, won't forget it, I don't think my car
cooled down the whole way home that day.
Edie
My First Thermographic Experience
<http://www.clickaudit.com/goto/?30813
I had been a bit nervous all day wondering what my thermogram procedure
would entail. Would I need to undress completely? Would I be given one
of those paper gowns that opens in the front and barely covers me? Would
there be any heat coming out of the camera? I had been avoiding a
mammogram after reading the latest information about the risks
associated with X-ray; knowing that I was potentially putting myself at
greater risk by not taking charge of my health.
Read More. <http://www.clickaudit.com/goto/?30813
Hi Jill-
I didn't want you to think I had forgotten this. I am still waiting for the
surgeon's coordinator to send me the notes from the meeting last week. He went
over all the details surrounding thyroid medication at that meeting. :)
~Ally~
Atlanta, GA
Lap RNY 7/12/07
251/237/174/130
HW/SW/CW/GW
I just sent out an email that I have a new site on Breast Cancer Stories.com
however the url I gave doesn't work. Please feel free to read my story and also
sign the guestbook if you would like. Sorry for the confusion.
Hugs
Marianne
http://www.breastcancerstories.com/content/blogcategory/126/161/
Breast Cancer Patients Soul Mates for Life
http://www.geocities.com/chucky5741/breastcancerpatients.html
Check out my other ornaments at
www.geocities.com/chucky5741/bcornament.html
Lots of info and gifts at:
www.cancerclub.com
CinDWood Crafts
http://www.cindwoodcrafts.com
Hi Gail,
There is no message or attachment :-(
Hugs
Marianne
Breast Cancer Patients Soul Mates for Life
http://www.geocities.com/chucky5741/breastcancerpatients.html
Check out my breast cancer ornaments at:
http://www.geocities.com/chucky5741/bcornament.html
also check out my other ornaments and lots of nice gifts at:
http://www.cancerclub.com
Hi Lizanne-
I am actually very proud of my accomplishments! I've been feeling pretty good
these last couple days and I'm happy with where I am. What a relief it is to
have a few days of feeling happy. :)
The label thing is so hard to overcome. I still think of myself as fat, and
sometimes when I look in the mirror I still see "fat Ally" (especially when I'm
naked), but I'm trying to train my brain to think more positively.
~Ally~
Atlanta, GA
Lap RNY 7/12/07
251/237/174/130
HW/SW/CW/GW
Hi,
I am wondering if there is anyone else out here that is on the exact
same meds as I am.
I take Femara once daily, and once a month I get Zometa (IV) and
Faslodex (shot) and once every 3 months I get Zoladex in the stomach as
a shot/implant.
I have never met anyone around here getting all of these and feel like
I am all alone with these meds, and I have been gaining weight every
month with this combination and am wondering if any one else is too.
Hugs,
Carol
Carol,
You belong to the big group too don't you? Or am I thinking of another Carol.
Why don't you try posting over there as the ladies get all kinds of combos. I
will keep you in my prayers.
Hugs
Marianne
Breast Cancer Patients Soul Mates for Life
http://www.geocities.com/chucky5741/breastcancerpatients.html
Check out my other ornaments at
www.geocities.com/chucky5741/bcornament.html
Lots of info and gifts at:
www.cancerclub.com
CinDWood Crafts
http://www.cindwoodcrafts.com
Your calendar idea sounds like fun...........Kathy
Oh Lora,
I'm sooooo glad you put your pictures back up. You must be feeling
better. You have come such a long way. I'm sure everyone will agree
that you are an inspiration.
Sheggy/Shannon (one of your open gastric bypass buddies--mini open
though)
Where is everybody again. I get lonesome for you all. I had to have
my antidepressant increased because I felt like I was getting that
depressed feeling more again so I called my onc and asked if I could
take more. Sure hope it helps because I really hate that feeling. I
hope everyone else is OK and not feeling bad or too bad. Keep in
touch. Take care, God Bless, Love, Sharon
Terri,
I couldn't really tell if you decided to truly leave us, so I thought
if you were still here I would ask you some questions. I just looked
at your pictures and had two. What kind of work do you do because you
get to tease with young boys and you have Christmas in July? And the
second is how old is your daughter, I assume she is your daughter,
Ella?
Lizanne
WOOOOO HOOOOO size 12 That's wonderful.
Debby
Allison <allisonmarie22@...
So, this morning I was in the shower and it hit me that I am now a
"normal" sized person. I went to Old Navy last week to buy jeans and got a size
12. Realistically I'm a size 14, but Old Navy is really into the vanity sizing
thing these days, but whatever.
Anyway, I'm a normal sized person, but I still don't feel like it most of the
time.
~Ally~
Atlanta, GA
Lap RNY 7/12/07
251/237/174/130
HW/SW/CW/GW
Do NOT under any circumstances open any email that has the wording NEW
GRAPHIC SITE. It is a WORM!!! Chuck just told me he. He found out on
another group.
