Judy, keep us updated on how you are feeling and how well the meds work. I had
to go back and read all the post I scanned for a while to get caught up on you
situation. I hope it all clears up and you will be able to move forward. How is
the "grandchild" progressing? Hope you feel great for the holidays.
Granny Penny
P.S. Hey people please remember to cut your threads for those on digest...
Hi Penny, thanks for the well wishes. The grandbaby is growing. Brittany is 24
weeks now and finally is showing! shes still on meds for the kidney infection,
they will keep her on it for the duration of the pregnancy. she actually had to
go in on Thurs. and get the antibiotic changed as it was making her edgey and
loopy, and making her throw up. not a good thing since she finally got through
her morning sickness! shes good to go now. I'll take some pics this week and
post them. :)
Judy --- Merry Christmas
"Starting the Process with Friends"
Be Blessed In All Your Steps
Kaiser-Fremont, CA
262
Hi Debby, I got my meds yesterday, finally. 2 antibiotics and the Prilosec. I
thought it was kind of odd that I got Prilosec again, since I was on it a couple
of months ago and it was changed to Protonix, but whatever it takes. I took my
first set of pills (4) last night and even slept a little better, but this
morning is bad, pain again. But now that this is found I expect better days. I
can't believe that I've suffered so long, because now I'm thinking back at all
the times during the years that I complained of this pain when it was much less
severe and how the doctors just didn't bother to search a little more for the
cause. meanwhile the bacteria was growing and finally hit me full force. I
thank God that even though I am totally not aggressive or pushy, I pushed my
doctor this time to listen to me instead of keep brushing me off with
prescriptions for GERD (which I do have also but had a cause). if I didn't
insist to see a gastro and then
insist with the gastro to be seen in person and get the endoscopy I would be
still dealing with meds for GERD and not having the h.pylori dealt with, which
as I now know could escalate to ulcers or stomach cancer.
I'm actually a little glad I actually had a real problem because now maybe my
doctor will listen to ME! :) :)
I'm looking forward to seeing you in a couple of weeks! I told my family I was
your Angel and what it meant. see you soon.
Judy --- Merry Christmas
"Starting the Process with Friends"
Be Blessed In All Your Steps
Kaiser-Fremont, CA
262
Good job Kim and here's a Christmas wish that you get the go ahead. We'll be
waiting for you in the Loser's Lounge..with a hubba hubba cabana boy!!
Granny Penny
Yes sweetie, it is www.mervyns.com there are still open Mervyns. we have them
here. hope you can find your undies!!!
Judy --- Merry Christmas
"Starting the Process with Friends"
Be Blessed In All Your Steps
Kaiser-Fremont, CA
262
Yay, Kim! Another step behind you!
Jill
lap RNY 12-03-07
- 7.5 lbs.
Beverly I am sure some of the ladies will get back with you. Have a nice tirp.
You are in my prayers.
Hugs
Marianne
Breast Cancer Patients Soul Mates for Life
http://www.geocities.com/chucky5741/breastcancerpatients.html
BreastCancerStories.com
http://www.breastcancerstories.com/content/view/433/161/
Angel Feather Loomer
www.angelfeatherloomer.blogspot.com
Check out my other ornaments at
www.geocities.com/chucky5741/bcornament.html
Lots of info and gifts at:
www.cancerclub.com
Joanne,
What a crummy day from start to finish!
How's the van looking by the light of day today?
Jill
lap RNY 12-03-07
- 7.5 lbs.
hey all went and got the pre op stuff done so now i gotta wait for the my
pcp to send a medical clear to the insurance co and im all set... :) I can
see the end of the rollercoaster ride woooohooooo
MERRY CHRISTMAS
OH JUDY R AND SHARON THANKS FOR THE XMAS CARDS sendin you one right
backatcha gonna be lil late tho :(
Here's ways to get ahold of me
Chat with me:
My Multi-Page
http://kg820.multiply.com/
My Blog
http://kimberly-goddard.blogspot.com/
My Website:
http://www.angelfire.com/nj3/KymmiesPlace\
MYSPACE PAGE
http://www.myspace.com/my_quiet_lil_world
MSN: kimgoddard77@...
Ypager: kimberlygoddard77
ICQ:291-683-088
1-973-293-3583 ( fax number)
1-973-437-7168
I had a Friday the 13th today and it would seem as though none of it
is WLS related except for the fact that I am a self-pay and this
stuff wigged me out financially.
On my way off to work in my work truck today, I was driving along in
the slow lane out of two lanes southbound. I noticed the fast lane
coming to a stop and saw a man in the crosswalk and started to brake
the van. Suddenly the car beside me just veered right into my lane
and I couldn't go anywhere but into the curb as he smacked right into
my drivers side fender.
My last wreck was one in which a drunk driver totalled my last work
van in a t-bone hit and so I really over adrenalized on this one and
couldn't stop shaking for about 20 minutes. Like deja vu, this driver
also was not carrying insurance. He wanted me to 'let him go' since
he 'had to be somewhere'. I didn't fall off the turnip truck
yesterday!
Before I ever got out and looked the damage I called police. Next I
called my insurance who kept me on the line so long then would not
let me go when the sheriff got there until I finally just snapped at
her and hung up on her when I realized the dude had lied to the
sheriff and told him he DID have insurance! The cop never even asked
for proof of insurance and got no ticket for improper lane change and
wouldn't have gotten one for no ins. if I hadn't ratted him out as
the cop waqs about to take off!
So I ran late to all my appointments, all day long, I am a mobile dog
groomer and all my dogs were acting up today and I don't know if my
van had bad ju-ju or if it was just me having been shook up earlier.
My one new stop today really had no good place for me to park my rig
so the woman said I could 'try' to get in her driveway but that I
would have to scrape through the bushes! My idiot self decided to
try! I got the whole butt end in then my passenger mirror set grabbed
the thick trunk on the mature bushes and and smacked all the way
forward and my rain shield broke off about a 6 inch section! I
haven't even seen what my paint looks like, I'm afraid what tomorrow
will show me since it was fully dark by this time.
The dog was wagging his tail while the husband stood there with him
on a leash. As I reached out to pet him he snapped at my fingers and
the man just stood there and did NOTHING about it! I thought this was
going to be a royal brat and what had I gotten myself into but the
dog was real well-behaved on my table, even where I had to clip with
pressure on all the matted areas.
I got all the stinky old matted fur off, got him in my tub, scrubbed
him good and set him up to soak for a few minutes as I did my
paperwork. When I went back to rinse him off the dog mentally snapped
and suddenly went Cujo on me and was lunging at me and the sprayer as
I tried to rinse him off! I couldn't get anywhere near him now! I
thought that was the craziest thing ever since I had already had some
hard clipping and shaved his pads and clipped his nails as well as
plucking his ear hairs out and all of these things will make an
unstable dog bite and he never even tried, now was the easy part and
he was lunging at my face!
I don't usually ever quit on any dog since I have been grooming close
to 26 years now but I just couldn't take another moment of this
insane day and called the woman on my cell and told her I had taken
her dog as far as he was willing to go today! While he was jumping
all over the place he also did a nice big dump in the tub!
The lady had the cahonies to tell me that I could come back tomorrow
to finish him!?!?!
AS IF!!!
Anyway I am sitting here with the low-level jitteries tonight
wondering how I will ever get to sleep tonight to do one more day of
holiday madness work before I get 4 days off in a row.....Ughhhhhhhh!
Joanne
Seattle
Thanks Beth,
My surgeon is Dr Dutta. Hang in there. Your day will come. I have heard good
things about Dr. Hahn. Most of those in my live support have Dr Hahn. How close
are you to your pre-surgery goal weight.
