Web Notes

So do some of us feel 99% better, Will.
We post all of our information here, for all to see and use as they see
fit.
We will not prevent you from doing the same, if you are not selling
something.
Could it be, Will, that you are a peddler?
Would there possibly be a price tag attached to your great revelation?
If not, welcome. Please tell us here, where all of us can benefit.

I had sent an e-mail to my Congresswoman concerning all the good work
she is doing on behalf of me and those living here in her
Congressional District. It was a general e-mail of thanks! I just
received this e-mail back as well as another concerning me contacting
her about Lyme Disease Research Funding.
She was also instrumental in helping me get an expedited SSI Hearing
years ago! We need to ask for help and also start showing our
appreciation to our Congress Representatives and other political
leaders!!!!!
E-MAIL #1):
Dear Ms. Tripp:
Thank you for contacting me. I really appreciate the time you took to
share your kind words.
Please do not hesitate to let me know if I can ever be of assistance
to you or your family.
Sincerely
Zoe Lofgren
Member of Congress
E-MAIL #2):
Dear Ms. Tripp :
Thank you for contacting me regarding your support for H.R. 741, the
Lyme and Tick-Borne Disease Prevention, Education, and Research Act of
2007. I appreciate the time you took to share your thoughts with me.
As you know, H.R. 741 would provide for the expansion of Federal
efforts concerning the prevention, education, treatment, and research
activities related to Lyme and other tick-borne diseases, including
the establishment of a Tick-Borne Diseases Advisory Committee. I am
happy to tell you that, due in part to your advocacy, I have decided
to cosponsor H.R. 741.
Again, thanks for being in touch. If I may be of assistance to you or
your family, please don't hesitate to contact me.
Sincerely
Zoe Lofgren

PREVENTION MAGAZINE CONTEST - A PICTURE OF HEALTH
Maria Ruoff, a Chronic Lyme sufferer and cancer survivor, is doing her
best to bring Chronic Lyme Disease into the forefront of the media . .
. and needs your help! She is one of 5 finalists in Prevention
Magazine's 2008 "Picture of Health" contest. If she wins, she will be
included in Prevention Magazine's activities for 2008 - 2009 - keeping
Lyme in the news for the next year!
Despite the myriad of controversial positions on Lyme - we can all
agree that getting the word out about Lyme disease is very important.
Please VOTE for Maria and get every friend, support group, and others
that you know to vote for her! Just making it this far is already a
victory for us all! She is thousands of votes behind, but we can at
least help her make a good showing!
Go to . . . http://abcnews.go.com/abcnewsnow/PictureofHealth
and scroll down to her picture and select the option to vote for her.
Her submission to the contest was:
Good Morning America! My name is Maria. I'll try to condense my life
in 250 words. I am now 15 months short of 70. One year ago I weighed
180, today 130. Here goes, I was a widow at 24 with a newborn and a 2
year old. My husband died of leukemia. I devoted my life to helping
others with serious illnesses and then I was diagnosed with cancer.
After treatment and radiation, I again started taking care of others
because I was grateful to be alive.
I then discovered I had chronic Lyme Disease. I was very sick and in
pain and inactive for many years and finally realized I had to now
take care of ME! I started an "At Home" program with my motto being I
have P-M-S (Physical Mental & Spiritual strength). I walk on the
treadmill 3 times a day for 15 minutes each time. I lift light weights
4 times a week and do lots of my own "discoveries" to help my
fibromyalgia pain. I'm also an artist and now doing paintings about
our health issues.
Help me say Good Morning America in June and I'll be able to tell you
so much more about the food I eat and the supplements I take.
Thanks, Peace and Blessings!

my name is william zielenbach i suffered from morgellons for many yrs at the present time i feel 99% better u can google my name to see my wife and i on the channel 2 news los angeles if you feel u have this disease feel free to ask me ?s nothing you have experienced can surprise me nothing!!!!!!!!!! bzurbaneden@...

For what's it worth, you're not alone! I agree completely, particularly when a forum with such information is free to be perused by the public.

The following may be of some interest to some people.
I am NOT doing this, but am awaiting the CDC study because I think it
is pinpointing the parasites that I have, but if you can get your
doctor to confirm that you have an undiagnosed disease (probably
meaning, if your doctor does not seriously think you are nuts), it
will not hurt to be on a list for the NIH study, would it?
There is a phone number and website at the end.
Source:
http://seattlepi.nwsource.com/health/1500ap_mystery_diseases.html
Last updated May 19, 2008 2:47 p.m. PT
Those with rare diseases offered a chance for free treatment
By LAURAN NEERGAARD
WASHINGTON -- They're the cold cases of medicine, patients with
diseases so rare and mysterious that they've eluded diagnosis for
years.
The National Institutes of Health is seeking those patients - and
ones who qualify could get some free care at the government's top
research hospital as scientists study why they're sick.
"These patients are to a certain extent abandoned by the medical
profession because a brick wall has been hit," said Dr. William Gahl,
who helped develop the NIH's new Undiagnosed Diseases Program. "We're
trying to remove some of that."
The pilot program, announced Monday, can only recruit about 100
patients a year. But federal health officials hope that unraveling
some of these super-rare diseases in turn will provide clues to more
common illnesses.
"We believe this is not only a service to be rendered, but also
knowledge to be gained," said NIH Director Dr. Elias Zerhouni.
About 10,000 new patients a year sign up for roughly 1,500 different
research studies, many of them for rare diseases, at the NIH's
Bethesda, Md., hospital, the innocuously named Clinical Center.
The new mystery-disease program is aimed at people with the rarest of
the rare diseases - even those with truly brand-new ailments - who
otherwise would be turned away because there are no studies, yet, for
their conditions or a researcher specifically tracking their
symptoms. It doesn't promise a diagnosis, but the chance to be
reevaluated by a team of renowned specialists.
Amanda Young of Conyers, Ga., illustrates patient frustration. By age
3 1/2, she had suffered repeated lifethreatening infections that left
doctor after doctor baffled. At 8, a scratch turned gangrenous,
requiring her leg to be amputated. Yet under the microscope, her
immune system seemed normal except for an unexplained low white blood
cell count.
In 1990, not long after that amputation, her desperate parents
brought her to NIH, where the hospital director "made us a promise,"
Young recalled. "He told us he would never give up on me."
It took until 2003, but Young got a phone call: "My disease finally
had a name."
Gene research had uncovered a previously unknown immune-system
pathway - showing NIH's Dr. John Gallin that Young harbors an
extremely rare mutation, named IRAK4 deficiency, that means she lacks
a protein key for that pathway to work.
There's no treatment yet. But Young, now 26, continues to volunteer
for research in hopes of one.
To be considered for the new program, a doctor must refer a mystery
patient to the NIH and send all medical files for evaluation.
Accepted patients will undergo up to a week's additional testing at
the Clinical Center, for free.
For more information, see
http://rarediseases.info.nih.gov/undiagnosed or call 1-866-444-8806.

i am sorry i couldn,t tell you happy birthday on time but i hope you will live
many many more and be happy besides your family. love parvin

It has been quite a while and a healthy human mind sometimes forgets
such unpleasentries. I sometimes feel it moving, though I did not
when it was smaller. A kind of 'flop'.
I purchased a Beck zapper (a little black plastic rectangle about as
large as a pack of cigarettes with two copper pennies on one side).
It throws out a small electrical charge when on. Even when off it
contains a pretty powerful magnet. When it is on, it can burn the
skin if you sweat and leave it in one spot for too long. When I felt
it in an area I would place the zapper there and it would stop
whatever it was doing. They HATE electricity.
I have experienced pain in certain areas which over time turned into
a constant scraping of one area(I had forgotten the zapper) I
screamed and had to punch my stomach several times until it let go.
I thought it would chew through my stomach.
I would get signs of anemia from time to time and eat much red meat.
B vitamins are supposed to help(B12), but I have some digestive
problem with some of them.
At times I would feel cramping, similar to when I was menstruating.
I occasionally would get a sharp pain and would later find blood in
my stools.
I am thinking it has grown enough that a MRI or cat scan or something
would show it. I may have that done eventually with a more qualified
doctor.
Anyway, I have gone through most of the 'dazole' drugs and taken
multiple bouts of praziquantel. Nothing kills it, and each time I
took praziquantel I became more and more ill with subsequent doses.
But between the zapper and the fenben over a long period of time, it
is much calmer, no big sharp pains and if there is blood in my
stools, I can no longer detect it. Sometimes I awake with cramping
but that diminishes quickly and I am no longer showing signs of
anemia.
I seem to feel the most movement from it on the right side just
around at waist level. The liver is there and I know there is a
liver fluke that is not killed by drugs that must be operated upon
for removal. They believe, now, that it also causes liver cancer.
Nice. Thank you 'best medical care in the world'!
Look, a few doctors who I went to referred me to a mental health
professional, which they are supposed to do with many of our shared
symptoms. Their hearts were not in it. Others just looked dejected
and shook their heads and said they did not know where to send me
because it was not a part of their education. It was upsetting to
them, really. They are told to report to the CDC (maybe the NIH as
well) peculiar things like this. I am sure that they did.
I know the CDC is working on this, probably on several fronts. A few
days ago I heard that the NIH(National Institutes of Health) is
looking for people with problems that cannot be adequately
diagnosed. The person has to be recommended by a physician and they
will only be working with 50 to 100 patients per year.
Tell your doctor about these studies. Maybe he/she can contact the
NIH and at least get you on a list.