Hugs
Marianne
Hi Mary-
First of all...Happy Surgiversary! Congratulations to you for all you've
accomplished in this last year! You have so much to be proud of.
I wanted to respond to your e-mail below and let you know that I am praying for
you and thinking of you. You have been through such major changes in the last
year...surgery, divorce, relocation, being out of work! Wow! What a crazy
year!
Mary, you have every reason to feel proud and happy right now because of the
wonderful things that have happened for you (like your surgery and taking back
your life), but I can understand how the other not so positive things can sneak
in and make it seem like the walls are closing in. Don't feel discouraged if
you have to go back on your antidepressants. If you need them and you know they
make you feel better then do what you know is best. It will probably help your
insomnia too.
Remember that we are here for you. :)
~Ally~
Atlanta, GA
Lap RNY 7/12/07
251/237/174/130
HW/SW/CW/GW
I live in Israel. All the best to you too. Where do you live? I bought the book
"Chicken Soup for the Survivor's Soul" and I started reading at least one story
of someone who survived every day. I'm sure reading these stories invigorates
the immune system more than thinking about the statistics! Thank G-d my
situation has improved dramatically over the past year. Sue
I know that - but I actually clicked on the "Start Topic" link on the
Here is an article on the virus/worm that is going around.
http://www.pcworld.com/news/article/0,aid,126048,00.asp
Hugs
Marianne
Hi guy's. I know it's been age's since I've been on, but just wanted
to say hi, and hope everyone is doing well.
Welcome to the group Jennifer. We are very talkative so join in I'm sure you
will have a lot to add since you are postop. How much weight have you lost? Any
problems with the surgery?
Debby
Jennifer <daveysgirl1207@...
1. Name: JENNIFER
2. City and State: AMSTERDAM, NY
3. E-mail Address: DAVEYSGIRL1207@...
4. Are you: Considering Surgery, Pre-Op or Post-Op: POST-OP
5. Date of WLS: 09/24/07
6. Surgeon's Name and Location: DR TERRENCE CLARK SCHENECTADY, NY
7. Type of Surgery: RNY
8. Highest Pre-Surgery Weight: 332.5
9. Insurance or Self-Pay: INSURANCE
10. What is the name of the insurance company that covered your WLS
(if
applicable): MVP
11. How did you hear about this group?: GOT E-MAIL SENT TO ME
12. Birthdate: 11/16/73
13. Occupation: CSR
14. Married or Single (if married what is your spouse's name?):
MARRIED TO DAVE-5 YRS
15. Do you have children? If so, what are their names? NO BIOLOGIAL
YET-3 STEP CHILDREN & A FOSTER DAUGHTER
16. Hobbies: MUSIC, FAMILY, SELF-EXPLORATION
17. Anything else you would like to share with other members: JUST
FOUND A BOOK BY SUSAN MARIA LEACH, FOUNDER OF BARIATRICEATING.COM. IT
IS HELPING TREMENDOUSLY W/POST SURGERY BUMPS IN THE ROAD. ANY ONE
CONSIDERING WLS, IS HAVING SURGERY OR IS POST-OP, IT IS A MUST READ!
BEFORE & AFTER IS THE NAME OF THE BOOK. AWESOME ADVISE AS WELL AS
RECIPES.
I tried to connect to the internet this morning to read my email. No
luck. I had a busy day, so I ran all my errands and came home and
tried again. It kept telling me that my isp was not working properly.
I called my server and from what I could understand of her oriental
accent, I had a server problem, duh...I was told it would be fixed in
a couple hours, she gave me a ref #. I left to go get sandwiches for
after the wrestling match. When I got hom it still was not working,
so I called again, he said well you have come to the right person.
yeah right...he told me that I didn't have a modem, and I needed to
contact Compaq, he gave me the number and I called them. Wouldnt you
just know my warranty expired June 2005, so in order for her
technicians SP?? to help me I needed to pay $99 for a new warranty. I
told her no thanks I will figure it out myself.
I finally had to run the recovery disc. boo hoo I lost all my
favorites, my address, they were all wiped out, but hehehe I got the
last laugh I did it myself and it didnt cost me anything.
Now the begging starts, can you guys please send me your email
addresses so I can just hit the add button. It would save me a lot of
work.. thanks.
btw Kyle had to wrestle someone on his own team as they didnt have
anyone in his weight class. what a bunch of hooey.. There were about
5-6 kids on our team that had to wrestle each other.
Thanks
Jeana
Dear Jeanna, what a bunch of hulabaloo you had to go thru to get
on. My address is sharon_19462002@... I hope this is the one
you wanted. Have a Happy Turkey Day everybody, take care, God
Bless. Love, Sharon
Lora:
Sorry to hear about your job ending, I always have the belief that it means
something better is going to come your way. I pray that things will get
much better for you.
Susan G.
Vacaville, CA
It's true that you have less, but you still have *some*, and it doesn't take
much to dissolve a pill.
Pat
Jill <jsplds@...