Debby
Beth <beth_loveslife@...
Congratulations on your surgery date... that is so awesome, I must say
I am a bit jealous...I too am waiting and waiting to get the surgery
almost 2 years worth of waiting now. They changed their procedures so
many times I must have taken 4 or 5 stops and start overs since I began
the process. The end is in sight however. If you need anything let me
know.. Im not too far away from you down here in Stockton. By the way
who is your surgeon? I vaguely remember something about Dutra but I am
not sure.
Beth in Stockton
Kaiser Fremont -Dr Hahn
Congratulations on your surgery date... that is so awesome, I must say
I am a bit jealous...I too am waiting and waiting to get the surgery
almost 2 years worth of waiting now. They changed their procedures so
many times I must have taken 4 or 5 stops and start overs since I began
the process. The end is in sight however. If you need anything let me
know.. Im not too far away from you down here in Stockton. By the way
who is your surgeon? I vaguely remember something about Dutra but I am
not sure.
Beth in Stockton
Kaiser Fremont -Dr Hahn
You look gorgeous!! Loved seeing your new picture.
Beth
WOW!! Girl you are going to make the most beautiful of brides you are
looking absolutely fantastic and what cute pictures you take with your
fiancee!!
Beth
Ally you look great! You are going to be a very beautiful bride..
Wow Lora, you too look wonderful!
Judy, that was some trip! My mom lived in New York and I would visit her every
year..Brings back memories..Glad you made it back there and shared so much with
your loved one..
Granny Penny
Cheryl,
Such sad news. Losing those who we love so much and who leave big
holes in our hearts is so difficult. Your father in law's story is
very similar to my dad's death/life. It is always the hardest on the
wife, but it still hits us so hard. Don't hold it all inside, it's
not good for you. Come here to let it out any time you need to and
we will do our best to support you.
I am so sorry for your loss.
Lizanne
Hi Cheryl-
I am so sorry to hear of your father-in-laws passing. I will keep you and your
family in my prayers.
Please let me know if there's anything I can do.
~Ally~
Lap RNY 7/12/07
251/237/184/130
HW/SW/CW/GW
Hello again Everyone,
I just wanted to give you an update on my father-in-law. He passed
away on tuesday morning about 6 a.m. We had a beautiful funeral
yesterday, but it is so hard. He was a beautiful man inside and out
and he will be missed by so many people. I loved him so much and
inspite of having a biological father and a step-father he was the
only father I ever really knew. It has been hard; I really thought he
was going to make it, but he was too weak. He is better now, but the
rest of us have got to heal from the huge hole left in us. He and my
mother-in-law had been married 45 years and were still in love. She
is holding up very well, but we have kept her distracted. She is
still so young. She is just 62, and pops was just 68. It is a
shame, but I have to believe there is a purpose for the loss.
For much of the last 3 days I have been the strong one trying not to
cry and helping keep things with my family together, but as I sit and
write this I am crying. I have not really let any of my feelings
out. I guess this post is my little way of letting feelings out. I
miss him so much. I don't know how many times I was in one room and
heard him come in the house talking. I had a harder time than anyone
will ever know but I did not show it. I will be ok. It is just going
to take a while.
Love to all. If you have family or friends you have been neglecting
or have not had a lot to do with for whatever reason. Reach out and
reconnect because you never know what will happen.
Happy Holidays,
Cheryl
Lizanne,
I'm glad to hear that you are back in losing mode! YAY!!
Jill
lap RNY 12-03-07
- 7.5 lbs.
Ally,
The pictures are adorable and your fiance (sp?) is still adorable
also. He is wonderful to go along with the picture...bah humbug. You
look really good and should be proud of yourself. Take care.
Lizanne
Ally,
Cute pic! Love the little bows on your hat! You are looking so good!
Jill
lap RNY 12-03-07
- 7.5 lbs.
Lora,
You do look great. Your face has lost soooo much weight and you do
look years younger. It's amazing.
I am still wearing most of the same pants I wore before surgery, but
I am also wearing new pants that are 2-3 sizes smaller. That makes
no sense to me, but it is true. Jeans are huge but my stretch work
slacks still fit.
Lizanne
You're looking great, Ally!! Keep the headband... if your hair every starts
falling out in gobs it will distract attention from it! LMAO
Pat
Allison <allisonmarie22@...
Hello All-
I posted new pics. :)
~Ally~
Lap RNY 7/12/07
251/237/184/130
HW/SW/CW/GW
Joanne,
I asked the same question when I started my water class. I was told
that I could wear shorts and a T-Shirt. The bicycle shorts might be
best. I wore shorts with my bathing suit the first class, and then I
realised there was no one there I needed to impress, so I shucked the
shorts for the following classes. Most of the time you are under
water so no one sees you except yourself, if you need to. Leaving
and entering the pool are the only times others can see you. I do
not know many people in this world who are not embarassed about some
body part when wearing a bathing suit. So...run from the locker room
to the pool and back again. No one will see you well, and it'll give
you a little extra exercise. LOL
Thanks for your advice. I had written that I drive 70 MPH to and
from work, but it's 80 MPH, which really doesn't matter. Yogurt does
not stay with me but it does seem to take a long time to eat. So I
grab a bite every 5 minutes or so. I really like the walnut idea in
the cup. Lots of Omega 3. But nuts are high in fat.
Oh, and I am losing weight again. I had gained 4 lbs last week. I
have lost 1.8 lbs in a couple days. I had hoped for more, since the
gain makes no sense to me. I will settle for a loss any day over a
gain, so I guess I should just be happy.
Lizanne
LOL... passing through doesn't count. I'm glad I didn't start getting into
specifics about what changed... no one would know what I was talking about!!
Although I *did* know what they meant when the Georgia girls mentioned the "big
chicken"! LOL
Pat
believe how much it has been built up in the past 20 years, and all the
roads, housing developments, and shopping centers that have popped up.
Oh, I'm sure, I was just pulling your leg, I knew it had to be
enormous, just like Phoenix got after 30 years. I never knew my way
around El Paso really, I just passed through the town in 1980 on my
honeymoon with my 1st ex-husband.
Joanne
Seattle
I *have*... I buy a lot of stuff from Lands End (sport knit pants,
jeans, turtlenecks, coats) and I like Docker's pants. So I have
some of the same items in a variety of sizes (Docker's in 26, 24,
20, 16 -- not sure why I have no 22 or 18! -- and Land's End sport
pants in 3x, 2x,and 1x.) So, at the moment, I am truly down almost
a total of 80 pounds and only 1 - 2 sizes.
Lora
now in most major department stores. I know I've seen them at JC
Penneys and Macy's.
Wooooo-Hoooooo! THank you Ally! I didn't know that. I have a chip on my
shoulder about Penny's refusing me a credit card 8 years ago and now I
have platinum EVERYTHING, so I never shop there. But online and Macy's
are do-able!
Joanne
Hi Joanne-
You can order Jockeys online at their website. They're also carried now in most
major department stores. I know I've seen them at JC Penneys and Macy's.
~Ally~
Lap RNY 7/12/07
251/237/184/130
HW/SW/CW/GW
Hello All-
I posted new pics. :)
~Ally~
Lap RNY 7/12/07
251/237/184/130
HW/SW/CW/GW
Lora, I think to get a true size difference you would have to buy the
exact same clothes from the same maker to see what the REAL
difference is.
Take my underwear for instance: I love Jockey underwear. I always got
mine at Mervyns but when they closed up, I bought from Target or
someplace that didn't carry Jockey and just settled for Hanes. I HATE
the fit of Hanes even though they are the exact same 'cut' that I
always have bought, they fit just annoyingly, slightly too tight.