I'm reading about these being in and affecting your abdomen -- can you tell me your symptoms? I'm curious because I'm having stomach trouble and wondering about going to the Dr. The usual symptoms they cause have subsided or disappeared but now I have this horrendous stomach pain and diarrhea, I've lost about 70 lbs over 8 months, I can hardly eat anything without getting nauseated.
tanya

Just a word - I have seen comments by a variety of people touting
alkaline, and the same number promoting acid. It may depend on the
parasite or life stage.
Baking soda does contain sodium, as well, which you probably know but
others may not.
Fenben - I find it odd that that you are not getting quicker
results. It only works on certain life stages. I did take various
other things before the fenben. Perhaps that thinned out the
population or maybe it hit other life stages or perhaps just weakened
them enough to be more vulnerable to fenben.
I was told by an authority that if it did not kill a type of worm, it
is likely to weaken it over time. I only take one-fifth of the dog
dose daily and Wendy takes even half of that at times.
I have taken an entire assortment of different worming drugs, none of
which has killed the thing in my abdomen. I will not take higher
doses than recommended of these things because I do not want a cure
that kills the patient.
BUT I tried, in the past, skipping fenben for a day and also taking
the half dose sometimes. (People sometimes do this with Morgs)
These things STRENGTHENED the creep!
Now, for many moons, I am taking the daily doses of fenben at the
strength mentioned and although I cannot see a change monitored day
to day, over about a half a year it is MUCH more subdued.
Since this drug does not have the toxicity as the others, I, in your
shoes, would continue it. I know I did not notice a change in the
abdomen thing for at least half a year. These things seem to have a
cycle to them, as well, so it may be hard to tell if you are wearing
them down gradually.
Although we have been a bit upset on the board about promoting a
specific brand of silver products, you might look into that and take
either that or GSE every other day, or maybe on for two days and off
for several. Do not overdo these things. I think the
GSE wore down my immune system when I took it daily, and you can 'od'
on silver, too, so be moderate.
Another thought on silver. I think I heard that the people selling
the generators were no longer allowed to make certain marketing
claims on the same site. Samsung makes a clothes washer that uses
silver technology and either has or would have had, a refrigerator,
too. It is definitely antibacterial. The government has forbidden
Samsung from putting out new models of the washers. They have found
that silver from the waste water was interfering with the normal
flora and fauna in water supplies and this has caused the government
to want to discourage such things. However, I found plans of the
government to weave silver fibers into the clothing of combat troops
as well as hospital gowns because of the antibacterial properties. I
do not know if this is being done.
So, the government is looking strongly at silver and you may not be
able to purchase it off the shelves at some time. These are just
things you may wish to consider.

I totally agree that salt/c can be dangerous if you over-do it.... What kind of salt did you use? My son and I have been doing Salt/C for 2 years and it helps a lot. We use himalayan salt, corn-free vit C and always add K+ or eat a lot of platanos etc . No bad effects, but we do not do more than a teaspoon of salt a day as I feel that too much of anything over time can be bad.... the body must have homeostasis. We are lymies...

Best regards,

Lydia

I know that most people here are not using the
Salt and Vitamin C protocol, but maybe you know
someone who is...this is for them.
For anyone with parasites, Morgies or Lymies,
Salt/c can be dangerous and overly harsh. I
regret doing salt/c and believe it damaged me.
Baking soda/c would have been a much better
route, in my opinion.
Baking soda also has the added advantage of
alkalizing the body. Salt does not. An
alkaline body is hostile to parasites.
Both salt and baking soda deplete potassium in
the body. My potassium levels when I quit the
salt/c were almost nil. I'm sure this is also true
for baking soda/c. Anyone doing either protocol
would be wise to supplement with potassium.
Potassium also lowers blood pressure, which is
often an issue with salt/c or baking soda/c.
Baking soda softens some (if not all) parasites
and is definitely the better protocol. Salt
just makes them mad.
Not all baking soda is equal. If you take
baking soda day in and day out, I would
recommend a pure form...not just the box of
baking soda you find at the grocery store,
but something certified as pure.
This is just my opinion, but derived from my
personal experience.
Salt/c almost killed me.

Summer,
Thanks a lot for emailing him/her.
It is good of you to do that.
Also, thanks for the caveat on
taking fenben near the time in which
a person takes an antacid or
a product containing calcium.
I used to awake with a lot of
aches, having taken my fenbendazole
at night. I sometimes have cheese
at night, too, and since I stopped
the dairy I awake feeling much better.
I used to have a problem with dairy,
but only if I took it daily and in
goodly quantities.
Thanks, again.

I just gave a couple kaiser doctors that had not had any ratings straight across "1/5" ... and now it proclaims to all what chumps these people are:
http://www.healthgrades.com/
So take that Marina Ball, Lincoln Spurgeon, Salvador Hernandez, and Towson Tsai (not listed).
--
Niels
http://nielsmayer.com

Even though you had those radiographs, doesn't this sound like some
sort of worm cyst? A lung or blood fluke? Some things do not show
on various tests unless you hit them dead on a certain stage of their
life cycle, I think.
Have you looked into prazequantel?
I am so sorry, Baz. How frightening it must be for you.
There are more of these things than have even been categorized.
Telling you they cannot find anything merely means their detection
methods are not yet good enough.

Sorry if this has been mentioned already but how and where do you get fenben - a vet?
Another question - does anyone notice these things in their stool/bowel movements? I do not have a microscope yet so I'm unable to identify normal from abnormal but I get a ton of stringy things that appear to be worms but don't move - same stringy things I can pull from between my teeth or just under the gum line - which my teeth going bad was my first sign.
Also, besides the obvious skin problems, what body symptoms do you have? I feel awful - like I'm dying - I've lost 70 lbs, my stomach always hurts, I'd be happy if I could just sleep all the time. I have also had hallucination when I think they are at their highest numbers - anyone else have this problem? I'm having heart trouble, lung problems - its weird. BTW I'm a 43 yr old female, RN....got "sick" the day I delivered my 2nd child by c-section.....they don't know whats wrong and blame my thyroid. Wasn't until a medication (I think) caused the bottom of my feet to peel and get ulcers (dx as Stevens-Johnson syndrome) about 1 1/2 yrs ago that I could see under magnification what I thought were white worms and had the crawling and stinging and mental changes and hair changes and eyesight changes - I immediately went to the ER at the hospital where I worked. The ER doc sat on a stool about 5 ft away from me and never looked at my feet and when I told him what I saw he asked if
I saw anything else like cars or trucks coming out of my feet - they started taking my purse and stuff away and I thought I was being admitted because in addition to hardly being able to walk I was so sick from dehydration and anemia I thought they would treat me -- I was placed under suicide watch and layed in the ER on a stretcher for almost 2 days and they transferred me to a psych hospital for 2 weeks - then because it was on record I have been committed 4 times total due to that first visit - I'll NEVER go to a Dr again and I NEVER sign a record release form anymore. I have no previous mental history and am perfectly sane - the hallucinations I have had are from seeing things erupt from the sores when they make a mass exit. If that makes me crazy then I guess I'm crazy.
Woke up yesterday with quite a few of the black seed thingys in my ear and a sore that hurts like you know what and I can't get it off.
Tanya/Louisiana