Do we still have enough stomach acids to break it down? I also take
liquid Pepcid every morning to reduce stomach acid, giving me even less
than the reduced amount in our reduced tummies.
Jill
lap RNY 12-03-07
- 20.4 lbs.
I was on femara for 18 months and am still on zometta once every 4
weeks. They didn't bother me one bit that I remember.
Has anyone out there ever have an MRI of their brain. I have to have
one tomorrow cuz maybe of some symptoms I have been having doing to
do with breast mets to the brain. I hope and pray
I do not. If anyone has what were your aymptoms and treatment.
Thank you for the information if you have any others you know of
too Take care God Bless,Love, Sharon
Hello, this is my 1st post to this group. I am Doris (Lohr)
Chouinard's younger brother. I uploaded a scanned copy of
her "rememberance" card from her funeral. I don't know when the
picture shown was taken, but it was definitely before 2003 when her
chemo was restarted. The 2nd picture & note was attached to a
luminario for a "Relay For Life" sponsored by the American Cancer
Society that was held here in Colorado Springs, Colorado June 2004.
I think that picture was taken in the summer of 2000. I was hoping
to put the pictures in the Doris C folder but they wound up at the
end of the photo section (numbers 38 & 39). I sent an email to
Marianne & she said she'd move them over to the Doris C folder when
Hi all
I am new to the site ~ how wonderful to have a dedicated stage IV
forum. I have breast cancer mets to the bones and have since 2001
(primary 1996) My recent scans show progression, I have something
like 22 boney sites and the largest site in the pelvis is likely to
compromise the nerve root at S2. I am due to have radiotherapy, a
zap or fractions but have some questions for the group. Has anyone
had palliative radiotherapy? Did you have one Zap or fractions over
a time period and if so, over how long? Did any one have any side
effects,i.e. damage temporarily or permanently to the bowel, bladder
or anywhere else. I was burnt down to the bone when I had the XRT
for the primary and had an open weeping and bleeding wound for 7
years so once bitten twice shy and bear with me as I am desperate to
research this before going ahead and possibly find out if i can
prevent another disaster ~ I don't see why I should compound one
problem with another!
Also has anyone had Stontium-89, Samarium or any other
radiopharmacetical targeted therapy, yes, most reports say this
works best in metatsatic prostate cancer but some evidenced studies
of these injectables being used for breast cancer mets with some
degree of success. ~ what do you know ~ please, be happy, Velvet
Hi Dick,
Glad you posted to the group. I still can't access the photo section. Maybe if
Kathy sees this she can change the photos over for you. If not I will keep
trying. This thing HAS to get better sooner or later! Its been 11 days and they
still can't seem to figure out what is wrong with it. We have had 3 sets of
technicians out here in the past week.
I hope you and your family have a nice Thanksgiving. Thanks so much for posting
the pictures of Doris. We sure do miss her.
Hugs
Marianne
Breast Cancer Patients Soul Mates for Life
http://www.geocities.com/chucky5741/breastcancerpatients.html
Check out my breast cancer ornaments at:
http://www.geocities.com/chucky5741/bcornament.html
also check out my other ornaments and lots of nice gifts at:
http://www.cancerclub.com
I think your dr is misinformed. Crushing a time-released pill just dumps way
more of the med into your system all at once. I am happy to hear you aren't
going to do that anymore... regardless of what your dr said was ok!!! I bet if
you asked the pharmacist where you got the prescription filled he would tell you
not to crush it.
Pat
Jill <jsplds@...
Pat,
The information pamphlet that came with the medication said not to
crush it, but my surgeon told me to do it anyway. He didn't think it
would be a problem. If he had to swallow it crushed, he might just
change his mind!! I wonder if that is the reason it is so bitter
tasting . . . to make pill-crushers regret that they ever tried to
take it that way!
That was the only pill I was instructed to crush to take. I was
instructed to split my other pills into quarters. I think he wanted
me to crush this one because of its size. He doesn't like us to
swallow anything that is bigger than a pencil eraser, and this one is
easily as big around as a pencil eraser, even when cut up.
So, I'm out 5 bucks for a pill crusher. Anybody need one? Only used 1
time!! ~lol~
Yep, I read that article. It made me shudder to think what I had done
to my poor newly re-wired system!
Jill
lap RNY 12-03-07
Recent Activity
8
New Members
17
New Photos
2
New Polls
Visit Your Group
Meditation and
Lovingkindness
In a message dated 3/6/06 9:01:32 AM Eastern Standard Time,
luvinlife1219@... writes:
Hi Gail,
My name us Denise and I am also from Ohio. What part are you from? Don't
know if you heard of Warren, but that is where I am from.. Close to
Youngstown. Sounds as tho your treatment is winding down. Good for you! Take
care
Denise
gailtytoo2@... wrote:
Hi Group: My name is Gail. I'm from Ohio. I had a Mastectomy in Sept...Sept
6th, 2005. Had chemo. I'm having radiation now. I have 5 more day's then
that
will be done. Started chemo again today, the drugs are Taxol and herceptin.