Even having bought a size Larger!
So to be fair to yourself, try buying the same item that you wore in
a higher size, but in your new lower size or even a size below what
you believe yourself to be currently.
Joanne
Seattle
believe how much it has been built up in the past 20 years, and all the
roads, housing developments, and shopping centers that have popped up.
Oh, I'm sure, I was just pulling your leg, I knew it had to be
enormous, just like Phoenix got after 30 years. I never knew my way
around El Paso really, I just passed through the town in 1980 on my
honeymoon with my 1st ex-husband.
Joanne
Seattle
Hi Sally,
Welcome, how long did you have to wait for surgery? What hoops did you
have to jump through??
Again welcome,
Edie
Audrey I wish I had the answer but I don't. Do you go to a hospital/clinic that
specializes in cancer? How about having your replorts read by a tumor board? I
will keep you in my prayers.
Hugs
Marianne
Breast Cancer Patients Soul Mates for Life
http://www.geocities.com/chucky5741/breastcancerpatients.html
Check out my breast cancer ornaments at:
http://www.geocities.com/chucky5741/bcornament.html
also check out my other ornaments and lots of nice gifts at:
http://www.cancerclub.com
I met Richard on March 3rd, 2005 after chatting with him for a while on
match.com. On our first date he took me to Dave and Busters where he proceeded
to royally kick my butt at every video game there except Tekken (I creamed him
on that game...muahahaha. He never knew what hit him). Honestly, I wasn't too
sure about him. As he left my car around 11pm without even so much as a
goodnight peck on the cheek 3 things were going through my mind;
1) He's totally not interested, or
2) He's gay, or
3) He's truly a quality human being
With option #3 being the hardest to fathom I drove home, and carried on with my
life. Until the next day when I got no less than 3 phone calls and 2 e-mails
from him. No, I take that back. He actually e-mailed me before I even had a
chance to lie down and sleep. Thinking to myself by the end of the next day
that he must be an overbearing freak I decided not to see him again.
However...
March 7th was quite possibly the most messed up day in history...3 things
happened in that day that were worth taking note of;
1) I got my divorce
2) My car got reposessed
3) My Grandfather died
As I was sitting in a bar with a coworker of mine that night (slightly drunk) I
picked up the phone and IM'd Richard. Why, I might not ever know....but I'm
glad I did.
I went to his house for dinner Tuesday night. We ate Sushi on the couch and
watched The Ring (scary). Where the boldness came for the question that came
out of my mouth just before we ate dinner I will also never know...
"So, do you mind if I kiss you before your breath gets all fishy?" (subtle,
huh?)
On Wednesday I went to Alabama for my Grandfather's funeral...came home on
Thursday...packed some clothes and headed back to Richard. He had to work on
Friday, but when he got home we left for Gatlinburg.
It was a wonderful trip, and somtime during the weekend we realized that we
really had no desire to be apart.
He was back to work on Sunday, and I was off to my house to pack up my clothes
and my dogs.
I never went back to my house to live after that, and that was 3 years ago on
March 3rd.
~Ally~
Atlanta, GA
Lap RNY 7/12/07
251/237/174/130
HW/SW/CW/GW
Kathy I want to wish you a very Happy Birthday. Enjoy your special day
and eats lots of cake...
Hugs
Jeana
Happy Birthday Kathy, Audrey we all wish for what you wish for but I
don't know the answer either. Take care all, God Bless, Love, Sharon
Jill-
Valtrex is not extended release. I take the 500mg daily and for the first month
or so after my surgery I just broke it in half. I went down with no problem.
It's never made me queasy or nauseous.
~Ally~
Atlanta, GA
Lap RNY 7/12/07
251/237/174/130
HW/SW/CW/GW
Lizanne,
Great idea, let's all think about it. I'm sure this great group can come up
with something great :o)
Edie
Ally,
What a beautiful love story! And to see that someone has had success on
Match.com. I am so happy for you!!
Theresa
Allison <allisonmarie22@...
I met Richard on March 3rd, 2005 after chatting with him for a while
on match.com. On our first date he took me to Dave and Busters where he
proceeded to royally kick my butt at every video game there except Tekken (I
creamed him on that game...muahahaha. He never knew what hit him). Honestly, I
wasn't too sure about him. As he left my car around 11pm without even so much as
a goodnight peck on the cheek 3 things were going through my mind;
1) He's totally not interested, or
2) He's gay, or
3) He's truly a quality human being
With option #3 being the hardest to fathom I drove home, and carried on with my
life. Until the next day when I got no less than 3 phone calls and 2 e-mails
from him. No, I take that back. He actually e-mailed me before I even had a
chance to lie down and sleep. Thinking to myself by the end of the next day that
he must be an overbearing freak I decided not to see him again.
However...
March 7th was quite possibly the most messed up day in history...3 things
happened in that day that were worth taking note of;
1) I got my divorce
2) My car got reposessed
3) My Grandfather died
As I was sitting in a bar with a coworker of mine that night (slightly drunk) I
picked up the phone and IM'd Richard. Why, I might not ever know....but I'm glad
I did.
I went to his house for dinner Tuesday night. We ate Sushi on the couch and
watched The Ring (scary). Where the boldness came for the question that came out
of my mouth just before we ate dinner I will also never know...
"So, do you mind if I kiss you before your breath gets all fishy?" (subtle,
huh?)
On Wednesday I went to Alabama for my Grandfather's funeral...came home on
Thursday...packed some clothes and headed back to Richard. He had to work on
Friday, but when he got home we left for Gatlinburg.
It was a wonderful trip, and somtime during the weekend we realized that we
really had no desire to be apart.
He was back to work on Sunday, and I was off to my house to pack up my clothes
and my dogs.
I never went back to my house to live after that, and that was 3 years ago on
March 3rd.
~Ally~
Atlanta, GA
Lap RNY 7/12/07
251/237/174/130
HW/SW/CW/GW
I should have said this birthday greeting is early. Kathy's birthday is
sunday. I just knew I would forget. l.ol
Well Lizanne,
I'll start thinking about more affordable rewards for you.
Edie
I just stopped by to read some posts and say hello. I have been doing
well and keep busy.
Sharon I will be praying for you that the lastest chemo will do the
trick for you.
Kathy, tell Rowen to keep up the good work. And I too will pray for
Erin
Parvin you sound busy so you must be doing better. I did not go back
far to read posts.,
Jeanna, I think of you often. Hope your doing well.
We will be starting to go to the lake next week. Looking forward to the
change of pace. Need to get out and about more.
Love and Hugs to everyone here... I pray each day that a cure may be
found. Joan
Dear Parvin, good luck that the x-ray's of your lung mets are better.
Prayers coming your way for that and for all of you dear ladies on
here. Take care dear one, God Bless, love, Sharon
skin,they will resect it by surgury.the pathology will tell you what
to do.there are many chemo drugs that can affect you. be sure.i had my
chemo yesterday,.i will have a chest-x-ray next thursday to see my
lung mets has better or not. all of us may have the same hard times.
be hopeful,my dear. love parvin
They're just waiting to be re-approved...
Lora
Thank you, thank you, thank you for this, Ally! I really need to get
back on it. I'm so glad you didn't have any problems with it getting
stuck or making you feel sick. Maybe I'll give it a try and see how I
do. I've been getting fever blisters like crazy since my surgery and
need to get back on my regimen!
Jill
lap RNY 12-03-07
- 20.9 lbs.
Pat,
You're exactly right. It is necessary for us new people to put ourselves out
there if we want to feel included. I know that because I've got a long history
of online chatting and know what it's like to break into a new group. I also
know how I feel when I'm in a group of strangers in real life. Those feelings of
insecurity are much easier to overcome in an online group than in reality, but
that doesn't make them any less real. Being shy by nature just makes it harder.