I am pretty much in agreement with Dr. Kilani.
"Dr. Kilani reviewed two samples of fibers from Morgellons patients
and extracted DNA from the strands. His research indicated the fibers
could come from a fungus."
"Everyone has their own theories about this, but I don't think it's
connected to Agrobacterium," he said. "I think it's another organism
that has not been described in clinical medicine. It could be a fungus
or a parasite or something more complex than bacteria."
Kilani said he thinks Morgellons disease could be linked to areas of
the U.S. with swamp land and wet areas because there has been a high
prevalence of disease reports in the San Francisco Bay Area and other
places with bodies of water and high levels of humidity, such as Texas
and Florida.
"There is something in the environment," Kilani said. "It is probably
linked to plants, yes. Maybe it lives on plants, and it adapted to the
human host."
I have believed that I contarcted this disease from GARDENING. I had
done intense landscaping in my yard (first home) here in San Jose, Ca.
Also, who exactly knows WHERE the top soil or planting mix one buys
actually comes from!??????
Using the Fenbendazole (kills parasites and FUNGUS) which is the only
thing that is working in my case would validate his theories as it
kills both of these entities!!!!!
I still GARDEN (as I LOVE IT!!!!!) .... but I wear heavy rubber gloves
when doing so!
Wendy

http://worldnetdaily.com/index.php?fa=PAGE.view&pageId=64266
This one seems to be trumpeting the fearfactor, w/ the talk of contagion or GMO-causation. Meanwhile the lyme doctors say there's a good chance (but remains to be proven) that agrobacterium just happen to be one of the 40 or more bacteria commonly carried by certain strains of ticks. The GMO-causation is still present in the latter theory, but it describes a more likely route of infection -- a tick-bite -- rather than eating GMO food in which
the agrobacterium had been killed long ago in the creation of the genetic modification.
Of course, the alarmist article above doesn't mention any of the plausible theories of Dr. Stricker -- tick transmission of morgellons as a lyme coinfection... they just maximize the "mystery" and the dread since it sells advertising.
Of course the real issue is that nothing kills agrobacterium, not without serious risk of killing the human in the process... on the other hand, the
only people that get infected by them nowadays are AIDS or transplant patients. So the key is in improving the measurably low immune system
of people afflicted with the disease so that they do not get "opportunistic infections" caused by diseases like HIV and Lyme disease.
And the even bigger issue is that the medical community has been stood on it's head by formally codified medical fraud -- so that BILLIONS of cases of disease (
View the entire IDSA agreement (you shouldn't believe your doctors any more than you believe your politicians -- they're all completely corrupt!)
--
Niels
http://nielsmayer.com

As a person who studied Parmacology in college, you should know that although it
can be very beneficial for helping us break up and expel the phlem that can
accumulate overnight, you can build up a tolerance to it like anything else. It
also can cause a rebound congestive effect if it is taken over a long period of
time.
As with anything in life, food, sex, drugs, drink, etc., balance and moderation
are key. It is very effective when only used, as I do, for the mornings I wake
up with edema in my extremities. On these days, I also notice I am wheezing
quite a bit. I will cough up large, cloudy or clear balls, (literally they are
all PERFECTLY ROUND). Under microscopic examination at 60x, fibers and black
specks are clearly visible. When it first happened, I freaked out. I run
half-marathons at my best, 3-5 miles four or five times a week at worst, but as
a child I was misdiagnosed with Cystic Fibrosis because I was constantly sick
with severe pneumonia. By the time I was eight, I had been exposed to God knows
how many chest radiographs, and how many courses of abx. I know my mother
really worried, because every time I was getting filmed, AGAIN, in the ER by
another MD, she would tell them my history and ask them not to expose me again.
It never worked.
In any case, I grew out of it by my teen years, and haven't had any chest
related sickness until three years ago. Since then, I have been hospitilzed
with pneumonia once, and had it three times. I worry so much about what other
unknown things are being done to my body by this disease while I go on with
daily life. There are bad days when I wonder if I will die from complications
and no one will ever know.
Sent via BlackBerry from T-Mobile

Here is a scary fact....I had lymphoma and had mass radiation to my body to kill the cancer. I lost my skin, hair, taste buds, lining of my mouth, saliva, etc....And during the whole process my Morgs was just as bad as ever.....The radiation didn't kill it. Radiation is like a microwave that cooks from the inside out....Whatever this is wasn't affected or destroyed.
patram81 <patram81@...

If you are taking higher fenben than the recommended horse dose,
please look up symptoms for liver damage and have a test every now
and then.
Maybe you will have found a quicker solution for the rest of us, who
knows?

Thank you again Pat,
You must be in a really good mood today or a really bad one. You
have twice been so nice to me. Thanks. I look forward to receiving
those exercises and I will follow them EXACTLY as you say.
Lizanne

I just read your response Patram. Thank you for thinking outside the box with
me. Of all the people who post, I truly appreciate you and Wendy Tripp for your
intelligence and willingness to think outside the box.
PEOPLE, Albert Einstein once said, (perhaps not verbatim, but as close as I can
remember), "Doing something the same way over and over again and expecting a
different result is truly the definition of insanity". Doctors, the media and
government have refused to believe us, regardless of intelligence, education
level, profession, or prior level of respect within the community. Why would we
continue to scream about Morgellons? Let's work together to find another aspect
of this, such as the parsite component, we can approach them with. I am so DONE
with being called delusional!!! Until the CDC announces the results of the
underfunded and and bogus study, I am approaching this differently.
Nicole
Sent via BlackBerry from T-Mobile

YOu are so right.
There was a time when I thought of my body as a torture
instrument and myself as being trapped in it.
I got over that, though.

Thank you, Lynn.

I am in my mid 50's and around age 25 or so got chronic fatigue
syndrome at that time they didnt know what it was so i do remember
going from doctor to doctor and all of them thought it was in my head
so i understand the plite you are all in and i am new starting out
with whatever this is i have which seems to be slightly different but
some the same. I tried something last night which seem to help i had
bought a big plastic container of face wash with one ingredient was
tea tree oil and other things in it It is called "Desert Essence
thorougly clean face wash with organic tea tree oil and Awapuhi" i
decided to try it on washcloth to rest of skin and didnt itch all
night today i am some but not as much. I got it at the health food
store which i have it for my rosesaca it seems to make it better.
Going to doctor Tuesday going to make this doctor give me something
or else. Has anyone tried Tea tree oil? I am experimenting with stuff
just to try before i see doctor. I was going to try DEETS but couldnt
find any in the house guess i thru it out when i found out i was
allergic a while back. Has anyone tried DEETS?

We are all here for support and to try to find answers. No one should be offended by your story or struggles, as we all have our own.....I know the questions and responses can get repetitive or tiring, but we all need to remember how we felt when we thought we were the only ones in the world with this horrible, depressing disease....A little compassion and patience goes a long ways....Especially since most of us have been to many doctors and were just told we were nuts and it was all in our heads....I want to stress the point that this is a "SUPPORT" group. My thoughts and prayers are with all of you who struggle with this disease. ~Lila
lynnswhitespeare <lynnswhitespeare@...

When I first joined this group I started at the beginning of the posts
on this group and read every one, I still find it helpful to read over,
I would suggest this to anyone joining the group, good luck

When I first joined this group I started at the beginning of the posts
on this group and read every one, I still find it helpful to read over,
I would suggest this to anyone joining the group, good luck

Please keep in mind that we may not have identical parasites (but we
probably do). So one cure may not work for everyone. On top of that
I would imagine that a truly delusional person would gravitate to
sites like this.
My husband does not have this, either.
To me, early on, this was a pretty clear indication that the problem
was inside of me. I do think that this internal problem may be an
attractor to outside bugs, as well when we are not controlled.
As far as how I got this, I have theories. Some small animal died in
the house and went undetected - a mouse or bird. By the time I found
it, it was too far gone to tell. So, at least that may be the source
of mites that were in the housat one time. I know they were mites
because they bit the cat, too.
I bug bombed the house a few times and would spray, at least once a
day, with lysol - behind furniture, under mattress, etc. I would
also vacuum the house several times a day, paying particular
attention to dark areas as the thing that bit me seemed to come from
those areas.
There are rodent and bird mites that are invisible but very painful.
This was different than the things crawling along inside my body and
biting all the time.
Most people go to many doctors of various specialties. The most
common response we get is that we are paranoid, because when the
doctors research our symptoms, that is what they discover.
Worm eggs are often as small as a grain of sand. Nobody can convince
me that these things are inspected for in all the meat that we eat in
this country. I now make sure my meat is frozen or/and well cooked.
I will not eat sushi.
Some of us garden. I used to love that. I remember falling while
digging in a small hill and probably got dirt in my mouth. STUPID -
STUPID - STUPID!
So I think I got this from food or gardening.
I control this with fenbendazole. I eat a fairly low carb diet. No
more gardening(probably overkill on my part). I find garlic (not
tablets or capsules) to be helpful as well as GSE(liquid). Garlic
can be taken at will. GSE, sporadically, allowing my immune system
to recover(my personal experience). Once in a while (no closer than
once a month) I take Moxidectin to control some things I have that
fenben will not. I do not think most Morgs people require the
moxidectin, but I know I have multiple problems/infestations and it
helps me.
I have not tried silver products.
I have tried many herbal remedies, most of which, for my condition/s,
were a huge waste of money.
I have also, in the past, tried many other drugs, purchased from
international sources which may have cleared up some things, but not
others. When you thin down the population you can observe distinct
sorts of movement and activity. If you are heavily infected it is
hard to find a logical connection between a substance you take and a
result.
So, perhaps some of the earlier things were of some assistance, but
the few I have settled on are the most effective for me.
Oh, I also have some abdominal problem and sometimes use a Beck
zapper. It cannot be on for too long because it can burn the skin.
I notice that it contains a magnet and keeping the mechanism off and
just placing the zapper on an area can discourage the 'thing'.
Also, for a short time I had problems with my teeth, as some others
have. I am now in the habit of chewing sugarless highly mentholated
gum in the evening, just one piece, and it has removed that problem.
Eye and ear involvement can lead to serious problems that sometimes
have no solutions. I have used a vibrator on the ears to discourage
them. These problems are with eggs, and perhaps 30% of cases have
been cured with albendazole, as it passes through the blood/brain
barrier. Perhaps fenbendazole will also do this.