Just wanted to say Hi...Gail
SPONSORED LINKS
Breast cancer treatment Breast cancer Breast cancer awareness bracelets
Breast cancer awareness braclets Breast cancer awareness Breast
cancer bracelets
Yeah, I'm sure that's a present we'd all love to get :o)
Edie
Excellent news!! Thanks for letting us know. Continued prayers.
Hugs
Marianne
Breast Cancer Patients Soul Mates for Life
http://www.geocities.com/chucky5741/breastcancerpatients.html
Check out my breast cancer ornaments at:
http://www.geocities.com/chucky5741/bcornament.html
also check out my other ornaments and lots of nice gifts at:
http://www.cancerclub.com
Welcome to our group! I have that book also...........and every little bit
helps!
Hello to Parvin also..............I haven't heard from you in a while and
was wondering how you are doing.
Love & Healing Energies,
Kathy
Thank you Denise for the prayers for my scans. The same goes out to
you when you have yours. Take care, God Bless, Love, Sharon
Hi Audrey! How are you doing? You are in my prayers.
Hugs
Marianne
Breast Cancer Patients Soul Mates for Life
http://www.geocities.com/chucky5741/breastcancerpatients.html
BreastCancerStories.com
http://www.breastcancerstories.com/content/view/433/161/
Angel Feather Loomer
www.angelfeatherloomer.blogspot.com
Check out my other ornaments at
www.geocities.com/chucky5741/bcornament.html
Lots of info and gifts at:
www.cancerclub.com
Welcome home Mindy! Woohoo on the pickup attempt... you've still got it!! I
guess hubby found out he needs to keep you close to him!
Pat
--- On Wed, 7/2/08, mindylynn98 <mindylynn98@...
From: mindylynn98 <mindylynn98@...
Subject: [WLS Friendship & Support] I am home
Judy, Lisa and anyone else who was planning on going,
I've thought alot about this trip since I planned on going. My husband agreed
to go but he hates amusement parks and was only going because he knew I would
enjoy it. I think since it's our anniversary trip and we could never afford a
honeymoon we need to go somewhere we both would enjoy. So I'm sorry but I think
I need to cancel. I cancelled my reservations tonight. I'm sure those of you who
go will have a great time. Maybe next year when I can go without my husband
would be better.
Sorry
Debby
My sister will be starting this chemo soon- she said daily infusions
for 3 weeks, then 1 week off. Can anyone tell me more about this
chemo, how long is an infusion, is this normal 3wks daily, one week
off (sounds like alot), side effects?, . I know this chemo is part of
the Taxane family, how will this work if during her initial diagnosis
the Taxotere did not? Are there other chemos out there after Abraxane
for a triple negative 38 year old. Does anyone have information on
another site that may have more in depth information on Stage 4,
triple negative, under 40?
Thank you,
Andrea
Beth!! It's good to see you here posting again :))
I guess the solution to your problem is just to read more often, before the
posts build up that much!!
Pat
Beth <beth_loveslife@...
My word, I swear I read the last digest at 4am Pacific time, it is now
almost 7pm and when I logged on I had 12 daily digests!! No wonder I
can't keep up.
Beth in CA
Wishing this could all be over with.
I haven't had any of these problems but will keep you in my prayers.
Hugs
Marianne
Breast Cancer Patients Soul Mates for Life
http://www.geocities.com/chucky5741/breastcancerpatients.html
BreastCancerStories.com
http://www.breastcancerstories.com/content/view/433/161/
Angel Feather Loomer
www.angelfeatherloomer.blogspot.com
Check out my other ornaments at
www.geocities.com/chucky5741/bcornament.html
Lots of info and gifts at:
www.cancerclub.com
Andrea,
I have never had this chemo but if you go to www.webmd.com and type it in the
search box it will bring it up. I will keep your sister in my prayers.
Hugs
Marianne
Breast Cancer Patients Soul Mates for Life
http://www.geocities.com/chucky5741/breastcancerpatients.html
Check out my other ornaments at
www.geocities.com/chucky5741/bcornament.html
Lots of info and gifts at:
www.cancerclub.com
CinDWood Crafts
http://www.cindwoodcrafts.com
i had depression for a while,so i couldn,t even come to turn on the computer.we
had a four days trip last month so i became better.i visited my oncho on
sunday.he told me to continue the pills.he said you had those effusion
before.somthing new i did.i am taking some houmeopathy pills and drops also.at
this stage i think whatever can help to have fewer chemotherpy we may try.this
doctor is an indian.but has lived here for many years.it is near spring and
everybody is cleaning her house. i didn,t do anything cause my daughter has a
big contest in a few months later for the university.she is worried very
much.so, i don,t want to make her nervous. ournew year will begin eleven days
later.i missed you alot and think about you mostly. love parvin
Whew! See Sharon? I *told* you she would never see what we said about her!!
shhhhhhhhhhh!!!
Pat
Lora <cicerogirl@...