However, I intellectually know that about myself so I do take a realistic
viewpoint of it. I know that in time I become more at ease with revealing things
about myself.
I also appreciate all the helpful information I have already received from the
group, especially in regard to migraine medications.
Sara
Lap DS
360/353/267/160
HW/SW/CW/GW
It is good to see you staying here and posting. How are things? How is
your weight loss.. any further words about the MRI and new conclusions? I
know you said it was inconclusive before. If you stated before, I am sorry
if I missed it.
Hope you are feeling better though :-)
--
Mary in FL
LAP RNY 1/26/2007
317/296/167/140
BS/ SW/CW/GW
Lora, wonderful. so glad you stayed. we're here for you :)
Judy --- NEW YEAR, NEW US!
"Everything Is Easier With Friends"
"Be Blessed In All Your Steps"
Kaiser-Fremont, CA
262
So sorry to hear about your fluid build up in the lung. Prayers go out to
you and yours at this time.
Love & Healing Energies,
Kathy
Thank you very much Kathy, I hope you and yours are all doing fine and
prayers right back to you and yours.love , Sharon
Hi, I'm Dari!
I do not get to know my stage for 2 more months.
In the midst of my chemo (A/C/taxol dose-dense for four months)
The tests showed "something" in my rt lung, left femur and liver.
My bone Onc and BC Onc said I should not stop chemo to take new biopsies.
They have recommended keeping on schedule with the chemo and doing biopsies as
soon as I'm done with this regiment.
My bone Onc is a world renown guy that says without a biopsy he can assure me
that whatever is in my bone is not sarcoma or BC, but can go no further than
that. Which leaves a whole lot of other cancers (and possibly not). But,
still I have no solid answers. lus the lung and liver things. :-(
Talk about a long WAIT! I hate it that I cannot know my stage. All I have
to do is wonder (and worry) of what lies ahead.
I want to know the truth and I want to get a handle on what could be in store
for me and my family.
My husband & I are in the midst of adopting 2 children . A 1yo special needs
child and her sister 2yo/no major health issues. The adoption should go
through before I'm able to know my stage. I don't know what to do about whether
I
should bow out as not to give them a mother that is going to be unable to care
for them properly.
I want to know the quality of life you all experienceand you can even throw
in your personal opinion of whether you would adopt them or not.
I'm worried... What type of burden it will be for my husband (I'm 46, he's
52) He's already run a bit on thew ragged side :0) trying to do my share of the
work while I'm on this chemo now.
We go to court 3/1 to solidify the adoption plan.
If I knew my quality of life issues I may want to reconsider... for their
sake. It will break my heart to change gears now. But, I just want the best
for
them and I have no idea if I can live anywhere near normal to be able to
provide a life for them.
If you think I'm asking too private an issue feel free to ignore me but know
I'm asking for a good reason and I hope you'll share with me.
hugs to all,
Dari fastest2@...
Hi Dari and welcome. This is Marianne from the "big" group. I am a moderator
here.
How can your bone onc say that without a biopsy he can assure its not sarcoma or
bc. What is he basing this on?
Wow I don't know what to say about the adoption. I know when our daughter and
son in law adopted Peyton they had to give a lot of medical info. Does the
adoption agency know about your bc? I will keep you in my prayers that you make
the right decision both for the children and you too.
Hugs
Marianne
Breast Cancer Patients Soul Mates for Life
http://www.geocities.com/chucky5741/breastcancerpatients.html
Check out my breast cancer ornaments at:
http://www.geocities.com/chucky5741/bcornament.html
also check out my other ornaments and lots of nice gifts at:
http://www.cancerclub.com
Congrats!! Was that your first one??? Crossing that finish line had to
feel great, I'm proud of you :o)
Edie
Dari, I'm not a Dr. but are they basing this on a Cscan or PET? Have
you seen your pathology report from your lump. or mast.? What is your
PR/ER and HER status? How large was the lump?...
Honestly, I think it would be best to delay finalizing the adoptions
until you get alot more info about your cancer stage. I am stage IV
and am going in for my 20th chemo/4th round in a few hours. I can
tell you after 8 months of chemo, I can barely take care of myself,
have neroupathy in hands and feet and am exausted and have chemo
brain. I have mets to my lungs. Follow your heart. The other factor
in your decision is you and your husbands ages. Just my opinion but I
think you both are too old to take on 2 children and one with special
needs. Sorry to be so blunt but I want to give you my honest feelings
and not beat around the bush. Cancer is hard enough to deal with!
Take care of yourself and get assertive with those silly doc's. We
all really have to take charge and partner with our caregivers and
not just do whatever they say. This is our life and our bodies!
All the Best,
Jamie
I am taking colloidal silver, three times a day after every meal. I do not know about others but it has been helping me..
See what happens is that after every meal my crawling sensation gets worse , if i don't take silver. So i am not sure about the long run, but even if its just a short term relief it counts.
--- On Tue, 7/15/08, mattyoung18us <mattyoung18us@...
From: mattyoung18us <mattyoung18us@...
Subject: [Morgellons] nutra silver
Hi Marianne!
No, the adoption people do not know of my BC but there is another woman from
the same place (DFS) that her adoption went through this past month. But, she
has only has stage 2 and a good prognosis.
I haven't had to submit any medical stuff yet. But, I'm more thinking of
whether I should go through with the adoption if I'm going to be laiod up all
the
time and not able to keep up with my motherly duties. I can't imagine my
husband being able to carry the full load of me plus a special needs child, plus
a
regular 2yo for an infinite amount of time.
We also have two other kids
still in the home so we have a full load. :-)
Others have used tyhe term burden to the family. I don't think becuase mom
has an illness that I'm a burden but if I'm never going to get better and will
ALWAYS be a lot to deal with then I was wondering if it would be right or
selfish of me to keep the kids. I have had them fpor a year and can't imagine
giving them up. I just don't know if it's the right thing or not.
That's why I was trying to get some real live experiences from the ladies
that are living it.
oh yeah, my onc said due to his expertise he can tell me many things that it
is NOT by viewing the films, PET, MRI, CT, etc. But, what he's seeing he does
not recognise exactly so he still needs to do a biopsy.
He has a center plus he teaches the med students around the country.
(so they say) Until talking to him I've never had any of my other cancer docs
say this type of thing. (like he can tell me what it's not)
Dari
fastest2@...
http://tapesandtranscripts.drphil.com/product.aspx?ProductID=451352
Dr. Phil (Dr. Phil's team of medical experts are back to answer any and every medical question! These four physicians with four different medical specialties are armed with an endless warehouse of health information. First up, the medical dream team weighs in on controversial headlines from uterus transplants to water intoxication. Next, Judith says she suffers from Morgellons, a mysterious disease that causes painful lesions on the skin. Judith is frustrated because she's had Morgellons for 10 years but says doctors tell her it's all in her head. What does Dr. Phil think? Then, Dorine says her life has been unbearable ever since her uterus dropped out two years ago. She says she can't exercise, go to the beach or even have sex because of her condition. Is surgery the only answer? And, Samantha went in for simple breast implants but says she became a plastic surgery nightmare. In the past three years, she's had four implants and 16 surgeries to correct what is now a deformed
right breast. What can Samantha do to move forward with her life? Plus, Dr. Phil answers viewers' most embarrassing questions. ) [Check Show Times [LINK] ]
--
Niels
http://nielsmayer.com
I believe that there will be the Morgellons segment on the Dr. Phil
Show on Monday, July 14.