I am kinda a newbie to this group can we get a file on the group that
remedies everyone has tried i see so much scattered thru all the
emails just thought if we had a list of tried remedies then results
or prescriptions whatever and if you knew what you had as a parasite
too mentioned maybe it will help us new ones coming in. I would
suggestion that everyone could add their own remedies to a list on
the group somehow. Just a thought and suggestion please.

What meds are you speaking of? Pet de-wormers?
Perhaps we should approach the media from a completely different angle? How,
with the influx of immigrants and easy travel, Americans are being infected with
third-world parasites that American MDs, in their arrogance, are ill equiped or
completely untrained to deal with and treat.
Sent via BlackBerry from T-Mobile

Garlic does seem to work against Morg and I think there is a key
here. When you eat alot of garlic some of it comes out through the
skin. Seems that a large percentage of what Morg is and does is "in
and on" the skin. I get this feel not only from my garlic experience
but also with my use of strong bacteria washing soap. In,
particular, I am getting good results with Dettol and others seem to
be saying that they are having success with other strong bleach
washing soaps. Perhaps if we eradicate it from it our skin it will
get the hint and go away... Zip

Thank you Wendy. Happy Mothers Day to you!!! I hope your kids are being good
to you, because they have a sweet, intelligent and AMAZING MOM!
Have an AWESOME DAY, Wendy!!! :)
Nic
Sent via BlackBerry from T-Mobile

Patram, another wonderful post.
Perhaps I did not read far enough, but I understand this House Bill is ACTUALLY
addressing the improper use of antibiotics in LIVESTOCK, which is responsible
for many resistant forms of bacteria which are affecting humans, not the fact
that humans are consuming medicaments intended for animals.
I don't believe the problem of humans consuming de-wormers, etc., sold for
animals is such a huge issue that it would garner a bill in the House or
Congress.
Patram, correct me here if I am mistaken. As I said, I only read the first few
paragraphs.
Happy Mothers Day to all my fellow Morgie mothers. I hope you all get a one day
reprieve from your symptoms and have someone who cares for you today.
Nicole
Sent via BlackBerry from T-Mobile

I did use some pesticides last summer to try to kill millions of box elder bugs i know i was exposed to it but i really think i had this problem before this.
kmwmar <kmwmar@...

http://tinyurl.com/5scmod
( for comments about this topic )
See the Link above:
UPDATE: Morgellons research stopped by Stony Brook after images and
Raman graphs posted revealing information.
Just found out Today (May 9th, 2008) that Mark Darrah's superior has
informed him that he can no longer use the Raman Scopes to research
Morgellons.
Oddly enough, it happened immediately after these crystal photos
below on Page 6 and 7 went up identifying an object retrieved from
someone's body was identified as a possible Organophorophus/acetate
type of crystal used in pesticides.
http://lymebusters.proboards39.com/index....ead=8242&page=1
http://tinyurl.com/4vscxl
(Link to the crystal photo's)
see them on Page 6 and 7
So many are relying on Mark Darrah and his never ending quest to find
answers.
It will cause much loss of hope everywhere for many of us who suffer.
Though I am still "living and breathing", Morgellons has indeed taken
my life.
There have been far too many suicides/deaths and loss of quality of
life.
Please help get the word out about what is happening behind closed
doors.
Why was Mark Darrah told that he could not use the equipment at Stony
Brook university?
I would like to know the answer to that question and more!
Mark Darrah was not paid and this research was performed on his free
time.
If we want the full story, please do as I did and request for Mark
Darrah to be a guest on Coast to Coast where he can explain to us.
Request Mark Darrah for a guest below.
So I emailed everyone below:
Please help Mark Darrah Continue!
artbell@mindspring.com
george@coasttocoastam.com
ian@coasttocoastam.com
lex@coasttocoastam.com
lisa@coasttocoastam.com
shawn@coasttocoastam.com
tom@coasttocoastam.com
Thank you all and we must fight for research to continue!

Seshmet, CRMT, OM, OLG
Usui Grand Master Teacher

If someone would wish to take on the responsibility of contacting
people via personal email, fine. I just have answered so many
private emails and am purely sick of it.
Industry would certainly prefer us to have such things at the ready.
The US government has shown time and time again that it supports
industry, sometimes even to our detriment.
The CDC is really examining these problems that we are having. There
are a number of parasitic ailments that the medical profession in the
states has been ill-equiped to handle and because of migrating
populations and weather changes our people are becoming ill. Until
they have some 'approved' way of handling this and have instructed
labs on the failures of detecting these things and doctors how to
treat them, I very VERY strongly doubt that this would even be
considered.
They certainly do not want a rash of suicides as a result of their
ill preparation for this, which would have seemed obvious had they
any foresight. The insurance companies do not want us in and out of
mental institutions.
No, I really do not think this would happen. There are too many
people who have pets as well as farmers, breeders, etc, who make use
of these things.
This is both a moral and a legal issue, and I am not a lawyer, but
adult to adult, I believe that we are totally within our rights to
recommend such cures to each other. It is considered that
responsible adults will act with prudence concering such matters.
The only way to get into trouble is to guide children to such things
because they are not considered to be able to make their own
decisions on such matters.
I cannot take the attitude that 'I got mine, and the hell with the
rest of those suffering'. People come to us for help and though I
get bored and sometimes sick of all of this and sometimes need a
break because I think we dwell on this ailment so often that we begin
to think we ARE our disorder. We all must take mental breaks at
times.
But we are considering weighing the threat of government
intervention, which is very remote; against people who contact us who
are desperately in need. As people helped me and guided me in my
search for help, I think we are compelled by whatever good forces
may exist in the universe to try and help others to the best of our
ability.
I do not think everyone in government service is irresponsible and
unthinking.
Each of us must do what he considers best. I am not so young, and
spending time behind bars is not something I would look foward to,
but perhaps my remaining years have less to lose than if I were young
and had a child.

Wendy,

I have to second that-I have tried numerous other things and I had quit doing the fenben routinely-at which point my symptoms began to reappear-I was taking a different "anti-infective/antiparasitic" and I have gone back to the fenben-it has helped me with the lesions, first and foremost as well as the fatigue and the "film" on my lips.

Take care,

Lori
Wendy <WETRIPP@...

Fenbendazole has been the only thing that has stopped the ITCHING,
LESIONS, ABSCESSES, SWELLING IN FEET & HANDS, .....
I have been on it for 16 months and do get Liver Function Tests. Epsom
Salt baths are also soothing to the skin and stop itching.
It is my opinion that Infectious Disease doctors will NOT BE ABLE to
help you as they have no idea along with the rest of the medical
community when it comes to treating an UNKNOWN Disease! Waste of time
and $$$$$. A friend of mine went to see a top Infectious Disease
Doctor from Standford University and he laughed at her and NEVER EVEN
EXAMINED HER!!!!!!!! GO FIGURE!!!!!!
Lyme Disease Doctors have been also attempting to help Morgellons
patients as many of us have both diseases. They are usually never
affiliated with any Hospitals or covered by Health Insurance so all
costs will be PAID BY YOU! I don't know if any of them have conquered
Morgellons either.
All that I know is what I have been doing has worked and given me my
life back! If only these scars would disappear!
Wendy

whatever i have the salt baths (epson salt) didnt work i tried that first and it just made them bite more but the sun powdered with color safe bleach and alfafa tablets seems to stop it for a while then now i am getting some more to bite but maybe not as much as before. Either that or i am allergic to bleach. There was a time years ago i thought i was allergic to bleach.
Lori Ferguson <creativelor@...

Wendy,

I have to second that-I have tried numerous other things and I had quit doing the fenben routinely-at which point my symptoms began to reappear-I was taking a different "anti-infective/antiparasitic" and I have gone back to the fenben-it has helped me with the lesions, first and foremost as well as the fatigue and the "film" on my lips.