The volume of messages from the past week, when I have been just
peeking in occasionally, is overwhelming, so I am not even going to
try to catch up!
SO... for anyone who has joined the group in the past week and a half,
WELCOME!
.... for those of you who posted new pictures, they ALL look great
(Sharon, how can you NOT see the difference?!?) -- we are all changing
(or have changed) so much!
.... for Ally, how wonderful to be able to shop at Old Navy (i'll
remember that they have vanity sizing once I lose another couple of sizes)
.... a happy belated birthday to Lizanne
.... and apologies to anyone who posted something that I missed
I'll try to go back and see if there's anything major I need to see,
but, geez...!
Lora
Funny thing happened today I went to Victoria Secret because I am
tired of my underwear slipping off my butt because I am a size 12 now
and my undies are still at least an 18. So, I was totally clueless
about sizes and I asked the saleswoman what size I would wear and she
said "well you should probably buy the large because they shrink a
lot" I was so happy because I took that to mean that I could probably
wear a medium if they didn't shrink (that's what I choose to believe
anyway) and a couple of months ago they would have snickered behind my
back and thought "wow she'll never get that butt in any of our sizes"
Lifes simple pleasures.
Lisa L.
Lap RNY 9/12/07
246/168/140
Millie,
You've been on my mind so much. How are you doing today? Are you
feeling any better? How's it going with your fluids and protein? Are
you able to rest?
Jill
lap RNY 12-03-07
- 20.9 lbs.
www.health-post.com
Good links on cancer and cancer info
Regards
Hi Andrea,
Do whatever you can do to get her to go for another opinion. The "no hope"
thing is NOT an option. It'd be kind of like laying down and dying.
Of course, I'm not trying to be overly anything here but I've been on death's
doorstep and if I hadn't of gotten up one more time I wouldn't be here. So,
please if you can. She really doesn't have anything to lose hearing what
another Onc might have to offer.
Godspeed m'dear and do let us know how she's doing.
Hugs,
Dari
Barbara... if you are out there reading.... do you have a surgery angel!!!! If
not, please post so you can get someone to do that for you... I would be happy
to volunteer!!
Pat
"Judy R." <losingforlife08@...
Lizanne, I actually made a separate folder for every person and there
are quite a few MIA. WE MISS YOU!!!
BARBARA W. is having surgery Monday. :)
Judy --- NEW YEAR, NEW US!
"Everything Is Easier With Friends"
"Be Blessed In All Your Steps"
Kaiser-Fremont, CA
262
Hi Velvet, I had radiation last summer to my pelvic area and lower
back (with the bonus of scarring my ovaries) for bone mets. I had a
total of 12 treatments. About the 20th day I began to have severe
abdominal cramping and diarrhea, which was to be expected. I had
some kind of discomfort in that area just about every day for 2
weeks. I took Immodium like it was my job, and it really helped.
Things gradually healed and went back to normal. That was my
experience.
Kelli
Parvin,
I am so sorry to hear you have been depressed. I am glad you posted. You remain
in my prayers.
Hugs
Marianne
Breast Cancer Patients Soul Mates for Life
http://www.geocities.com/chucky5741/breastcancerpatients.html
Check out my breast cancer ornaments at:
http://www.geocities.com/chucky5741/bcornament.html
also check out my other ornaments and lots of nice gifts at:
http://www.cancerclub.com
Hey Lizanne, I finally got out of digest reading to get into the group
photos to see what all the buzz was about and I agree with everybody
else; NO, that does NOT look like a wig and YES, you and your daughter
look like sisters with different hairstyles! How old is your daughter?
You can tell she is the younger sister because of her hairstyle but
when all your hair comes back in and your weight is all gone and she
puts your hair into HER style, people are going to have to check twice
to see who's who! I wonder what you would look like in a wig in her
style...
Joanne
Ladies,
This is a very nice site. I have already joined it.
Hugs
Marianne
Breast Cancer Patients Soul Mates for Life
http://www.geocities.com/chucky5741/breastcancerpatients.html
Check out my breast cancer ornaments at:
http://www.geocities.com/chucky5741/bcornament.html
also check out my other ornaments and lots of nice gifts at:
http://www.cancerclub.com
Can the person sending me adverts please resist the urge in the future?
So did you buy any undies there?
if they are rude. . do a "Pretty Woman" and tell them how much they sucked LOL
~*Sharon XOXO*~
"THIN feels better than FAT tastes!"
Lap RNY 7/30/07
HW242**SW232**CW170**GW125-130
I just wanted to say hi to everyone. I'm sorry to hear about the
mets sharon, and your problems again with the lungs parvin. You
guys just keep at it, I know it's so exhausting mentally but keep
going! I was recently hospatilised for a cut that turned into a
nasty infection due to the chemo dropping my cell counts to low.
I've changed oncs. and it was nice to hear this one say you'll get
there as oppose to the last one saying you'll never be cured. I
haven't recieved chemo for several weeks partially because of the
cell count and also because the chemo started makeing me horribly
ill wich it wasn't doing before.