Wendy
I saw the Dr Phil Show today and the Morgellons segment was great. They
showed fibers, sick people, and what I thought was too much lesions.
They were respective of Morgellons patients, didn't call us crazy and,
all in all, it was a good show.
Good find Wendy
Rita
I found that frequent use of peroxide made my skin break out. Now I use
a small bottle of peroxide in a warm bath and stay there as long as I
can (boredom). I add the peroxide after the water is in so the peroxide
desn't burn off. I don't know if such a thing is possible but I cover
myself anyway.
Rita
Thanks for your response, Verna. You and I have a lot
in common as far as our backgrounds are concerned.
I have quit almost everything that I think might have
contributed to this ailment (or maybe feeds it)...coffee,
sugar, alcohol, etc.
I think the acne might be a flag of some sort. I was
hoping for more of a response to this poll, but I'm
thinking maybe most Morgies did have acne at one point.
I had moderate acne in my early teen years. It resolved
itself and left no scars...but I'm thinking acne might
be a flag.
I also took a lot of hormones...Melatonin (which is a
hormone), birth control pills, etc. And I've taken
antibiotics many times in my lifetime.
All these things contribute to Candida. I'm willing to
bet that most (if not all) Morgs has Candida behind it.
It's possible that Morgs IS a form of Candida...a
very strong form where the pathogens have mutated to
the point where they are part animal (parasite).
Thanks again for your response. It's interesting how
much our backgrounds have in common.
Hi Wendy
Have you seen Ginger or the doctor she works with? My sister would like to go up to San Francisco and see her but I wanted to see if any of you have had success with her treatments.
Thanks
LeeAnn
--- On Sat, 6/28/08, Wendy <WETRIPP@...
From: Wendy <WETRIPP@...
Subject: [Morgellons] This Information was sent to me: MORGELLONS CONFERENCE MARCH 2008
Did you learn anything new?
There are still copies left of the DVD set of the entire Morgellons
conference held in March 2008 in Austin, Texas. The set of 2 DVDs is
now just $30 (which includes shipping!). Please send an email to Cindy
Casey at ccaseyrn@... if you would like to purchase a set for
yourself or for a loved one who is interested or affected by this
disease. Hurry while supplies last! Ginger
--
Ginger Savely, RN, FNP-C / Cindy Casey, RN / Deka Motanya, Office Mgr
TBD Medical Associates
450 Sutter Street Suite 1504
San Francisco, CA 94108
Phone: 415-399-1035
Fax: 415-399-1057
Just a little poll to see if any of us have any
common backgrounds that might have contributed to
our illness.
1. Do you or did you used to smoke?
2. Do you or did you used to drink alcohol?
3. Do you drink more than 2 cups of coffee a day?
4. How old are you?
5. Did you have acne as a teenager?
6. Do you or did you used to use hormones, including
birth controls pills, steroids, hormone replacement,
fertility meds?
7. Have you ever used the sleeping aid "Melatonin"?
8. Have you ever handled a sick plant with your
bare hands?
9. Have you ever handled raw meat with your bare
hands?
10. Do you have Lyme?
11. Did you have a chronic weakness prior to Morgs?
(i.e., a chronic sinus infection, chronic tooth
problems, chronic bladder problems, etc.)
If that whining thing is true, you may all want to block my emails after my
surgery....
Pat
lizanneflowers <lizanneflowers@...
Thanks Ally,
I hope so too. It does get frustrating when I know I have been
following the rules (except for fluids, which I will never be able to
accomplish), yet my weight remains the same. I just keep
thinking....follow the rules, and this plateau will eventually go
away. This group has taught me that. It has also taught me that
when I whine, my plateau will go away also. I just don't want to
overplay that card.
Lizanne
It's too bad that I or others can't open ppt files! If there is anyway
you could post them another way that would be GREAT!
http://www.carrieschoices.com/consent.ppt
--
Niels
http://nielsmayer.com
Since many of us with Morgellons also have tested positive for Lyme
Disease ..... This was sent to me:
"The awesome Lyme video by Andy Wilson, Under Our Skin, is now
available on DVD and can be bought on-line.
Here is the link to order DVDs: www.underourskin.com/dvd
Please, everybody, order these and hold screenings- invite over key
people so as many as possible will see it.
Try to target different types of viewers-
-family and friends who may have doubted you
-media people (whatever contacts you may have, or are bold enough to
invite over- this can be local papers, TV, radio, etc, as well as
bigger outfits).
-political people- local reps- at town, county, state and federal levels
-power groups- scouts, Rotary, Kiwanis, etc
-all local schools. Hopefully they will screen it for the kids and
teachers, plus school nurses, coaches, etc.
-buddies- people you may hang out with, business/work contacts, golf
or sports or gym buddies, etc.
In the mean time, any of you with industry contacts should try to help
get this movie widely distributed. It would be great if it were shown
as a special on HBO, Discovery, PBS, or any other popular channel.
One final thought- I strongly suggest that you pair this video with
Pam Weintraub's new book, Cure Unknown. The video is quick but very
powerful, and the book can serve as a detailed reference of Lyme from
several points of view- patients, family members, doctors, politics,
science, and most importantly, it gives the back story of how and why
there was a split and why the two sides still exist as separate
entities to this day."
Wendy
I'm so sorry, Verna. Unfortunately, those idiots still haven't
realized that "freedom of the press" doesn't mean to lie, misquote,
exploit and sell the story at ANY COST! Also, if the originator of the
story had you sign a release, there's really not much you can do. As
much as i love the internet and technology, once it's there, it's
there. They all make millions of $$$$ selling our information. Ever
wonder how junk mailers get your info?
Really the only thing we can do is copyright our names and info,
include a disclaimer stating if our info is used for any monetary gain,
or anything for that matter. They must contact us first, get our
permission, and PAY US for using them. Maybe that would discourage
them. You can request a copy of the original release form and go over
it thoroughly. Find out any subdivisions, affiliates, etc, that it was
given to. Make a formal request for them to pull the story..
good luck!
Ahhhhh....what sweet satisfaction to read your response though!! Maybe, he'll slither back into his den for a while!
Niels, MANY THANKS for all the "good fight" you tirelessly, unselfishly and steadily continue!!!
The assholes at denialism blog are hard at work again!
Fake diseases, part deux--chronic Lyme disease
Category: Medicine
Posted on: May 20, 2008 10:35 PM, by PalMD
New diseases are pretty rare these days. It used to be that a good observer could travel to the great unknown and acquire/discribe scads of new (to them) diseases. In the interconnected world of the present, "new" diseases spread rather quickly, and become old. When I was a young attending physician, I had heard of West Nile Fever from small chapters in medical school books. When I took over an inpatient medical service in the summer of 2002, I was taking care of several patients with the disease. It was new to me, but hardly new. Sometimes I wonder if people miss the great days of disease discovery, and try to make up for it by inventing their own diseases.
Here at denialism blog we've occassionally written about "fake diseases", that is, diseases that are not recognized by science-based medice, have no clear definitions, and attract quackery. One of these diseases is Morgellons syndrome, an ill-defined malady recognized by no one other than patient advocacy groups and their stooges. Another plays on a real disease, but tries to stretch that disease's definition to include just about any symptom you could imagine.
Chronic Lyme disease is the name given by a diverse group of patients and physicians who have in common a belief that a relatively common disease can continue to cause debility long after the disease is gone. The disease in question is Lyme disease, a tick-borne bacterial infection common in the Northeast U.S., and in scattered other parts of the country.
... [click the link to see the rest of their spew] ...