Take care,

Lori
Wendy <WETRIPP@comcast.net

Fenbendazole has been the only thing that has stopped the ITCHING,
LESIONS, ABSCESSES, SWELLING IN FEET & HANDS, .....
I have been on it for 16 months and do get Liver Function Tests. Epsom
Salt baths are also soothing to the skin and stop itching.
It is my opinion that Infectious Disease doctors will NOT BE ABLE to
help you as they have no idea along with the rest of the medical
community when it comes to treating an UNKNOWN Disease! Waste of time
and $$$$$. A friend of mine went to see a top Infectious Disease
Doctor from Standford University and he laughed at her and NEVER EVEN
EXAMINED HER!!!!!!!! GO FIGURE!!!!!!
Lyme Disease Doctors have been also attempting to help Morgellons
patients as many of us have both diseases. They are usually never
affiliated with any Hospitals or covered by Health Insurance so all
costs will be PAID BY YOU! I don't know if any of them have conquered
Morgellons either.
All that I know is what I have been doing has worked and given me my
life back! If only these scars would disappear!
Wendy

http://tinyurl.com/5scmod
( for comments about this topic )
See the Link above:
UPDATE: Morgellons research stopped by Stony Brook after images and
Raman graphs posted revealing information.
Just found out Today (May 9th, 2008) that Mark Darrah's superior has
informed him that he can no longer use the Raman Scopes to research
Morgellons.
Oddly enough, it happened immediately after these crystal photos
below on Page 6 and 7 went up identifying an object retrieved from
someone's body was identified as a possible Organophorophus/acetate
type of crystal used in pesticides.
http://lymebusters.proboards39.com/index....ead=8242&page=1
http://tinyurl.com/4vscxl
(Link to the crystal photo's)
see them on Page 6 and 7
So many are relying on Mark Darrah and his never ending quest to find
answers.
It will cause much loss of hope everywhere for many of us who suffer.
Though I am still "living and breathing", Morgellons has indeed taken
my life.
There have been far too many suicides/deaths and loss of quality of
life.
Please help get the word out about what is happening behind closed
doors.
Why was Mark Darrah told that he could not use the equipment at Stony
Brook university?
I would like to know the answer to that question and more!
Mark Darrah was not paid and this research was performed on his free
time.
If we want the full story, please do as I did and request for Mark
Darrah to be a guest on Coast to Coast where he can explain to us.
Request Mark Darrah for a guest below.
So I emailed everyone below:
Please help Mark Darrah Continue!
artbell@...
george@...
ian@...
lex@...
lisa@...
shawn@...
tom@...
Thank you all and we must fight for research to continue!

Fenbendazole has been the only thing that has stopped the ITCHING,
LESIONS, ABSCESSES, SWELLING IN FEET & HANDS, .....
I have been on it for 16 months and do get Liver Function Tests. Epsom
Salt baths are also soothing to the skin and stop itching.
It is my opinion that Infectious Disease doctors will NOT BE ABLE to
help you as they have no idea along with the rest of the medical
community when it comes to treating an UNKNOWN Disease! Waste of time
and $$$$$. A friend of mine went to see a top Infectious Disease
Doctor from Standford University and he laughed at her and NEVER EVEN
EXAMINED HER!!!!!!!! GO FIGURE!!!!!!
Lyme Disease Doctors have been also attempting to help Morgellons
patients as many of us have both diseases. They are usually never
affiliated with any Hospitals or covered by Health Insurance so all
costs will be PAID BY YOU! I don't know if any of them have conquered
Morgellons either.
All that I know is what I have been doing has worked and given me my
life back! If only these scars would disappear!
Wendy

no sure i have the morgellons but might have just parasites so how does garlic work on that anyone try it yet? I am thinking of getting it at the grocery this weekend for preventive measures at least
zip22045 <zip22045@...

I have had some good results using Dettol which is also contains
bleach or chlorine based molecules.

I have had some good results using Dettol which is also contains
bleach or chlorine based molecules.

If you're thinking that they will help you with Morg, it's a waste.
Not that they couldn't help but because Morg is yet recognized as a
disease they won't Lyme literate Doctors (LLDs) and some few doctors
that currently treating Morg on there own will be more of a help but,
the $$$ comes out of your pocket. Zip

has anyone tried the sun powdered with color safe bleach and the alfafa tablets yet i tried it and the first time i havent got any biting feeling after a bath. I saw some black specks in the water afterwards but felt it might had been residue from the tablets not sure if the specks were black or dark green it was hard to tell. For once i do feel alittle relief will tell you more later, i am taking the pills also to see if that helps too.
Tony Gomes <advent_child_ff7@...

not only waste of time but aslo money and effort. So save yourself some trouble sis..

not only waste of time but aslo money and effort. So save yourself some trouble sis..
summerbreeze23342 <summerbreeze23342@...

I'm wondering if anyone here has ever seen an Infectious Disease
Specialist. I would like to pursue that route and I'm wondering
if it's a waste of time.
Has anyone ever had a doctor find anything? Maybe the underlying
reason for this disease? Or parasites, etc.?

I cannot say what you have, but I have shared some of your symptoms.
I, too, have not had fibers.
I know I have a problem with worms and my main help has been a
worming med for animals which they sell in some countries for humans,
but not here.
Others here have taken it, fenbendazole, and most have been helped.
There is also a low carb diet, garlic, GSE(but not constantly). Some
have been helped by silver solutions.
Doctors and labs in the US are terribly deficient in knowledge of how
to detect these things and they will not treat what they cannot
detect.
Generally, holistic remedies address worms of the digestive tract,
but ours are throughout the body.
You can look up past posts for more information on diet and other
aids which have been discussed here.
Most of us have had this problem for years. It will probably be
years before the results of the CDC study on worms, Morgellons, and
other parasites becomes usable information for many of us.
THere are many sorts of worms, and I believe that may be one reason
why we all share some symptoms, but not all. Some worming
medications that you can get over the counter for animals can be
dangerous, so if you go this route, be careful.
Fenbendazole(brands Panacur, SafeGuard, 8 in One) is much safer than
most, but comes in various forms and the dosage varies. The human
dose is mentioned in past postings. It exits through the liver, so
especially if you are taking other substances, you should probably
have your doctor check that from time to time and know the symptoms
to watch for if you have problems. I have heard of no one having
problems, though.
Research fully whatever you decide to do, though. There are no
medical people here that I am aware of, and it is important that we
act responsibly.
I know of no one who has been accurately diagnosed or successfully
treated by doctors in the US. Most of us have had varying stories
concerning their inadequacy. But I blame the labs. You cannot treat
what you cannot detect.
Having this problem is far from pleasant, but there will be a
solution found, so our job is to keep ourselves as healthy as
possible until we can get treatment.
Good luck.

I forgot to mention what has been going on with me. I have the creepy
crawlly biting sensation under skin or on skin mostly in extremeities
but have felt it most of body. Sometimes burning sensation like i am
being radiated within my body on the arms mostly. Sensitive to cold i
am cold all the time which it can be 70 or more and still wrap up in a
blanket. Hair is thinning and lose alot in a day. Fibromyalgia symptoms
started out with Chronic Fatigue which the fatigue is the worse of all
symptoms. Gain lots of weight. No energy. I have roseaca and was told i
have facial bacteria which now i am using tea tree wash to help it.
Muscle pains and aches like from arthritis or Fibro. Digestive
problems after meals especially, lots of gas and intestine problems.
Eye dryness or fuzzy vision. Head itches alot trying new natural
shampoos but nothing works to stop it worse at night when laying down
for sleep. After getting a ionic detox foot bath i had black specks in
the water which they explained that off as metal toxicity. I actually
felt better after having that done. More energy etc. I am sure i will
do it again found a place kinda close to me. Tell me if you think i
have something similar to anyone here.
Debra

Hi i am new to this site just was told about this condtion from
someone i know online they had an article about it. I am not sure
what i have but have had the creepy crawlly feels like bugs crawling
under my skin for years. I explain it off as anxiety, nerves and even
allergies. Doctor thinks it is just dry skin so have me on
Hydroxyzine 50 mgs. I do have dermititis also after seeing a
dermotologist. It seems like it has gotten worse since i moved into
this older home we bought especially in the computer room, not sure
this has anything to do with it but it does seem like it is worse
when i am working on the computer. I do not have lesions or the
fibers I have not notice that but do have the crawly feeling like
bugs underneath the skin. I do scratch places occasionally and make
bleed but do not see any fibers like they mentioned. Maybe i have
something like this but not exact so i joined this group to find out
more about this disease and if i can get some tips on stopping the
itching, sometimes burning, crawlly feel with this skin most of the
problems happen in my extremeties not the other part as much. Can
anyone suggest something i can try to help this sometimes it is so
bad it is driving me crazy but most of the time this hydroxyzine
helps some think it is something like Benadrill but prescription
strenght. I read online that the alfalfa tablets with sun powdered
laundry detergent with colorsafe bleach worked or sea salt or epson
salt etc does any of these really work. Do you think it is possible i
have the same thing? or do you think it might be something different?
Tell me what you think? I am curious and just want others opinions?
Debra

Thanks. I noticed a lady in our local natural foods store ordering
Vitamin C powder, and wonder if she uses it in this manner also.
Worth a try!

Clindamycin and/or Azithromycin help me with the itching...

Like many of you, the itching is worse at night and wakes me up. I'm
currently running an 'experiment' with Benadryl on one side and Oxy
lotion (benzoyl peroxide) on the other. The Oxy has the added benefit
of being tinted,so it looks less hideous to the public and co-workers.
When it dries, it tends to look like that old Calamine lotion we put on
for poison oak and mosquito bites. But if it works, who cares?