I refuse to go back on chemo. I believe the cancer is gone, and
unless the bone scan I'll be haveing on the 18th or my upcomeing pet
scan (waiting on my insurance to approve it, so far it's been 3
weeks since it was submitted) shows any differently I won't take the
chemo. I can't stand how sick it's been getting me with the last
several infusions, and I just don't believe there's anymore cancer
for it to fight. My cat scans have all shown the cancer to have
left. I hope everyone is doing well. I have little access to
computers so if you write me back I won't know about it for a long
time. Take care everyone.
Love
Audrey
Audrey,
I will keep you in my prayers that your scan comes back ok.
Hugs
Marianne
Breast Cancer Patients Soul Mates for Life
http://www.geocities.com/chucky5741/breastcancerpatients.html
Check out my other ornaments at
www.geocities.com/chucky5741/bcornament.html
Lots of info and gifts at:
www.cancerclub.com
Angel Feather Loomer
www.angelfeatherloomer.blogspot.com
Dear Audrey, I like song's from the 50,s and 60,s especially when I
am driving around in the car. The other ones I like are the
relaxtion tapes I play when I go to bed to help me fall asleep. I
went to see my primary doctor today and found out I have low blood
pressure now instead of it being high so he lowered my high blood
pressure medication. If it isn't one thing it's another. Have you
ever had low blood pressure or heard of it? Take care hon, God
Bless, Love, Sharon
Has anyone had one?
Thank you Audrey for that page of information. I was just thinking
about you and the kids. Take care God Bless Love Sharon
i pray you will have a good energy to stand your situation. this pathway is very
hard and we should go through this. i,ll pray for you good luck parvin
I'm going to try another approach ladies. I was diagnosed with
breast cancer in 96. 6 chemo rounds because the tumor was 5 x 8 on
the left side of my chest. Double mastectomy radical on the left
because of mets. 33 rounds of radiation followed 1997. I was then
approached by my oncologist to do a research stemcell transplant.
The assured me that this was the best way to assure the cancer would
not return. Od course I wanted to do anything to keep it from coming
back.
I think this procedure has gotten alot better over time, less
painful, lower mortality rate. I was in the hospital for over 2
months in isolation. The goal was kill every living cell in my body
with high dose chemo. Every living cell as in your skin cells,
fingernails, all hair naturally and anything else living. When they
get you down to 0 they then put your good harvested stem cells back
in. In hopes of course that they have killed all cancer cells and
the new will generate heathly cells. Sounds rather easy but in
research of course there are no guarantees.
I have tried to find someone who has posssibly done the same
procedure or knows someone who has. Research for after care on
patients like myself are impossible to find. The drs that I do see
have no idea how to treat me or why my body is showing most symptoms
that I do have.
I am asking for help or direction to a site or person just to see if
there is help out there. I feel very alone. Are some of the
patients still alive or having problems like myself. I try to
maintain a positive attitude for the most part but I cant help but
think there is someone that can help me.
Complications from stem cell: Burnt out bone marrow, Aplastic anemia,
my blood counts have never rose to the lower of the scale. Extreme
fatigue, abnormal cysts and lesions popping up in my jaw, under left
arm just to start. Depression of course. Met in the back of my skull
in the form of a lacy pattern, nodules in my lungs, huge memory loss.
I pray someone can help me. May all angels bless you in your time of
need.
Anangelsighs
Hi guys,
I'm at a cybercafe since my computer is not back yet. I hope everyone
had a great Thanksgiveing! I have a cat scan tomorrow. I think the
cancer is completely gone, and I can't wait to have the scan. I told
the cancer that it had to be gone by December 1st period! I was
suppose to see a surgeon in January regarding a new set of boobies but
the appointment got cancelled due to complications on their end. They
set me up for an appointment in July wich of course had me crying.
I've waited so long for this, and the thought of waiting another nine
months is hard! I want boobies now!!! Anywho they sent me a letter
saying that that appointment has now been cancelled. Hopefully they
came up with a closer date, like the secretary said she would try and
do. I'll be calling them a little later to see what's up with that.
I hope everyone is doing really well, talk to you soon!
Lizanne,
YOU GO GIRL!!!!!
Judy
Myspace: www.myspace.com/nynativecagirl
"Everything Is Easier With Friends"
Kaiser-Fremont, CA
262
Audrey I will keep you in my prayers for good results.
Hugs
Marianne
Breast Cancer Patients Soul Mates for Life
http://www.geocities.com/chucky5741/breastcancerpatients.html
Check out my breast cancer ornaments at:
http://www.geocities.com/chucky5741/bcornament.html
also check out my other ornaments and lots of nice gifts at:
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Hi,
I think there may only be one person in here that had stem cell
transplant/bone marrow transplant. Her name is Holly, she hasn't been
in the group for quite awhile but last we heard she had no evidence
of disease. You could try emailing her at this address
sirosc@...
I will keep you in my prayers.