Here's my reply, which i expect them to censor, since they censor most of my replies:
PalMD -- that wasn't me that posted truths about Lyme disease. Yes, the
content of that post was similar in tone to what I've posted, and what
you've censored via "disenvoweling" in the past. That's because you're
wrong, so there will be multiple "Niels's" out there with similar opinions
that you can ridicule and pigeonhole. These opinions represent hundreds of
thousands of people who've been ill-served by the mainstream medical
community for which you are cheerleading. Rather than listen and change,
you mock and remain ignorant about a condition you haven't even the first
clue about. And none-of your verbiage changes the simple fact that you're
wrong. (you doth protest too much)
This really isn't about science, since science is about an open exchange of
ideas, rather than censorship of ideas that threaten your untenable
lyme-denialist dogma. The fact that you'll censor this post is testament to
your untenable position. If you knew what you were talking about you
wouldn't be afraid of opposing opinions. But that's really not the reason
you're here. You're here to get attention by hating on people, and writing
thinly veiled hate speech.
The fundamental aspect of denialism is "hate speech." This is the
"denialism blog" isn't it?? When holocaust denialists deny a trauma that
clearly happened to a large number of people, they are practicing
hate-speech. Retraumatizing those that have already been injured through
the practice of people with narrow and cancerous views. The purpose of
denialism is to perpetuate these narrow, cancerous and wrong-headed views
for purposes of political gain.
when you practice Lyme-denialism, or morgellons-denialism, you are not
practicing medine, and you are not operating under the principles of
"science." You are practicing hate-speech. Hate speech politically and
financially motivated by the lyme-denialists who do not want the insurance
and HMO profits impacted by proper recognition and treatment disease that
is present in up to 1-in-3 members of the general population in endemic
areas.... a disease implicated in just about every "medical mystery" from
autism, alzheimers, ALS, FM, CFS, MS, depression, mania, etc.
Now that you can't hate on women, or gays, or minorities, or even people
with disabilities... you've chosen a vulnerable segment of society to pick
on... using the fact that they've got a new fringe condition to side-step
the fact that you're practicing hate speech on people with disabilities.
the fact that you're a doctor and do this is reprehensible.
perhaps you should focus on building a better medical practice and
improving your skills: http://www.healthgrades.com/directory_search/physician/profiles/dr-md-reports/Dr-Peter-Lipson-MD-83DBBDDC.cfm?tabphysprofile=pat_exp
If Lyme was in the movie sicko... this blog would be like advocating that
people that happen to get two fingers sliced off... should only get one
sown back on... because it's in the guidelines... and who really needs all
those fingers anyways. And then you'd spend this entire blog hating on
people that dared to want both their fingers sown on since that's what
they'd expected their insurance to cover.
That's kind of like the fact that I have to spend $500.00 a month out of
pocket to inject bicillin-LA in my ass twice a week (much better than
rocephin and requires no IV). Even though I have labs that clearly show I
have Lyme disease, immune deficiency, anemia, etc. Funny thing is they're
happy to give me $10.00/month antibiotics that don't do anything... but
they refuse to pay for medications that will actually treat Lyme disease
effectively. And then they'll say "you've been on our totally ineffective
antibiotics for a whole year now... you couldn't possibly have lyme
anymore"... but you can go far in mainstream medicine... by ignoring the
patients symptoms, labs, etc. And when in doubt, say "ringworm" or "staph."
--
Niels
http://nielsmayer.com
GEEZ! I hate to wish this stuff on anyone. But, it's only until one
of those idiots is infected, will they believe! I guess they missed
it last year when our dear Pres Bush got Lyme Disease.
You know eversince I saw the first signs of this "morgellons",which
was 3 1/2 years now i cant even remember its been tough, anyway, I
was back tracking as to what I had done or what I mite have touched
or came in contact with and our salt water aquarium has always stood
out to me, but I never voiced my thought, just always was looking for
a sign or evidence on the aquarium, I do see little fibers but
everyone had me convinced that I was delusional so I didnt mention
it,most of you know exactly what I'm talking about, so we uasually
just keep to ourselves and live in our private little hell, but now I
thank you for this post. I need to forward this to alot of people.
Thank you again, I have not gone to any of the links but is there
anything that says how we can combat these things?
Your Friend, Margie
You may be right but I've seen many types of parasites associated with morgellons.
Steve Frey Steve Frey is offline
Senior Member
Join Date: Jan 2007
Posts: 470
Default It's not man-made- It's Trichoplax Adhaerens
For those of us in the Bay Area:
"The most important documentary to come out this year."
Molly Gedham, XM Radio
San Francisco Benefit & Party
Tuesday, July 1, 2008
6:30PM
Cowell Theater, Fort Mason
On the San Francisco Bay
(Mark your calendars. Ticket and event information to follow.)
I wish I could get up there somehow ..... I have time to find a ride
(cross my fingers)
Wendy
I believe it can be fatal if left untreated.
This was forwarded to me today:
Date: Saturday, July 26th
Time: 12:00 p.m.
Place: Alamo Drafthouse Ritz Theatre
320 E. 6th Street Austin, TX 78701
Tickets: $10 online at http://www.originalalamo.com/Show.aspx?id=5477
About the film:
Under Our Skin, an infectious new film about microbes, money and medicine.
"There's no medicine for someone like you."
It's bigger than AIDS, West Nile Virus and Avian Flu combined, yet
most physicians don't recognize it or are afraid to report it.
Insurance companies pay experts to say it's all in your head. And the
mainstream medical establishment won't want you to see this film.
One of the most misunderstood and controversial illnesses in the
history of medicine, Lyme disease is among the fastest growing
infectious diseases in the United States. Yet each year tens of
thousands go undiagnosed or misdiagnosed with such conditions as
fibromyalgia, chronic fatigue and even autism, MS and Alzheimer's.
This groundbreaking documentary investigates the human, medical and
political dimensions of Lyme disease, an emerging epidemic destroying
countless numbers of lives. Following the stories of patients and
physicians as they battle for their lives and livelihoods, the film
brings into focus a haunting picture of our health care system and its
inability to cope with a growing terror under our skin.
Audience Choice Award Finalist Tribeca Film Festival 2008
Official Selection Silverdocs Film Festival 2008
Official Selection Berkshire International Film Festival
Official Selection Rhode Island International Film Festival
Best Socially Conscious Documentary Nominee Fledgling Fund/IFP Market
Find out more and watch an updated trailer at www.underourskin.com.
Learn more about the fight against Lyme disease at www.turnthecorner.org.
Sometimes i feel like..bugs are spreading thru inner parts of my body. I have beening experincing chest pain, and stomach pain..time to time (when i eat wrong food).
P.S
I'm not scared of dying or anything , its just I'm quite curious..that's all.
Sorry to have offended, Vera. It was not ridecule, but happiness
that you heard. It is so rare these days, I know.
Perhaps I should not post any longer, as I cannot hold on to the
appropriate sombre attitude, and to attempt to do so only serves to
bring my spirits down.
I, frankly, do not remember who said what, but I know it is not my
intent to show lack of respect, but just the opposite. Not
respecting someone would be to allow them to go through life showing
one and all that there was something lacking in their high school
training.
But, perhaps I am getting way too involved here, and should cease
posting for a bit. I have said everything that I believe to be true,
time and time again. There is really nothing further that I can
contribute to sufferers that I have not already done.
Sometimes I repeat myself so much it feels like beating a dead horse,
and I like horses. There are probably better ideas to be had by
those better than myself.
Shirley,
When my nephew and his wife had a new baby I so wanted to fly back to
New York and meet him! I too had the SAME FEELINGS about holding him
and kissing those brand new fingers and toes! I don't think that your
feelings are obsessive ..... In my opinion your are just being
cautious and are showing great respect and care for the new little one.