Hello Everyone,
Some new information on the crystals people are finding in
their skin.
They are graphing out as "pesticides" an organophosphorus/acetate
type material.
Gosh, why are they coming out of our bodies?
Here is the link with more explainations from Mark Darrah,
Morgellons Research Director at Suny in New York..................
Many more photo's added yesterday to this Link with
more descriptions.
http://lymebusters.proboards39.com/index....lay&thread=8242
Sincerely,
Karen Marie, RN
Mark is taking samples for anyone who wishes to have
themselves examined and graphed out. (may help convince
your Medical Doctor this is INDEED REAL)
The more samples, the more he can search for a pattern with
all of us.
Contact me for information on how to get samples to him!
FYI: Mark is doing Private individual research on his own time
and money and not involved with MRF or NMO! He simply wants
answers and reads our posts and believes in our suffering.
He is sharing his information as he learns and researches so we
all can know what is going on. Even if no definitive answers are
yet found. We can be part of the research!

http://tinyurl.com/4vscxl
This Link should work to the information
and images!
The other one didn't?????

I don't drink so it's never been a question or a problem for me.
HOWEVER ..... while taking medications say, Fenbendazole which can
potentially cause liver damage .... adding alcohol to that scenario
can only compound the potential for added liver damages!
Remember your not supposed to take antibiotics with alcohol either as
the benefits of the antibiotic are lessened.
Some other medications (including those that I take for my bipolar
illness) are labeled as not to be taken with alcohol as far as
dangerous side effects as well as the added possibility of liver damage.
Be careful drinking with any medication. I'm sure that with our immune
systems lowered it can't help them! Maybe the 'hangovers' are telling
our bodies that drinking is not good for us!
Wendy

If getting drunk killed them all, I wouldn't be on here wasting my time, I'd be mixing up some margaritas....They actually seem to thrive on the sugar in most alcohol....Although I only drink wine or mixed drinks....Maybe a straight up martini or a beer is the way to go....I think the Morgs has made me very intolerant to alcohol....meaning I am an extreme lightweight and get terrible 2 day hangovers on just a couple of drinks. My symptoms are also worse the next day. Too bad :(
zip22045 <zip22045@...

Anybody out there have any ideas or experience on the affect of
drinking alcoholic beverages on Morg. Wonder if getting drunk would
kill them all??? Zip

Anybody out there have any ideas or experience on the affect of
drinking alcoholic beverages on Morg. Wonder if getting drunk would
kill them all??? Zip

Some worm eggs can remain dormant for 5 years.
We do not have a diagnosis, but I know I have worm problems,
and all I can do is try and think this out the best I can with the
tools available.
I am no longer researching on the net, which can become an obsession.
I would show you the web sites, but when I looked all of this up it was
only for my own elucidation. It was enough of a deal for me to
dedicate so many days of my life to this garbage. I did not document
anything. You might find more current information than I had.
I have considered that most of the information on medical sites is
factual, or nearly so. Many of the 'holistic' sites I saw only
addressed worms of the digestive tract. Some holistic sites used
shocking pictures and language just to get you into panic mode and
purchase their products.
There are conditions caused by worms that medical sites said they had
either no or very sparse success with, and I would do all that I could
to keep them away from your eyes and ears.
There are people on other forums who are attributing this thing to
other causes, jumping from one improbable theory to the next. They do
this in speculation of both the parasite and the cause of it. Also,
they try one 'miracle' cure after another, initually all claiming how
wonderous the product is, only to find later that the problem is back
again or, worse yet, that some are winding up ill.
I have read that the 'dazole' drugs interfere with the worm's ability
to use carbs. That does not explain why it is killing some eggs
because they are not eating.
Various worms can create cysts, but I think you have to identify the
specific worm to know about cyst survival.
Cysts can be in the digestive tract, muscles, blood, brain.
Amazon may have some good books on parasitology.

I have lupus as well, and can remember ten or fifteen years ago when
even educated people thought lupus and CFIDS were not 'real' illnesses,
and sufferers were ridiculed. I'm sure the case of Morgellon's will be
similar. And if you recall, early AIDS victims were treated like crazy
hypochondriacs or told that their 'lifestyle' was stressing them out.
Anything to deny the existence of an infectious agent. Another example
is mad cow disease; the prion had never been heard of, yet finally the
medical evidence was impossible to ignore.
Good luck to one and all.

It's been debated for a long time but think that the conclusions are
that C does help your immunity and might help keep the worms away
too... Zip

Well said and I'll second that and think it bodes well for we Morg
sufferers too. Should serve notice on the CCD and Kaiser that
potential conflicts of interest will be scrutinized and could also
force them to have an unbiased independent review in this respect of
their Morg Study findings... Zip

This is awesome! Things are starting to happen slowly but surely.... the masses are starting to wake up because there's so many sick people out there that are sick of being poisoned and then prevented from safe and viable treatments to get well. Read "Lab 257" by Michael Carroll and then extrapolate why all of a sudden there are strange worms infecting people. Bio-weaponry.

I read somewhere on the net that similar fibers analyzed from Morgellons victims are being found in Chemtrail air samples.

Bio-engineering our food is killing the bees, bats and now birds... also linked to gut and immune disorders in autism.
On a positive note, a case was just won where the federal government admitted that vaccinations were a factor in plummeting a child into autism - google Hannah Poling. (My son is autistic and has lyme disease - I have lyme disease).
We have to get to the bottom of what is going on and "they" have to STOP TESTING ON US!
Lydia
Check this out!!!
http://www.ct.gov/ag/cwp/view.asp?a=2795&q=414284

Hi Group: My name is Gail. I'm from Ohio. I had a Mastectomy in Sept...Sept
6th, 2005. Had chemo. I'm having radiation now. I have 5 more day's then that
will be done. Started chemo again today, the drugs are Taxol and herceptin.
Just wanted to say Hi...Gail

Thanks Niels
Bought Dettol on the net as you suggested and it works as you say.
It's quite strong and diluting it with water is best when applying
it to your skin. In fact, I'm suppressed how well it does works. It
seems to permeate the skin and keeps working for hours after you
rise off. I feel markedly better... Zip

Quick answers: 1. Don't know, 2. Yes, 3. No idea...

I agree with patram on low carb diet (my stinging and biting sensations has improved). Summer don't panic okay..Trust me you aren't the only one who's experiencing these symptoms. Just stick to fenben and the other stuff that you are taking, and keep us posting.

patram81 <patram81@...

Curb your imagination.
Your mind and logic are all you have to treat this.
If you allow your mind to get screwed up like that, you will need
more than parasitic doctors treating you.
I think they bite when they die or are near death.
I had three sleepless days and nights of that garbage.
THen, in desperation I started with wormers.
I persisted.
The biting became less and less.
Then I realized it was their last parting gesture.
Think of this as -
I do something
They react.
Does the reaction indicate that
they are doing well or angry?
Stay on a low carb diet as much as you can.
Many worms require carbs/sugar - the bacteria they feed on do, too.
If you have a high infestation of them
it will make sense that your blood sugar
may drop because of them.
You will feel tired and maybe crave carbs
as a pick me up.
But when you eat carbs, you are feeding them.
So be careful of your cravings.
Sweets, pasta, potatoes, fruit, etc.

Its true nothing works instantaneously. If you are trying something new, its best that you'd stick to it for few weeks despite the symptoms and then you can decide if its working or not. Someone in this group named Dana used to say that the things would get worse before it gets better.

Tony

summerbreeze23342 <summerbreeze23342@...

I'm on Fenben, but the bugs are still reproducing. It's
hard to explain how I know this, but I can feel it.
Does this mean the Fenben isn't working? Can the bugs
reproduce while you're on Fenben?

Summer,
Nothing works instantaneously! If I had thought that in the first few
weeks with the Fenbendazole I'd still be SUFFERING! I just plodded
ahead and continued and today after 16 months I have no symptoms.
I told you all I used to get boils (abscesses) and had one terrible
nasty one under my armpit that had to be surgically drained and
treated at a wound clinic for over a month diagnosed as Staph. The
Staph was also found in my bloodstream from a blood culture. I NO
LONGER get these!!!!!!!! I was taking them as 'common place' as I had
them so much!!!!!
Yesterday I was outside all day in the HOT SUN cleaning my little
water pond (mosquito fish, pond snails, water hyacinths) in 80 degree
weather and actually in the SUN and got a sunburn AND NO ITCHING!!!
If I had done this last Summer, I would have become itchy and perhaps
would break out with small lesions. I hold this new-found friendship
with the Sun attributable to the Fenbendazole!!!!!
The only symptoms I still experience are painful hip joints (they BURN
so bad when I walk it keeps me from doing many activities that I would
LOVE to be doing: camping, hiking .... :( ..... ) and now my carpal
tunnel is getting VERY PAINFUL.
I don't know what "BUGS" that you are referring to but I had
intermittent 'bites' within the deep tissue ... .
Wendy

Thanks for kind words Chuck....

chuck <paradiselife420@...