Hugs
Marianne
I have not seen a post from Sharon lately...........how are you doing?
Kathy
Pat,
Actually, you are right, I don't currently own a camera. However, I did
order one today so I should have one in a few days. I still HATE
having MY picture taken, but I do have new puppies so I need one to
take pictures of the "kids".
Joan
GL w/ your surgery tomorrow Barbara!! I wish you could have posted before you
went. . Cant wait to hear how your doing...
~*Sharon XOXO*~
"THIN feels better than FAT tastes!"
Lap RNY 7/30/07
HW242**SW232**CW170**GW125-130
In a case like yours, I would definitely recommend strengthening exercises so
the muscles can support the joint better. Just don't do anything *too*
strenuous!
Pat
vjshoem <vjshoem@...
regarding my knee, one side on the upper bone shows a bit of
movement when they did e-rays. The knee locks open causing some
pain.The ortho doc advised me that not quite ready for revision, but
if I dont lose weight it will be sooner then later.
I have used the elastic strips. They are great
Valeri
Hi Everyone. Odd title to this post but couldn't reply individually, so all
sorts of things below. Some are for stage iv BC and some for BC 2.
Back in 1996 I had a mammogram (I endearingly call it the crusher) in the
February ~ all clear. 3-4 weeks later I felt a knotty lump something the size of
the top of a thumb, rushed to the doctors and told him I had cancer. Calm down
was his reply not all lumps are cancer etc. etc.(haven't we all heard that one
before?) however, he could feel it, not my imagination, he faxed the surgeon and
I saw him a few days later. FNA biopsy and another 'crusher' ordered for the
following week. FNA came back positive, 'crusher' all clear, again ~ ordered an
ultrasound and it was on there, clear as a bell. If I had not been doing self
examining I might have been another year before the next crusher invitation. All
you ladies who are getting MRIs be grateful that medicine has moved on since my
original diagnosis. The tumour was 2 cm but I didn't get any staging or grading.
Later when the cancer spread to the bones I was told ER+ No lymph involvement
I have read a lot about your thoughts on Tamoxifen and the AIs; Femara,
Aromasin, Arimidex and probably Faslodex (the lady who is about to go on monthly
injections)
I see a number of you are having aches and pains with Arimidex. Here in UK
current guidelines are 5 years Tamoxifen then change to Arimidex because by 5
years Tamoxifen is coming to the end of it's effectiveness. Femara is about to
replace Arimidex so I understand.
Because I have mets to the bone (since 2001) I have had no option but to take
these drugs.
Tamoxifen definitely upset my vision, I had my spectacles changed every 8
months whilst on it, saw the oculist at the hospital who denied Tamoxifen can
damage the eyes, then one day I presented him with the pack insert which clearly
states eye problems. Well, he said it must be the Tamoxifen then! Less than a
year from coming off it, my sight improved. Yes, Drs are good at prescribing but
apparently not so good at reading the adverse events in the literature.
When I first had Tamoxifen I was premenopausal and bleed? did I bleed? Stood
in a shop one day and onto the floor. I was in work on the next occasion, a
prison here in UK, training inmates on health and safety and then stood up. It
poured, two inmates laughed, all of them came to look and in the end I was
entirely unprofessional and told them to 'get out' only that wasn't quite the
words I used but two words from their own database of language that they clearly
understood.
I had to come off it as I was so anaemic, I had bled non stop for 72 days. I
was offered nothing else and a few years later when I was post menopausal and
diagnosed with mets I was put on it again and of course no bleeding problems
but aching joints
Arimidex made just about every joint in my body hurt and so stiff, Aromasin
not quite every joint, Faslodex less, Femara even less.But I am now running out
of choices and will take anything to gain extra time.
I want to tell you about Faslodex. The base liquid is oil so when you inject
into the muscle it doesn't spread very well and I was left with a very painful
rear end, each month for 18 months. My nurse used alternate buttocks each time
but the build up was so bad I asked where else I could be injected and she asked
the makers (as I was on a clinical trial the drug has to be administered 'just
so') but she came back to me and said that I could have the shots in my thigh.
This was a great improvement and I guess it's because the leg muscles are used
so much they disperse the drug base. But my poor bottom end was so sore, hot,
red and lumpy for months even after coming off it. Eventually the cancer became
resistant to it and the disease progressed. If you have Faslodex (the pack
insert warns of injection site problems but makes them sound minimal) try a
thigh or two if you ever have it.
Mastectomies and back ache, YES.
In my own case my posture became rather poor, I became a bit hunched. I was
tight from the implants and could not get my back straight. My surgeon said it
happens quite often, we pull you about rather a lot on the theartre table and
the pectoralis muscle is over the implant so everything is bound to be rigid and
then there is the swelling on top of that. The physiotherapist told me to ease
my shoulders back 4 -5 times a day, (aswell as other arm exercises) accept my
posture for the moment and gradually increase the easing and hold for longer and
longer each day. After a month or so I was back to being reasonably straight.***
see end of para.