Morgellons doesn't SEEM to be contagious (no one in contact with me
has EVER shown symptoms ..... including my ex-boyfriend. We were
together when I had this really bad and we were together then for 2
1/2 years. We now hang out as friends and he hasn't ever shown any signs.
It's very noble of you to feel the way you do. What if you did infect
that baby? You would NEVER forgive yourself! Do as you feel you should!
.... and Congratulations!
Wendy
My boyfriends daughter had a baby this week. I told him I did not
think it wise for me to see the baby yet because I don't want her in
contact with morgellons. He thinks I'm obsessing too much and to quit
it. What do you think?
shirley
Lila has left the group. Her name no longer even
appears on the member list.
Personally, I liked her. She's sweet and kind.
I know I am new, and because of that I don't matter,
but I am really disappointed that she felt driven
away by all of this.
I think we lost a valuable member.
I was appalled by one particular members comments. It is a fact that not everyone, whether they have this disease,or not, is as intelligent as you believe that you are.are. Why should such members be ridiculed for this. I thought that the idea behind this group was helping other members and yourself deal with morgellons. It seems that lately ,it has been more about lack of respect and the reaction of other members. Why can't we all just stick with the issues related to morgellons, instead of putting other's down. Everyone has the right to their beliefs. Many ideas posted on this forum seem farfetched to me, but is it worth it to bitch about who said what? We all should just sticjk with helping each other out. I hope I used proper spelling and grammer in writing this. Sorry couldn't resist! Thanks!` Verna
Good theory.
Sent via BlackBerry from T-Mobile
Could you mean 'catty' comments, and not 'caddy'?
Subtly cruel or malicious; spiteful: a catty remark.
Though I think it is a word that is very unfair to cats.
Yeah, like kids in a playground, sometimes we don't play nice.
I get the impression that some people here have connections
with people who are actually working on a cure for this
disease. If this is true, I'd like to contribute my
opinion. (Just my opinion, but based on my experiences.)
I think it might be impossible to kill this bug with any
antibiotic or other "bug poison". I think that any
poison strong enough to kill Morgs would also kill the
host. This bug has too many defenses...I don't think
it can be killed "from the outside"...meaning whatever
kills it, the bug must actually be attracted to it, and
must eat it with glee, like a moth to flame.
I think the answer is a Trojan Horse. If science could
"package" the drug so that it looks desirable to the
bugs, that might work. Somehow the drug must also
address the resistance issue.
These are my thoughts. I personally think it is that
ONLY way a cure could ever be.
Maybe the men in the white coats have already thought
of this, but I'd like to post this in case no one else
has thought of it.
I have to tell you, it is quite annoying reading the disrespectful comments lately that have been going on back and forth here. We are all here to support each other, and it is OK to have different political and religious beliefs....Agree to disagree, and respect each other...No name calling, and caddy comments would be appreciated. There are hundreds of us who read this daily and have enough stress in our lives and don't feel like reading nasty banter. Perhaps we can all try to get along....Thanks.
Verna <vernagallagher@...
What you "Truly Believe" isn't worth much. It's what you KNOW that
counts!!!
My theory, I truly believe there is an International coverup going on
now. I always thought that the Associated Press (AP) and United Press
International (UPI) were the main sources of information around the
world. I've had Morg for a year now and although I have seen a couple
stories on local, network television, and on the net. I have yet to
find anything on AP or UPI. Why do you think this is so? I've tried
several different keywords to no avail.
If anyone can find a story on AP or UPI please post.
Superbug Survival by Morph, Mutation, because of our Chemically
Altered Systems! Have you seen the following story on Associated
Press today?
Gut superbug causing more illnesses, deaths
By MIKE STOBBE, AP Medical Writer - Wed May 28, 4:03 PM PDTProvided
by:
86% of users found this article helpful.ATLANTA - The number of
people hospitalized with a dangerous intestinal superbug has been
growing by more than 10,000 cases a year, according to a new study.
The germ, resistant to some antibiotics, has become a regular menace
in hospitals and nursing homes. The study found it played a role in
nearly 300,000 hospitalizations in 2005, more than double the number
in 2000.
The infection, Clostridium difficile, is found in the colon and can
cause diarrhea and a more serious intestinal condition known as
colitis. It is spread by spores in feces. But the spores are
difficult to kill with most conventional household cleaners or
antibacterial soap.
C-diff, as it's known, has grown resistant to certain antibiotics
that work against other colon bacteria. The result: When patients
take those antibiotics, competing bacteria die off and C-diff
explodes.
This virulent strain of C-diff was rarely seen before 2000.
"The nature of this infection is changing. It's more severe," said
Dr. L. Clifford McDonald, a Centers for Disease Control and
Prevention expert who was not part of the study.
There are other factors that play into the rise of C-diff cases as
well, including a larger of number of patients who are older and
sicker. "And there may be some overuse and inappropriate use of
antibiotics," said Dr. Marya Zilberberg, a University of
Massachusetts researcher and lead author of the study.
The Zilberberg study was based on a sample of more than 36 million
annual discharges from non-governmental U.S. hospitals. That data was
used to generate the study's national estimates.
The research is being published in the June issue of Emerging
Infectious Diseases, a CDC publication.
Using other scientists' estimates, the study concluded that 2.3
percent of the cases in 2004 were fatal about 5,500 deaths. That
was nearly double the percentage of C-diff-related cases that ended
in death in 2000.
Many of the people who died had other health problems. The study did
not try to determine if Clostridium difficile was the main cause of
death in each case, Zilberberg said.
But earlier research concluded the infection is the underlying cause
of thousands of deaths annually, and the problem is getting worse.
C-diff has become an acute health concern in Canada, where it was
blamed for 260 deaths at seven Ontario hospitals recently, and 2,000
deaths in Quebec since 2002.
The Association for Professionals in Infection Control and
Epidemiology is currently working with U.S. hospitals to study
prevalence of the infection and what infection control measures seem
to work best.
"This is not a time for alarm, but more a time for educating health
professionals to understand this particular pathogen," said Kathy
Warye, chief executive of the Washington, D.C.-based association.
___
On the Net:
The CDC publication: http://www.cdc.gov/ncidod/EID/index.htm
I remember that movie from the 70's! Thanks for the tip on
Infected. Looks like it was a movie at first, Infection by Scott
Sigler. I'll have to check them both out, Thanks!
I did. It is pretty good! Read the book, Infected. It is actually about
Morgellons, but in a fictional, government conspiracy type of way.
Sent via BlackBerry from T-Mobile
did anyone watch this program on the A&E channel on mon. and tues.? it was very interesting and made me think a lot about our morgellons theory and why more is not being done to help us. It explained a lot and really made me think.
I'm curious about a large portion being nurses and teachers with nurses outnumbering teachers 3 to 1 -- I'm a RN. I also noticed many saying it started after a surgery - now that I think back I got sick after my c-section but not sure if it was this since I knew nothing of it. I'm in Louisiana - near New Orleans - hot muggys. I wonder how many here have it?
Please be assured, politics may contribute to our government's response
to this, but we are each equally entitled to have treatment, no matter
who we are or what we believe in.
We are all on this road, called life, learning as we go along.
I was just having some fun with your name, King. I am sorry if it
was dumb. I guess it was. Sorry.
I don't believe this stuff varies race to race. As there are reports
of it worldwide in all races. Not only in humans, but in animals as
well. Through experience as some of us know, our pets, cats & dogs.
Reports of cows, pigs, alligators and other animals. Whether,
mammals, reptiles..it doesn't seem to discriminate. I do however
believe that a persons previous health, exposure time and affected
area of the body are factors in the severity of their Morgellons.
Green-eyed, blonde.