Hello all you people like me and my wife with this crazy thing called
morgellons.. The Drs. want to call it staph and it does become staph
after the skin breaks. I use to get the boiles and mrsa really bad but
now it is more internal and my body will just hurt like hell, and then
the Dr. treats for staph with septra. Septra clears it up for a short
time untill the next time ya know...Well i herd om the news that
alagators have a natural way to fight off all kinds of jerms because
they are in dirty nasty water all the time and never get sick so they
are working very close with this and maby and hopfully they will come
up with a cure for this crap. Everyone just keep hanging in there. How
are you doing Wendy trip? God Loves you all and so do i !!

I just read this information about a millipede.....worm with tons of legs.....Interesting what it says about the effects of it's poison on humans........

Due to their lack of speed and their inability to bite or sting, millipedes' primary defense mechanism is to curl into a tight coil protecting their delicate legs inside an armoured body exterior. Many species also emit poisonous liquid secretions or hydrogen cyanide gas through microscopic pores along the sides of their bodies as a secondary defense ^[5]^[6]^[7]. Some of these substances are caustic and can burn the exoskeleton of ants and other insect predators, and the skin and eyes of larger predators. Lemurs have been observed intentionally irritating millipedes in order to rub the chemicals on themselves to repel insect pests, and possibly to produce a psychoactive effect.

As far as humans are concerned, this chemical brew is fairly harmless, usually causing only minor effects on the skin, the main effect being discoloration, but other effects may also include pain, itching, local erythema, edema, blisters, eczema, and occasionally cracked skin ^[6]^[8]^[9]^[10]. Eye exposures to these secretions causes general eye irritation and potentially more severe effects such as conjunctivitis and keratitis ^[11].

justumn <snagel@...

---For me, that makes sense. I knotice larger, thicker fibers
(worms?) and attached are all these finer fibers.
justumn

Hello all you people like me and my wife with this crazy thing called
morgellons.. The Drs. want to call it staph and it does become staph
after the skin breaks. I use to get the boiles and mrsa really bad but
now it is more internal and my body will just hurt like hell, and then
the Dr. treats for staph with septra. Septra clears it up for a short
time untill the next time ya know...Well i herd om the news that
alagators have a natural way to fight off all kinds of jerms because
they are in dirty nasty water all the time and never get sick so they
are working very close with this and maby and hopfully they will come
up with a cure for this crap. Everyone just keep hanging in there. How
are you doing Wendy trip? God Loves you all and so do i !!

Do they look like white/clear fibers that have tons of little fibers attached to them? I have thought that they almost look like a feather or a centipede....What do you think? ~L
justumn <snagel@...

---For me, that makes sense. I knotice larger, thicker fibers
(worms?) and attached are all these finer fibers.
justumn

I especially like number 5, it's what we all need to remember, I
think.
Use These Ideas to Meet Your Goals
1. Start Small
Quite possibly the biggest mistake people make is pushing the
accelerator too soon. You can't lose 20 pounds in a week. But you can
lose one. Taking small bites and chewing slowly have as much to do
with goal achievement as they do with your mom's dinner table
scolding.
2. Get It On Paper
Whether setting your first goals, tracking daily progress, or sharing
your deepest thoughts with a journal, writing things down
crystallizes your ideas, exposes underlying fears, and paints an
accurate picture of real life.
3. Focus On Everyday Habits
The building blocks of a healthy lifestyle are forged in the smallest
of actions you take every day and every week. Healthy choices can
become as natural as brushing your teeth or locking the front door.
Build one habit, one action at a time.
4. Always See Your Goal
Goals need attention. They need to be seen and heard and thought of
often if they ever hope to come true. So surround yourself with as
many reminders as possible.
5. Be Consistent
Imagine a plane taking off. In the beginning, a lot of energy is
spent to simply get moving down the runway. But as speed and momentum
take over, the plane is pulled forward and up into the sky, faster
and further by the second. Consistent action, no matter how small,
has more power than you ever imagined.
6. Never Stop Learning
A healthy lifestyle is a processa journey more than a destination.
You can always learn more about nutrition, fitness, and even yourself
that can help you be just a little bit better tomorrow.
7. Come Out of Seclusion
Has anyone ever achieved anything of real value all alone? Probably
not many. Most receive some form of help from other people. Support,
information, a sense of shared experience, encouragement, advice, and
a well-timed pep talk are all invaluable as you set off on your
adventure.
8. Allow For Setbacks
Accept the fact right now that you will make mistakes, and that it
can be a positive thing. We are usually harder on ourselves that we
are on anyone else we know. Be your own #1 fan. That means being
supportive (instead of critical) when you stumble, and enjoying your
wins (rather than ignoring your accomplishments) when you succeed.
9. Trust Your Plan
You'll have up weeks and down weeks, and frustrating weeks that make
no sense at all. The tools and strategies you're learning will help
you build a plan that makes a healthier lifestyle almost inevitable.
If you consistently make the right choices and build healthy habits,
weight loss is literally just a matter of time.
10. Have Fun!!!
Who says getting healthy has to be a chore, a burden to be endured or
suffered through? Probably a very unhappy person, that's who. This is
an exciting adventure of self-discovery and building a meaningful
life. Enjoy the ride!

---For me, that makes sense. I knotice larger, thicker fibers
(worms?) and attached are all these finer fibers.
justumn

I also have to agree, I took fenben daily for over a year, and now take it 3 to 6 times per week-I was at such a desperate place as well that it too, was my last hope-it has made such a difference-I feel like I can live again, I have a life-I am functional-no longer sleeping 14 hours a day and looking like I was on meth, or a leper (take your pick)-I do get scared and do worry about my internal organs, and like Wendy, I am also getting monthly liver function tests, which have been fine. Every few months I also take a dose of Ivermectin, and I get the LFT's as I am on a anti-infective drug "dapsone" that the liver and cbc's need to be monitored. I believe that the dapsone helps, but not completely and therefore do much better with the fenbendazole in addition, but also why I only take it a few times per week since beginning the dapsone a few months ago.

Again, please read and research and know that no one can make this decision for you-also know that you are not alone and many have or are where you are at, and that this is just my own personal testimony about what has been helpful-

Take care,

Lori
zip22045 <zip22045@...

In the beginning I thougt that suiside would be an easy way out but,
then I found these web sites and was able to talk about it with
people in the same boat. It helped me and don't thank that's an
answer anymore... Zip

Your input really does help a lot of people on here...

Wendy <WETRIPP@...

I used to get TERRIBLE abscesses and had a very bad Staph abscess
under my armpit including a blood culture which had shown Staph in my
bloodstream. I do not get these abscesses anymore!
I would believe that my immune system has improved!!!! I still have
short-term memory loss which may be from being bipolar disorder (was
diagnosed YEARS ago).
I do not get any skin lesions either! You decide what that means ....
improvement for sure! The swelling and complete numbness in all of my
extremities disappeared completely. I was fearful that I had diabetes
.... just side effects of the Morgellons I assumed.
Wendy

Hi, Mary. I'm still in "lurker" mode, but felt compelled to post
this morning.
No, no word on the MRI yet. Thanks for asking.
Lora

My thought is that there are alot of people affected
and have no idea.
I also have a question for the people on fenben. Did
any of you notice a change, (for the better) in your
nervous and immune systems after taking it?
Thanks

How many people on here really think Morgellons is contagious? And has anyone with Morgellons ever felt that their presence caused discomfort in other people around them? For instance made other people scratch, sneeze, wheeze, cough, runny nose, etc? Do people with Morgellons think this is a very rare disease, or do you feel that there may be thousands of people affected with it and have no idea what is wrong with them? Just curious. ~L
summerbreeze23342 <summerbreeze23342@...

Thank you, Patram.
Like you, I have nothing to lose with the fenben. I
have thought about suicide daily for a very long time.
Unlike you, tho, I need a shread of hope, and you have
given it to me. You have a life now. That gives me
hope.