I didn't have my mastectomies until 3 years after the primary. By that time I
had found my mother and discovered all the family that had had breast cancer and
armed with this went back to the geneticist who advised prophylactic
mastectomies. 2 years after this I had a Latissimus dorsi flap to replace the
burn from the radiotherapy and pretty bad backache again. Interestingly though,
I had a leak from the saline implant about a year later and had to have it
removed and the back ache again. Because I was doing another degree at the time
and exams pending I didn't have a replacement (because longer time off from
univ) until 4 months later and.... no doubt you have guessed..... backache
returned. I think it is all to do with the rib muscles one triggering the next.
***I was diagnosed with cancer in the sternum, manubrium and collar bone so
never really got my shoulders back completely because it triggers pain.
To the lady who said she has dreadful backache and is wondering if it's a
return of the cancer, please get yourself a bone scan, MRI or whatever is the
best type for you. There is nothing like a scan to ease the mind. Alternatively,
or as well as, get someone to press firmly on each verebrae, then the muscles at
each side of them until you can locate the pain more precisely. Bone pain is
quite different to muscle pain and someone else pressing locates the source of
the pain better than yourself.
Just as a matter of interest I keep very careful notes of all visits to the
hospital and my family doctor. What I go with, what I ask, what is said, what I
am given, what I am advised, who I saw. I always take a list with me and spaced
so I can write down the answers. It takes a bit of time but write up notes in
the consultation, though some docs don''t like you doing it ... do I care?.. but
certainly when you come out because it's so difficult to remember by the time
you are home and if you are told something upsetting it throws you out
completely. Ideally take someone with you who can write down for you. Once I had
a doctor say to me, must you really write whilst I am speaking? I replied, must
you really keep answering the phone whilst I am consulting you? And we stared at
each other for some seconds neither speaking, then he continued as though he
hadn't asked. Funny old lot, some of these medics!!! (Funny old lot, some of
these patients .... well me anyway) I don't
put up with any nonsense from doctors, I don't treat them like Gods. I have in
my time met some of the rudest, once I went in and the doctor put a clock on the
front of the desk facing me and said you have 10 minutes, get on with it. So I
gave him my list and said read that and don't hang about, I have a train to
catch. I was out in 8 minutes and refused to say 'thank you doctor' He was
completely wrong,he diagnosed me with a frozen shoulder, no treatment and I
actually had Polymyalgic Rheumatica and needed treatment.
Finally I want to say to you all that I haven't been a member very long but
just adore these forums. I feel the warmth, the compassion and the love, you
are just wonderful caring and sharing people, if only we could all meet up, be
safe, be happy, be well, love from Velvet
My dietician told me to take calcium 3Xday and to not take it with my multi,
which I take 2Xday. Are there any other vitamins I can take with the calcium
I'm pretty sure D is ok...
I take: multis, calcium, iron, C, B12, zinc, biotin, D -- I think that's all
..
Hugs,
Darlene
Joanne,
I wanted to tell you THANK YOU!! That email you sent was so thoughtful and
caring. . and I have started the book. . I will be a non smoker again soon. . Im
so glad you have kicked it again and the book i used helped you also. . Just the
fact that you took the time to tell me all this. . its an inspiration for me and
i know i will quit and be done w/ them soon..VERY SOON!!!
Thank you again for your concern and compassion for me. . :))
~*Sharon XOXO*~
"THIN feels better than FAT tastes!"
Lap RNY 7/30/07
HW242**SW232**CW170**GW125-130
thank you for your prayers. i went for broncoscopy. it was too hard.and i have
cough more than before.it has been irritated.they took some pieces with
biopsy.the result was fibrotic tissue.but i don,t know why it is colapsed.i had
a consultation with a lung especialist.he has given me some antibiotics for 14
days.after that i ,ll have another chest to see what my oncho does. thank you
love parvin
Hi all,
I had some very bad news this week finding out my cancer had spread again and
have been very upset off and on since. I flit from being in floods of tears and
then perfectly fine, positive and constructive. Is there anyone out there with
some comical hospital stories ~ go on, cheer me up please?
Here, in return is one slightly unrelated to BC but is bound to make someone
smile.
My father had appointments at the diabetic clinic and the prostate cancer
clinic at the same hospital. My sister always had his appointment card as he was
a bit forgetfull (at 91) and it was she that took him, waited and collected and
it was she that knew which clinic he was going to but obviously failed to tell
him on this occasion.
So he went into the clinic consulting room, undressed all his lower half
clothes, got on the couch and presented his exposed bottom ready for the doctor
only to find a young gorgeous blonde nurse came in who said Oh Syd I only want a
blood sample. (For sugar)
He claimed afterwards that he knew he had the wrong clinic and said he would
be trying 'that one' again!
Love to all Velvet
My word, I swear I read the last digest at 4am Pacific time, it is now
almost 7pm and when I logged on I had 12 daily digests!! No wonder I
can't keep up.
Beth in CA
Wishing this could all be over with.