Sent via BlackBerry from T-Mobile
tolynn my name is billy im not totally sure how i got morgellons but it started with a leak in my ceiling i live in los angeles with my wife so it doesnt rain to often I started noticing crazy stuff the 2nd winter mold began to form near the leak then i began to notice excessive amounts of dust and hair in my vacumm then the lesions started hair begon to vibrate and fall out hairs would actually separate while vibrating and replant themselves began shaving my body it helped i believe the fibers use any hair or fiber to use as a HOME I know for certain the fibers do have a life cycle when they would breed inside my body i became more sexually active my arm muscles would swell the palms of my hand would turn a greenish color i believe also one of the parasites somehow cause the body to put out a pheramone to attract other parasites contracted at least 4 different intestinal worms i believe through gardening in soil dogs cats possum racoons rats mice were poopin the fibers can
also live in oter forms to many to mention my teeth began fallinng out found seashell type creatures in the holes in my teeth and nematode type worms and round eggs started to go insane would black out for hours not knowing what i did decided to take a drastic chance threw everything away all i owned moved to a new place with no mold or leaks began vermox 3 days what came out of my body oh my god then bactrim 4 2 weeks its been about 1 yr i feel 99%better
to
Patram81....this is my face...(?????????) I'm completely lost and out in left field here?! Treating others with respect is what I always try to do and "great and mighty" aren't adjectives that I would tack alongside my name. Sorry if you thought otherwise but I certainly didn't intend to step on anyone's toes. I'm totally not following.
Just wondering if Morgs affects certain races more than others....Seems like I have only seen pictures of Caucasians with this....Just like sickle cell anemia affects mostly African Americans....Does anyone think there is a certain genetic make up of people who get it vs. people who don't? For instance...people with blue eyes, fair skin, etc? Maybe there is nothing to this.....But is just a thought I had. This question has NOTHING to do with politics by the way...~Lila
patram81 <patram81@...
I know I am 'beating a dead horse', here.
But there is another important consideration.
The cure for Morgellons will definately require the cooperation from
the medical researchers in other countries. This is not wild
speculation that some of these people are not exactly enamoured with
the US for our meddling in their countries, and I am sure in the back
of their minds they are thinking 'if the US can invade Iraq for no
good reason, what could they do to my country?'
If our scientists and medical profession are asking/begging for their
expertise, because we alone (with the 'greatest medical system in the
world'), CLEARLY do not have the comptance to handle it, we would do
well to think about not voting for a person who supports the war, who
voted for it in the past, who has the same mindset in many issues
concerning international affairs as does the present administration.
Our economy is not doing so well. If it keeps going like this we
will not be able to bribe and buy cooperation from other nations on
crucial issues as we have often done in the past. We will be forced
to think of the human results of our decisions, something that the US
has not always been willing to do.
When we arrive at a cure, it will be to a GREAT extent from the
cooperation and goodwill of countries that we have stepped on in
various ways in the past in one way or another, whose people, even
doctors and researchers, are proud citizens of those countries. It
can only be to our benefit if we go to the table and talk with these
people and not use threats and bribery as one of our first bargaining
chips.
One of the great political thinkers of our time said 'jaw-jaw' is
always better than 'war-war'. There is only one candidate presented
to us who is verbalizing the idea of the US as a citizen of the
world: the other would keep us as bullies. Why should it happen
that the nations with the greatest numbers of religious followers
should often be the biggest killers and wage the most wars and
disturb the peace of the world? We should be trying to lead by
example if we think we stand on higher moral ground, no?
I am not kidding, we are going to be cured by the good graces of
people who may not like the US but find their calling to be healers
and to try to end human suffering as something that surpasses
political considerations. We should accept this help with the same
gratitude that we expect from other countries when we assist them.
I know I am 'beating a dead horse', here.
But there is another important consideration.
The cure for Morgellons will definately require the cooperation from
the medical researchers in other countries. This is not wild
speculation that some of these people are not exactly enamoured with
the US for our meddling in their countries, and I am sure in the back
of their minds they are thinking 'if the US can invade Iraq for no
good reason, what could they do to my country?'
If our scientists and medical profession are asking/begging for their
expertise, because we alone (with the 'greatest medical system in the
world'), CLEARLY do not have the comptance to handle it, we would do
well to think about not voting for a person who supports the war, who
voted for it in the past, who has the same mindset in many issues
concerning international affairs as does the present administration.
Our economy is not doing so well. If it keeps going like this we
will not be able to bribe and buy cooperation from other nations on
crucial issues as we have often done in the past. We will be forced
to think of the human results of our decisions, something that the US
has not always been willing to do.
When we arrive at a cure, it will be to a GREAT extent from the
cooperation and goodwill of countries that we have stepped on in
various ways in the past in one way or another, whose people, even
doctors and researchers, are proud citizens of those countries. It
can only be to our benefit if we go to the table and talk with these
people and not use threats and bribery as one of our first bargaining
chips.
One of the great political thinkers of our time said 'jaw-jaw' is
always better than 'war-war'. There is only one candidate presented
to us who is verbalizing the idea of the US as a citizen of the
world: the other would keep us as bullies. Why should it happen
that the nations with the greatest numbers of religious followers
should often be the biggest killers and wage the most wars and
disturb the peace of the world? We should be trying to lead by
example if we think we stand on higher moral ground, no?
I am not kidding, we are going to be cured by the good graces of
people who may not like the US but find their calling to be healers
and to try to end human suffering as something that surpasses
political considerations. We should accept this help with the same
gratitude that we expect from other countries when we assist them.
Your hate of Bush and I guess all Republicans has colored your
prospective and blinded your vision! I don't think you could see the
truth if it looked you directly in the eye.
WE should all be POLITICALLY AWARE that how we vote this year as well
as who we VOTE FOR can GREATLY AFFECT the scientific research that
will be undertaken in our future. Ok .... the thread about Fenben had
been left on here but IF you have been following what is being written
you should be able to realize that.
Many people feel the Government is totally responsible for our illness
so it does have an impact in reference to our illness. Sometimes these
issues need to be discussed.
We have spent YEARS writing our politicians and the CDC (also a
government department) to help us and recognize our plight!!!!
Maybe you haven't been here long enough to realize what we have been
doing (in my case the last 4 years) DAILY!!!! Writing the CDC, our
Senators, Congressmen, TV Stations, Hospitals, Health Departments,
News media .... etc. So to sum it all up, being politically active is
a MUST if we are to get a diagnosis and hopefully a CURE!
Don't you realize that President Bush ordered the Scientists at the
CDC to do shoddy SCIENCE in order to appease or pass incorrect reports
to support his agenda? The Scientists were outraged and either took
early retirements and many others resigned. GOVERNMENT and POLITICS
are very important in this forum.
What about those that feel this is a developed Department of Defense
substance? ....... Oh well .... enough of my venting! ;)
Wendy
KKing,
I get this emailed to me in daily compilations, so I respond a bit
late.
It was so funny to hear all the arguing, back and forth, and right
afterwards your comment about you-know-what.
This is not for you, oh great and mighty King, but just a general
statement -
I think it is ok to criticize our ideas, but we are not our ideas and
each one of us is able to change and each one of us probably holds some
concepts that are wrong.
So what I think we should stay away from is to start making things
personal. To call each other names and belittle each other. Many of
us have family members who do not think as we do. Many of us have
changed over time. I sincerely was a rabid bible-bearing conservative
at one time. So, please try to see the other person, just a little, as
yourself in some phase of development and treat him with a bit of
respect.
uh ...... there's nothing green in my house except my houseplants and
my orchids (also house plants!)
I don't believe that there are enough hours in a day to keep our homes
'hermetically sealed and clea