Key word ... 'THINK' as there is no evidence that it is or isn't. That
will eventually be determined by the science involved in finding a
causative agent and diagnosis.
With all of the people in my life that I have been in close contact
with, NO ONE has developed the Morgellons symptoms. They 'may' be
harboring it without symptoms, but who knows?
I believe when entire households have it they must all be experiencing
the same exposure .... maybe they all went camping somewhere,
picnicing ....whatever and were all exposed at the same time. Maybe
they all ate something, had breathed in something ...... touched
something .... the speculation can go on indefinately.
I came down with it and it is my belief that I aquirred it while
GARDENING or perhaps from a tick bite years before. I now wear heavy
rubber gloves as I can't give it up .... that's one hobby that keeps
me sane and happy! I was the only one in my family that has ever shown
any symptoms.
It has been proven that thousands of people worldwide show the
symptoms and have registered within the many Morgellons orgaizations
worldwide. We may all suffer from different symptoms or all share the
same underlying cause of these symptoms. This is why the research is
so important!!!
Wendy

Summer,
If you have researched you will have found out that worms
RAPIDLY becoming resistant to drugs is a great problem.
If we knew the life cycle of our afflictions we probably
could land upon a wiser way to take drugs, but this requires
more expertise than we have, as we have not individually been
diagnosed.
Also, much of the information available to us is from animal
studies and ranchers and vets.
Wendy took fenben before I did. I heard about it from she and
Michelle. Later, a researcher told me, off record, that fenben
is the safest (safer than the rest of the wormers) wormer and
depending upon your diagnosis, it will kill some worms, in others it
will just kill eggs, in yet others it will kill the adolescents, and
taking it regularly will at least slow down and deter still others.
So, it does affect a spectrum of these things and may be taken
daily WHICH IS NOT THE CASE WITH OTHER WORMERS.
I take the stuff daily with no ill effects.
This does not imply that you should not have tests done to be certain
that it is not affecting your liver. I take no other drugs on a
daily basis and also take some liver herbal preparation, just to be
sure. Can't hurt.
If you notice on the package, it does not say to take it daily.
That implies taking the drug only when your animal (YOU) shows
symptoms.
That probably means that the animal contains some breeding adult
worms, laying eggs when you take your next bout of the drug.
Those adults may have come from eggs that were not killed by an
earlier bought of fenben. Those eggs may have a genetic resistance
to the drug. Eggs can remain dormant for 5 years, meaning you can
think yourself cured, being symptom free, and later have another
attack. The worms can become dormant and the eggs, too. This really
may not be a reinfection from the outside, but just an activation of
the dormant worms. When they go dormant they are harder to kill.
Those next generation eggs may contain a genetic mutation which is
how they become resistant.
So, it is reasonable that each new generation of eggs increases the
chances of drug resistance.
The only way that I can see to prevent this is to take the drug
constantly.
The rancher will not hike his expenses to give his animals the drug
constantly. He will wait for symptoms and then give it. This
application, constantly starting and stopping the drug is what I
think will cause each new generation to possibly develop an
increasingly stronger resistance.
So, because fenben seems to be the first worming drug that appears
safe if taken daily, this is what I do. It does not kill the adults
but I do not believe that any new ones are surviving.
Some people only take fenben and do just fine. Some skip a day, I
cannot.
We may each have mutations of the same organism or several different
ones.
I take fenben for the destruction of eggs young; and immune boosters,
a somewhat low-carb diet, and sporadic GSE to kill the bacteria that
the adult worms feed on.
I also have another problem - something else - I am not sure what It
is - that is stifled (eventually will die) from taking Moxidectin
once each one to three months. This is ivermectin plus an
antibiotic. This is a more dangerous drug and I would not take it
any more frequently.
Fenben dose(what I require, perhaps others do not):
I Refrigerate. The manufacturer does not think this is necessary.
Do not freeze. I believe it is necessary.
Horse preparation paste/gel in tube at 10 mg/kg is what I would take
so all you would have to do, if it says '10 mg/kg' is to adjust
the dose for your weight.
Cattle/goat preparation, Liquid (I found this economical because I
can order it in larger sizes - others may have a different experience)
double the suggested dose for humans (this will equal the horse
preparation dosage). This means you see the suggested dose for your
weight and double the suggested dose. This is also the easiest to
measure accurately and if you don't want to just drink it, it mixes
well with yogurt or cottage cheese. Use those little cough medicine
plastic dosing cups. Shake well.
Dog preparation(powder in packets) to get the equivalent of the
above doses, take 1/5. That means to divide your weight by 5 and
take the quantity for that weight dog.
The varied doses for different animals is because their digestive
systems differ from ours.
To underscore a point - we may have several infestations. That means
for some of us taking fenben will show immediate results depending on
the species of worm.
I have my own theories of what the biting and squirming, etc, are,
but they are the things I have observed in my own body, especially
when the numbers of these things were brought down.
I also have observed what sensations slow or cease in accordance with
which treatments, which have led me to certain conclusions. These
may not apply to you.
For example, I started the fenben when I had many biting symptoms.
They slowed down and then stopped. I still felt some squirming.
Then some biting started up again, which made me sort of panic,
thinking the fenben was no longer working. But after that, there was
less squirming, so my thinking is that fenben did kill some of
whatever it is that I have and when they die or are becoming ill,
they bite.
There are varied reasons for feeling tired, including liver and
kidney problems, but one good reason is herxing, that you have killed
them and your body is working overtime trying to get rid of their
corpses. It is good to get some exercise because speeding your
metabolism this way will help your body in this effort.
Summer, when I decided to take animal drugs it was that or offing
myself. I was desperate, had tried so many things, including human
drugs from foreign sources: they would go dormant for a period and
then come right back again.
This was a
last ditch effort.
My quality of life was nil.
I did not need reassurance that this would work. I was despondent and
disappointed enough to try anything, and it really did not matter if
the cure ended me because there was no where left to turn.
I was trying to figure out the easiest way to exit this world.
It turned my life around.
Now, I did take other worming drugs, and they may have knocked some
things out, but I am down to this current group which I have
described.
I am now no longer taking umpteen showers each day and constantly
doing laundry, boiling clothing, vacuuming, shampooing my carpeting
and furniture, locking my poor husband and cat out of the bedroom,
using medicated powders, ointments, mouthwash, on my body and hair
after the 7 daily showers.
It took me a long time to figure out that the things were inside of
my and any attraction of 'outside' insects was merely tangential and
not causal.
It may not be an immediate final solution for these things, but I
feel as though, for me and whatever the things are that I have, over
a long period of time, what remains will just die out if I continue
my current regimen.

Those websites you provided are excellent info. Thanks so much for
finding them! nancy

Approved cattle and horse doses are labeled at either 5 mg or 10 mg of
fenbendazole/kg of body weight. These doses represent either:
2.5 ml of the 10% solution per 100 lbs. of body weight (the
5-mg/kg dose)
5.0 ml of the 10% solution per 100 lbs. of body weight (the 10-mg/kg dose)
I take 5 ml per day as I weigh 200 lbs.
You are taking the higher dose of 10mg/kg.
I have NO IDEA if taking all of the other things that you are adding
to your self-treatment will interfere with what you are doing. I
always felt that taking multiple 'drugs or supplements' would never
give you the information as to what IS working.
Remember that the fenbendazole is a wormer AND an anti-fungal!!! I
have told you to use your computer and research what you are doing.
Check out anti-fungals in general ... etc.
I started out with 1/2 of the low dose of fenben (for me which was the
2.5 ml)
Also remember if you have other medical conditions you may be taking
risks in doing ANYTHING to control the Morgellons symptoms.
Wendy

I get in at my local indian/british market ... about $6.00 for a 1/2liter bottle
it's also all over amazon... no need to order from the UK http://www.amazon.com/s/ref=sr_nr_p_4_0?ie=UTF8&rs=3760901&keywords=Dettol&rh=i%3Aaps%2Ck%3ADettol%2Ci%3Ahpc%2Cn%3A3760901%2Cp%5F4%3ADettol

On Sat, Apr 19, 2008 at 7:06 PM, Lila <lilajo4u@...

I found it on ebay....A person can get a bottle for under $20.00
zip22045 <zip22045@...

Have you found it available locally??? All I can find is mail order
from England... Tanks...

Best of luck in treating this poor soul.
I am convinced that I have a worm problem, terrible as it sounds.
I, too, have no fibers but do have the rest of the symptoms.
The one treatment that I feel I could not do without is fenbendazole
(Brand is SafeGuard). It is sold, I am told, in some other countries
for humans, but in this country there are three different
preparations, for horses, cattle, and dogs. Two have a different
dosage of the drug, and must be adjusted for humans.
I, and several other people, take it daily, though some will skip a
day I cannot do that.
Every month or three I will take a small dose of Moxidectin, which is
ivermectin plus an antibiotic. Ivermectin is also a worming drug and
can cause liver problems, so I would not take it freqently.
If my immune system seems to be waning I will take several drops of
the liquid GSE.
Garlic, fresh, in cooking, will help.
Topically, I have rubbed a cheap mouthwash into my scalp in the
past. They do not like menthol, eucalyptus, and similar plants.
I have heard of people doing well with a product called Opaline, but
I am well in control and have no need for further things unless they
will actully kill this.
From what I have heard, there was no success with MMS, which I had
once thought of purchasing.
Some are really liking the Salt/C thing but I am not a fan of
overdosing on salt, even though I am not a 'salt-sensitve' person. I
take C, but buffered and in small quantities througout the day, only
when I feel my immune system needs a boost.
Other people may have other suggestions.
A low carb diet should also be followed, if possible.
I guess a bit about worms might be helpful if you do not think the
idea is totally off the wall.
Holistic remedies for worms in the digestive tract are not very
helpful as these things permeate the body.
Most herbal preparations, to my experience, bolster the immune system
and are somewhat helpful.
There is nothing, in my opinon, as good as the drugs but when you
take as instructed, off and on, the newer batches of young can become
resistant to the drug and the only thing I have found is the
fenbendazole which, depending on the worm, kills the eggs, and or the
young so they do not grow into adults.
I think, now, after taking fenben for at least a year, I am only
waiting out for the adults to die.
If you have a low carb diet and take something they do not like they
often becom